{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,10]],"date-time":"2026-02-10T07:10:21Z","timestamp":1770707421178,"version":"3.49.0"},"reference-count":35,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2021,2,18]],"date-time":"2021-02-18T00:00:00Z","timestamp":1613606400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2021,2,18]],"date-time":"2021-02-18T00:00:00Z","timestamp":1613606400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Health Qual Life Outcomes"],"published-print":{"date-parts":[[2021,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Background<\/jats:title>\n                <jats:p>The Short Inflammatory Bowel Disease Questionnaire (SIBDQ) is a widely used instrument to assess Health-related Quality of Life (HRQoL) among inflammatory bowel disease (IBD) patients. Our aim was to translate and adapt the SIBDQ so that it could be adequately used in Portugal.\n<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>This is a prospective design cohort study undertaken at a tertiary hospital. This study took place simultaneously with the first part of the <jats:italic>SexIDI<\/jats:italic> study, a study aiming to assess the impact of IBD on patients\u2019 sexual QoL. The original SIBDQ was translated by two independent translators and adapted by an IBD expert panel following the opinions of a convenient sample of 5 IBD patients. Afterwards, IBD patients from the outpatient clinic were consecutively invited to fill the Portuguese version of the questionnaire (SIBDQ-PT) at three different timepoints (0, 2, 4\u00a0weeks). Ninety-two patients completed the SIBDQ-PT at baseline, whereas 33 did so after 2 and 4\u00a0weeks (approximately). Statistical analysis was performed using SPSS version 25, and the following aspects were analysed: reliability (through internal consistency, test\u2013retest and intraclass correlation), validity (through exploratory factor analysis [EFA], and Pearson correlation coefficient for linear correlations), score distribution, and responsiveness analysis (through t-student tests).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>Overall, SIBDQ-PT was shown to have a high internal consistency (Cronbach's \u03b1\u2009=\u20090.80) and a high test\u2013retest reliability (0.80 [CI 0.74\u20130.86] and 0.69 [CI 0.50\u20130.82]). EFA detected four dimensions\u2014bowel, social, emotional and systemic. As expected, an overall SIBDQ-PT score was positively correlated with sexual satisfaction (r\u2009=\u20090.27; <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.05) and negatively correlated with depression (r\u2009=\u2009\u2212\u20090.63; <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.01). Moreover, SIBDQ-PT was found to have an adequate score distribution, and to be responsive, as there was a significant subscore change for patients who reported an \u201coverall worsening in general well-being\u201d (0.93\u2009\u00b1\u20090.13 decrease; <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.01).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusions<\/jats:title>\n                <jats:p>The Portuguese version of the SIBDQ hereby presented is a reliable, valid and responsive instrument that can be used to measure HRQoL among Portuguese IBD patients.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s12955-021-01698-9","type":"journal-article","created":{"date-parts":[[2021,2,20]],"date-time":"2021-02-20T11:40:36Z","timestamp":1613821236000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Short Inflammatory Bowel Disease Questionnaire: translation and validation to the Portuguese language"],"prefix":"10.1186","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5098-8729","authenticated-orcid":false,"given":"Joana","family":"Roseira","sequence":"first","affiliation":[]},{"given":"Helena T.","family":"Sousa","sequence":"additional","affiliation":[]},{"given":"Ana","family":"Marreiros","sequence":"additional","affiliation":[]},{"given":"Lu\u00eds F.","family":"Contente","sequence":"additional","affiliation":[]},{"given":"Fernando","family":"Magro","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2021,2,18]]},"reference":[{"key":"1698_CR1","doi-asserted-by":"publisher","first-page":"720","DOI":"10.1038\/nrgastro.2015.150","volume":"12","author":"GG Kaplan","year":"2015","unstructured":"Kaplan GG. 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Patients signed an informed consent form prior to inclusion in the study. All data was collected anonymously, and no association could be established between the questionnaires and the responders.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"F.M has received consultation fees outside of this research by Abbvie, MSD, Falk Foundation e.V., Ferring, Takeda, Pfizer, Vifor, Lab. Vito\u2019Ria. For the remaining authors there are no conflicting interests.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"59"}}