{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T19:20:33Z","timestamp":1740165633516,"version":"3.37.3"},"reference-count":14,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2022,1,17]],"date-time":"2022-01-17T00:00:00Z","timestamp":1642377600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2022,1,17]],"date-time":"2022-01-17T00:00:00Z","timestamp":1642377600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100007601","name":"horizon 2020","doi-asserted-by":"publisher","award":["801553"],"award-info":[{"award-number":["801553"]}],"id":[{"id":"10.13039\/501100007601","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Arch Public Health"],"published-print":{"date-parts":[[2022,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Background<\/jats:title>\n                <jats:p>Non-Communicable diseases (NCD) are the main contributors to mortality and burden of disease. There is no infrastructure in Europe that could provide health information (HI) on Public Health monitoring and Health Systems Performance (HSP) for research and evidence-informed decision-making. Moreover, there was no EU and European Economic Area Member States (EU\/EEA MSs) general consensus, on developing this initiative and guarantee its sustainability. The aim of this study is to analyze the integration of technical and political views made by the Joint Action on Health Information (InfAct; Information for Action) and the results obtained from those activities, in terms of advice and national and institutional support to develop an integrated and sustainable European Distributed Infrastructure on Population Health (DIPoH) for research and evidence-informed policy-making.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>InfAct established two main boards, the Technical Dialogues (TDs) and the Assembly of Members (AoM), to provide a platform for discussion with EU\/EEA MSs to establish a sustainable infrastructure for HI: 1) The TDs were composed by national technical experts (NTE) with the aim to discuss and provide feedback about scientific aspects, feasibility and EU-added value of the infrastructure proposed by InfAct. 2) The AoM gathered country representatives from Ministries of Health and Research at the highest political level, with the aim of providing policy-oriented advice for the future political acceptance, support, implementation, and development of InfAct\u2019s outcomes including DIPoH.<\/jats:p>\n                <jats:p>The documentation provided for the meetings consisted in Fact-Sheets, where the main results, new methods and proposals were clearly exposed for discussion and assessment; altogether with more extended information of the DIPoH. The documentation was provided to national representatives within one more before each TD and AoM meeting.<\/jats:p>\n                <jats:p>The Agenda and methodological approaches for each TD and AoM meeting consisted in the presentations of the InfAct outcomes extending the information provided in the Fact-Sheets; followed by a non-structured interaction, exchange of information, discussion and suggestions by the MSs representatives.<\/jats:p>\n                <jats:p>The outcomes of the non-structured discussions were collected in Minutes of the TD and AoM meetings, and the final version was obtained with the consensus of all participants. Additionally, structured letters of political support were provided to the AoM representatives, for them to consider providing their MS written support for DIPoH.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>NTE, within the TDs, considered that DIPoH was useful for technical mutual learning and cooperation among and within countries; although they considered that the technical feasibility to uptake InfAct deliverables at the national and EU level was complex. The AoM focused on political support, resources, and expected MSs returns. The AoM representatives agreed in the interest of setting up an integrated and sustainable HI infrastructure and they considered DIPoH to be well-articulated and defined; although, some of them, expressed some barriers for providing DIPoH political support. The AoM representatives stated that the AoM is the most suitable way to inform EU MSs\/ACs about future advances of DIPoH. Both boards provided valuable feedback to develop this infrastructure. Eleven countries and sixteen institutions supported the proposal, either by letters of political support or by signing the Memorandum of Understandings (MoU) and three countries, additionally, provided expression of financial commitment, for DIPoH to be added to the ESFRI 2021 roadmap.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusions<\/jats:title>\n                <jats:p>TDs and AoM were key forums to develop, advise, advocate and provide support for a sustainable European research infrastructure for Population Health.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s13690-022-00790-w","type":"journal-article","created":{"date-parts":[[2022,1,17]],"date-time":"2022-01-17T08:24:24Z","timestamp":1642407864000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Integrating technical and political views for a sustainable European Distributed Infrastructure on Population Health"],"prefix":"10.1186","volume":"80","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0709-5757","authenticated-orcid":false,"given":"Alicia","family":"Padron-Monedero","sequence":"first","affiliation":[]},{"given":"Rodrigo Sarmiento","family":"Su\u00e1rez","sequence":"additional","affiliation":[]},{"given":"Petronille","family":"Bogaert","sequence":"additional","affiliation":[]},{"given":"Linda","family":"Abboud","sequence":"additional","affiliation":[]},{"given":"Herman","family":"Van Oyen","sequence":"additional","affiliation":[]},{"given":"Hanna","family":"Tolonen","sequence":"additional","affiliation":[]},{"given":"Mariken J.","family":"Tijhuis","sequence":"additional","affiliation":[]},{"given":"Luigi","family":"Palmieri","sequence":"additional","affiliation":[]},{"given":"Romana","family":"Haneef","sequence":"additional","affiliation":[]},{"given":"Anne","family":"Gallay","sequence":"additional","affiliation":[]},{"given":"Luis","family":"Lapao","sequence":"additional","affiliation":[]},{"given":"Paulo Jorge","family":"Nogueira","sequence":"additional","affiliation":[]},{"given":"Thomas","family":"Ziese","sequence":"additional","affiliation":[]},{"given":"Stefanie","family":"Seeling","sequence":"additional","affiliation":[]},{"given":"Jakov","family":"Vukovic","sequence":"additional","affiliation":[]},{"given":"Isabel","family":"Noguer-Zambrano","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2022,1,17]]},"reference":[{"key":"790_CR1","volume-title":"Council conclusions on the \u2018\u2018Reflection process on modern, responsive and sustainable health systems\u201d Employment, social policy, health and consumer affairs Council meeting","author":"Council of the European Union","year":"2013","unstructured":"Council of the European Union. Council conclusions on the \u2018\u2018Reflection process on modern, responsive and sustainable health systems\u201d Employment, social policy, health and consumer affairs Council meeting. 2013. https:\/\/www.consilium.europa.eu\/uedocs\/cms_data\/docs\/pressdata\/en\/lsa\/140004.pdf Accessed 22 April 2021."},{"key":"790_CR2","unstructured":"The BRIDGE Health project Bridging Information and Data Generation for Evidence-based Health policy and research. Bridge Health: Concept Paper. Technical Report BRIDGE Health N\u00b0 WP1_2016_03. 2018. https:\/\/www.bridge-health.eu\/sites\/default\/files\/Technical%20Report%20WP1_2016_03_Concept%20Paper_final_V2_0.pdf Accessed 23 May 2021."},{"issue":"12","key":"790_CR3","doi-asserted-by":"publisher","first-page":"1340","DOI":"10.1016\/j.healthpol.2018.10.009","volume":"122","author":"P Bogaert","year":"2018","unstructured":"Bogaert P, van Oers H. Van Oyen H; for BRIDGE health. Towards a sustainable EU health information system infrastructure: a consensus driven approach. Health Policy. 2018 Dec;122(12):1340\u20137. https:\/\/doi.org\/10.1016\/j.healthpol.2018.10.009.","journal-title":"Health Policy"},{"key":"790_CR4","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1186\/s13690-016-0171-7","volume":"75","author":"P Bogaert","year":"2017","unstructured":"Bogaert P, Van Oyen H, for BRIDGE health. An integrated and sustainable EU health information system: national public health institutes\u2019 needs and possible benefits. Arch Public Health. 2017;75:3. https:\/\/doi.org\/10.1186\/s13690-016-0171-7.","journal-title":"Arch Public Health"},{"key":"790_CR5","volume-title":"Final report","author":"Public Health Evaluation and Impact Assessment Consortium (PHEIAC) Evaluation of the use and impact of the European Community Health Indicators ECHI by Member States","year":"2013","unstructured":"Public Health Evaluation and Impact Assessment Consortium (PHEIAC) Evaluation of the use and impact of the European Community Health Indicators ECHI by Member States. Final report. 2013. https:\/\/ec.europa.eu\/health\/sites\/health\/files\/indicators\/docs\/echi_report_v20131031.pdf Accessed 22 April 2021."},{"key":"790_CR6","volume-title":"A Joint Action on Health Information. Information for Action (InfAct)","author":"Joint Action on Health Information. Information for Action (InfAct)","year":"2020","unstructured":"Joint Action on Health Information. Information for Action (InfAct). A Joint Action on Health Information. Information for Action (InfAct). 2020. www.inf-act.eu Accessed 22 April 2021."},{"key":"790_CR7","volume-title":"A Distributed Infrastructure on Population Health","author":"Joint Action on Health Information. Information for Action (InfAct)","year":"2020","unstructured":"Joint Action on Health Information. Information for Action (InfAct). A Distributed Infrastructure on Population Health. 2020. https:\/\/www.inf-act.eu\/sites\/inf-act.eu\/files\/2020-01\/Booklet.pdf Accessed 22 April 2021."},{"key":"790_CR8","volume-title":"Information for Action (InfAct). Fact Sheets","author":"Joint Action on Health Information","year":"2020","unstructured":"Joint Action on Health Information. Information for Action (InfAct). Fact Sheets. 2020. https:\/\/www.inf-act.eu\/sites\/inf-act.eu\/files\/2021-04\/InfAct%20Deliverable%204.3%20Fact%20Sheets_combined.pdf Accessed 10 June 2021."},{"key":"790_CR9","volume-title":"Assembly of Members","author":"Joint Action on Health Information. Information for Action (InfAct)","year":"2021","unstructured":"Joint Action on Health Information. Information for Action (InfAct). Assembly of Members. 2021. https:\/\/www.inf-act.eu\/assembly-members Accessed 5 May 2021."},{"key":"790_CR10","volume-title":"The PHIRI project","author":"Population Health Information Research Infrastructure (PHIRI)","year":"2020","unstructured":"Population Health Information Research Infrastructure (PHIRI). The PHIRI project. 2020. https:\/\/www.phiri.eu\/ Accessed 22 April 2021."},{"key":"790_CR11","volume-title":"WP 10 : Assessing and piloting interoperability for public health policy","author":"Joint Action on Health Information. Information for Action (InfAct)","year":"2021","unstructured":"Joint Action on Health Information. Information for Action (InfAct). WP 10 : Assessing and piloting interoperability for public health policy. 2021. https:\/\/www.inf-act.eu\/wp10 Accessed 5 May 2021."},{"issue":"3","key":"790_CR12","doi-asserted-by":"publisher","first-page":"559","DOI":"10.1017\/S0266462303000515","volume":"19","author":"HD Banta","year":"2003","unstructured":"Banta HD. European advisory committee on Health Research (EACHR). Considerations in defining evidence for public health: the European advisory committee on Health Research World Health Organization regional office for Europe. Int J Technol Assess Health Care. 2003;19(3):559\u201372. https:\/\/doi.org\/10.1017\/S0266462303000515.","journal-title":"Int J Technol Assess Health Care"},{"key":"790_CR13","volume-title":"66th session. Action plan to strengthen the use of evidence, information and research for policy-making in the WHO European Region","author":"WHO Regional Committee for Europe","year":"2016","unstructured":"WHO Regional Committee for Europe. 66th session. Action plan to strengthen the use of evidence, information and research for policy-making in the WHO European Region. 2016. https:\/\/www.euro.who.int\/__data\/assets\/pdf_file\/0006\/314727\/66wd12e_EIPActionPlan_160528.pdf. Accessed 22 April 2021."},{"key":"790_CR14","volume-title":"National Nodes meeting: from InfAct to PHIRI","author":"Joint Action on Health Information. Information for Action (InfAct)","year":"2021","unstructured":"Joint Action on Health Information. Information for Action (InfAct). National Nodes meeting: from InfAct to PHIRI. 2021. https:\/\/www.inf-act.eu\/events\/national-nodes-meeting-infact-phiri Accessed 5 May 2021."}],"container-title":["Archives of Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s13690-022-00790-w.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s13690-022-00790-w\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s13690-022-00790-w.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,1,17]],"date-time":"2022-01-17T08:38:37Z","timestamp":1642408717000},"score":1,"resource":{"primary":{"URL":"https:\/\/archpublichealth.biomedcentral.com\/articles\/10.1186\/s13690-022-00790-w"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,1,17]]},"references-count":14,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2022,12]]}},"alternative-id":["790"],"URL":"https:\/\/doi.org\/10.1186\/s13690-022-00790-w","relation":{},"ISSN":["2049-3258"],"issn-type":[{"type":"electronic","value":"2049-3258"}],"subject":[],"published":{"date-parts":[[2022,1,17]]},"assertion":[{"value":"21 June 2021","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"7 January 2022","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"17 January 2022","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"After consultation with the Research Ethics Committee of the Institute of Health Carlos III it was decided that the study needed no formal approval because data collection did not involve human participants or human data.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"HVO is co-authors of this paper and the editor in chief of \u201cArchives of Public Health.\u201d RH is co-author of this paper and the section editor of \u201chealth information system\u201d of \u201cArchives of Public Health.\u201dThe rest of the authors declare that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"29"}}