{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,15]],"date-time":"2026-01-15T13:20:55Z","timestamp":1768483255289,"version":"3.49.0"},"reference-count":32,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2005,10,1]],"date-time":"2005-10-01T00:00:00Z","timestamp":1128124800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Palliat Med"],"published-print":{"date-parts":[[2005,10]]},"abstract":"<jats:p>The disclosure of information to patients about diagnosis and prognosis and other                 aspects of care is still a matter of debate. We have conducted a study in advanced                 cancer patients about their experiences and preferences concerning this issue. A                 questionnaire was developed and completed during the first appointment in the                 outpatient clinic of an oncology centre's palliative care unit, before the patient                 had any contact with the staff of the unit. The study was conducted on a convenience                 sample of 47 patients. We found that 34 (72%) of those patients thought they had                 been informed of their diagnosis, most of them by the hospital doctor. However, not                 all stated the diagnosis in a manner clearly showing that they were aware of the                 nature of their disease. Most patients were with a family member when the diagnosis                 was disclosed, which is what the majority had preferred. Of the 13 uniformed                 patients, only one preferred to remain uninformed. Most patients (89%) participated                 in decisions concerning treatment, although only 68% thought they should have                 participated. Some 39 patients (83%) were informed that they were being referred to                 the palliative care unit, but surprisingly only eight had received an explanation of                 the unit's function. We concluded that, although most patients had been informed of                 their disease, there remains many problems, the most important of which, in our                 view, is the difference between the information provided and the patients' needs.<\/jats:p>\n                  <jats:p>A revela\u00e7\u00e3o da informa\u00e7\u00e3o sobre o                 diagn\u00f3stico o progn\u00f3stico e outros aspectos dos cuidados                 \u00e9 ainda um assunto em debate. Realiz\u00e1mos um estudo em doentes                 com cancro avan\u00e7ado sobre as suas experi\u00eancias e                 prefer\u00eancias no que diz respeito a este tema. Foi desenvolvido um                 question\u00e1rio que foi aplicado na primeira consulta externa de uma unidade                 de cuidados paliativos de um centro oncol\u00f3gico, antes de terem contacto                 com o pessoal da unidade. O estudo foi realizado numa amostra de                 conveni\u00eancia de 47 doentes. Constat\u00e1mos que 34 (72%) desses                 doentes pensavam que tinham sido informados do seu diagn\u00f3stico, a maioria                 pelo m\u00e9dico do hospital. Contudo, nem todos nomearam o                 diagn\u00f3stico de um modo que mostrasse claramente que tinham                 no\u00e7\u00e3o da natureza da sua doen\u00e7a. A maioria dos                 doentes estava com um familiar quando o diagn\u00f3stico foi revelado e era                 assim que a maior parte preferia. Dos 13 doentes n\u00e3o informados                 s\u00f3 um preferia manter-se sem informa\u00e7\u00e3o. A maior                 parte dos doentes (89%) participou nas decis\u00f5es terap\u00eauticas,                 embora s\u00f3 68% pensasse que devia ter participado. Trinta e nove doentes                 (83%) foram informados de que tinham sido referenciados para a unidade de cuidados                 paliativos, mas surpreendentemente s\u00f3 oito tinham tido uma                 explica\u00e7\u00e3o sobre a fun\u00e7\u00e3o da unidade.                 Conclu\u00edmos que embora a maioria dos doentes tenha sido informada da sua                 doen\u00e7a h\u00e1 ainda muitos problemas, sendo o mais importante, do                 nosso ponto de vista, a diferen\u00e7a entre a                 informa\u00e7\u00e3o prestada e as necessidades dos doentes.<\/jats:p>","DOI":"10.1191\/0269216305pm1070oa","type":"journal-article","created":{"date-parts":[[2005,10,14]],"date-time":"2005-10-14T18:56:21Z","timestamp":1129316181000},"page":"526-531","source":"Crossref","is-referenced-by-count":30,"title":["Breaking bad news: experiences and preferences of advanced cancer patients at                 a Portuguese oncology centre"],"prefix":"10.1177","volume":"19","author":[{"given":"Ferraz","family":"Gon\u00e7alves","sequence":"first","affiliation":[{"name":"Palliative Care Unit, Portuguese Institute of Oncology, Oporto,"}]},{"given":"\u00c1gata","family":"Marques","sequence":"additional","affiliation":[{"name":"Palliative Care Unit, Portuguese Institute of Oncology, Oporto"}]},{"given":"S\u00f3nia","family":"Rocha","sequence":"additional","affiliation":[{"name":"Palliative Care Unit, Portuguese Institute of Oncology, Oporto"}]},{"given":"Pedro","family":"Leit\u00e3o","sequence":"additional","affiliation":[{"name":"Palliative Care Unit, Portuguese Institute of Oncology, Oporto"}]},{"given":"Teresa","family":"Mesquita","sequence":"additional","affiliation":[{"name":"Palliative Care Unit, Portuguese Institute of Oncology, Oporto"}]},{"given":"Susana","family":"Moutinho","sequence":"additional","affiliation":[{"name":"Palliative Care Unit, Portuguese Institute of Oncology, Oporto"}]}],"member":"179","published-online":{"date-parts":[[2005,10]]},"reference":[{"key":"e_1_2_1_1_1","doi-asserted-by":"publisher","DOI":"10.1016\/0959-8049(96)00087-1"},{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/0140-6736(93)90218-6"},{"key":"e_1_2_1_3_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.1979.03290350017012"},{"key":"e_1_2_1_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/oxfordjournals.annonc.a058233"},{"key":"e_1_2_1_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/026921639601000303"},{"key":"e_1_2_1_6_1","first-page":"43","article-title":"The cultural differences in perceived value of disclosure and cognition:                         Spain and Canada","volume":"19","author":"Fainsinger RL","year":"2003","unstructured":"Fainsinger RL , N\u00fa\u00f1ez-Olarte JM , Demoissac DM. The cultural differences in perceived value of disclosure and cognition: Spain and Canada . J Palliat Med 2003; 19: 43-48 .","journal-title":"J Palliat Med"},{"key":"e_1_2_1_7_1","doi-asserted-by":"publisher","DOI":"10.1191\/026921601676515878"},{"key":"e_1_2_1_8_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-92-6-832"},{"key":"e_1_2_1_9_1","first-page":"303","article-title":"Patients\u2019 awareness and desire for information about diagnosed                         but undisclosed malignant disease","volume":"300","author":"McIntosh J.","year":"1976","unstructured":"McIntosh J. Patients\u2019 awareness and desire for information about diagnosed but undisclosed malignant disease . 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