{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T22:16:33Z","timestamp":1791497793199,"version":"4.3.4"},"reference-count":30,"publisher":"Royal College of Psychiatrists","issue":"2","license":[{"start":{"date-parts":[[2022,3,24]],"date-time":"2022-03-24T00:00:00Z","timestamp":1648080000000},"content-version":"unspecified","delay-in-days":23,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010248","name":"Royal College of Psychiatrists","doi-asserted-by":"publisher","award":["RE16389"],"award-info":[{"award-number":["RE16389"]}],"id":[{"id":"10.13039\/100010248","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["BJPsych open"],"published-print":{"date-parts":[[2022,3]]},"abstract":"<jats:sec id=\"S2056472422000436_sec_a1\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Caring for a loved one with an eating disorder typically comes with a multitude of challenges, yet siblings and partners are often overlooked. It is important to understand if current clinical guidance for supporting carers are effective and being utilised for these groups, to help meet their needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S2056472422000436_sec_a2\">\n                    <jats:title>Aims<\/jats:title>\n                    <jats:p>To identify the experiential perspectives of siblings and partners of a loved one with an eating disorder compared with guidance for improving the adequacy of support provided to carers published by Beat and Academy for Eating Disorders.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S2056472422000436_sec_a3\" sec-type=\"methods\">\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Three online focus groups were held for ten siblings and five partners from across the UK (12 females and three males). Carers had experience of caring for a loved one with anorexia nervosa (13 carers) or bulimia nervosa (two carers), across a range of therapeutic settings. Focus group transcriptions were analysed with thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S2056472422000436_sec_a4\" sec-type=\"results\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four key themes were identified: (a) role-specific needs, (b) challenges encountered by siblings and partners, (c) generic needs and helpful strategies or approaches, and (d) accounts of service provision and family support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"S2056472422000436_sec_a5\" sec-type=\"conclusions\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Overall, the majority of experiences reported by siblings and partners did not meet the published guidance. Consequently, clinical practice recommendations were identified for services, alongside the charity sector, to take a proactive approach in detecting difficulties, providing skills training and emotional\/practical support, adapting\/tailoring peer support groups and supporting online facilitation. Our findings part-informed the design of our national online survey on loved ones\u2019 experiences of care in eating disorders.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1192\/bjo.2022.43","type":"journal-article","created":{"date-parts":[[2022,3,24]],"date-time":"2022-03-24T23:58:52Z","timestamp":1648166332000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":28,"title":["The experiential perspectives of siblings and partners caring for a loved one with an eating disorder in the UK"],"prefix":"10.1192","volume":"8","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0426-2388","authenticated-orcid":false,"given":"Rachel","family":"Batchelor","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6810-8251","authenticated-orcid":false,"given":"Hannah","family":"Cribben","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Macdonald","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janet","family":"Treasure","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0999-2379","authenticated-orcid":false,"given":"Erica","family":"Cini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7257-6605","authenticated-orcid":false,"given":"Dasha","family":"Nicholls","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carol","family":"Kan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"170","published-online":{"date-parts":[[2022,3,24]]},"reference":[{"key":"S2056472422000436_ref12","doi-asserted-by":"publisher","DOI":"10.1017\/S2045796020001067"},{"key":"S2056472422000436_ref8","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2013.827537"},{"key":"S2056472422000436_ref17","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"S2056472422000436_ref22","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2009.12.011"},{"key":"S2056472422000436_ref20","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-14-943"},{"key":"S2056472422000436_ref16","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(95)00127-S"},{"key":"S2056472422000436_ref18","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2018.1518086"},{"key":"S2056472422000436_ref2","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1002\/eat.20751","article-title":"Academy for eating disorders position paper: the role of the family in eating disorders","volume":"43","author":"Le Grange","year":"2010","journal-title":"Int J Eat Disord"},{"key":"S2056472422000436_ref7","volume-title":"Eating Disorders: Recognition and Treatment. NICE Guideline [NG69]","year":"2020"},{"key":"S2056472422000436_ref23","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2015.1044351"},{"key":"S2056472422000436_ref14","volume-title":"World Eating Disorder Healthcare Rights: An AED Global Blueprint for promoting Excellence in Care through Patient-Carer-Professional Partnerships","year":"2017"},{"key":"S2056472422000436_ref6","doi-asserted-by":"publisher","DOI":"10.1002\/erv.925"},{"key":"S2056472422000436_ref29","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2678"},{"key":"S2056472422000436_ref10","doi-asserted-by":"publisher","DOI":"10.1002\/jclp.21881"},{"key":"S2056472422000436_ref24","volume-title":"Skills-Based Learning for Caring for a Loved One with an Eating Disorder","author":"Treasure","year":"2017"},{"key":"S2056472422000436_ref9","doi-asserted-by":"publisher","DOI":"10.1002\/erv.937"},{"key":"S2056472422000436_ref26","doi-asserted-by":"publisher","DOI":"10.1037\/fam0000273"},{"key":"S2056472422000436_ref5","doi-asserted-by":"publisher","DOI":"10.1002\/cpp.1984"},{"key":"S2056472422000436_ref4","doi-asserted-by":"publisher","DOI":"10.2147\/NDT.S60735"},{"key":"S2056472422000436_ref3","doi-asserted-by":"publisher","DOI":"10.1002\/eat.22598"},{"key":"S2056472422000436_ref19","doi-asserted-by":"publisher","DOI":"10.1002\/eat.22670"},{"key":"S2056472422000436_ref1","volume-title":"Lives at Risk: The State of NHS Adult Community Eating Disorder Services in England","year":"2019"},{"key":"S2056472422000436_ref27","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2015.1044349"},{"key":"S2056472422000436_ref13","volume-title":"Best Practice in the Engagement and Empowerment of Families and Carers Affected by Eating Disorders","year":"2019"},{"key":"S2056472422000436_ref30","doi-asserted-by":"publisher","DOI":"10.1108\/MHRJ-01-2020-0005"},{"key":"S2056472422000436_ref11","doi-asserted-by":"publisher","DOI":"10.1007\/s00127-016-1222-7"},{"key":"S2056472422000436_ref21","doi-asserted-by":"publisher","DOI":"10.1080\/10640266.2019.1573046"},{"key":"S2056472422000436_ref28","article-title":"Perceived acceptability and experience of a digital psychoeducation and peer support intervention (COPe-support): interview study with carers supporting individuals with psychosis","author":"Batchelor","journal-title":"J Med Internet Res"},{"key":"S2056472422000436_ref25","doi-asserted-by":"publisher","DOI":"10.4324\/9781351232593"},{"key":"S2056472422000436_ref15","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2021.1019"}],"container-title":["BJPsych Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S2056472422000436","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,20]],"date-time":"2024-09-20T19:27:49Z","timestamp":1726860469000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S2056472422000436\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,3]]},"references-count":30,"journal-issue":{"issue":"2","published-online":{"date-parts":[[2022,3]]}},"alternative-id":["S2056472422000436"],"URL":"https:\/\/doi.org\/10.1192\/bjo.2022.43","relation":{},"ISSN":["2056-4724"],"issn-type":[{"value":"2056-4724","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,3]]},"assertion":[{"value":"Copyright \u00a9 The Author(s), 2022. Published by Cambridge University Press on behalf of the Royal College of Psychiatrists","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e76"}}