{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T08:56:11Z","timestamp":1786956971357,"version":"build-2736575974"},"reference-count":46,"publisher":"Royal College of Psychiatrists","issue":"1","license":[{"start":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T00:00:00Z","timestamp":1737072000000},"content-version":"unspecified","delay-in-days":16,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010248","name":"Royal College of Psychiatrists","doi-asserted-by":"publisher","award":["RE16389"],"award-info":[{"award-number":["RE16389"]}],"id":[{"id":"10.13039\/100010248","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["cambridge.org"],"crossmark-restriction":true},"short-container-title":["BJPsych open"],"published-print":{"date-parts":[[2025,1]]},"abstract":"<jats:sec id=\"S2056472424008123_sec_a1\">\n\t    <jats:title>Background<\/jats:title>\n\t    <jats:p>Research suggests that those caring for a loved one with an eating disorder in the UK report unmet needs and highlight areas for improvement. More research is needed to understand these experiences on a wider, national scale.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S2056472424008123_sec_a2\">\n\t    <jats:title>Aims<\/jats:title>\n\t    <jats:p>To disseminate a national survey for adults who had experience caring for a loved one with an eating disorder in the UK, informed by the findings of a smaller scale, qualitative study with parents, siblings and partners in the UK.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S2056472424008123_sec_a3\" sec-type=\"methods\">\n\t    <jats:title>Method<\/jats:title>\n\t    <jats:p>A cross-sectional web-based survey was disseminated to adults who had experience caring for a loved one with an eating disorder in the UK.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S2056472424008123_sec_a4\" sec-type=\"results\">\n\t    <jats:title>Results<\/jats:title>\n\t    <jats:p>A total of 360 participants completed the survey. Participants described experiences of care received in both children and young people's, and adult services. Those receiving care from children and young people's services generally reported more timely care, greater involvement in care and more confidence managing their loved one's symptoms post-discharge. In both settings, participants identified a number of areas for improvement, including more timely access to care, improved transition processes and discharge planning, and increased involvement in their loved one's care.<\/jats:p>\n\t  <\/jats:sec>\n\t  <jats:sec id=\"S2056472424008123_sec_a5\" sec-type=\"conclusions\">\n\t    <jats:title>Conclusions<\/jats:title>\n\t    <jats:p>This survey captures the experiences of individuals caring for a loved one with an eating disorder in the UK. There are identified discrepancies between experiences of care in children and young people services compared with adult services. Clinical implications and recommendations for improvement are discussed, including improved transition and discharge processes, increased involvement of and\/or support for carers themselves, and more timely access to support services for the unwell individual.<\/jats:p>\n\t  <\/jats:sec>","DOI":"10.1192\/bjo.2024.812","type":"journal-article","created":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T08:17:45Z","timestamp":1737101865000},"update-policy":"https:\/\/doi.org\/10.1017\/policypage","source":"Crossref","is-referenced-by-count":5,"title":["Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey"],"prefix":"10.1192","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6810-8251","authenticated-orcid":false,"given":"Hannah","family":"Cribben","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0426-2388","authenticated-orcid":false,"given":"Rachel","family":"Batchelor","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Macdonald","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janet","family":"Treasure","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0999-2379","authenticated-orcid":false,"given":"Erica","family":"Cini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7257-6605","authenticated-orcid":false,"given":"Dasha","family":"Nicholls","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carol","family":"Kan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"170","published-online":{"date-parts":[[2025,1,17]]},"reference":[{"key":"S2056472424008123_ref4","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-016-0786-9"},{"key":"S2056472424008123_ref8","doi-asserted-by":"publisher","DOI":"10.1002\/erv.925"},{"key":"S2056472424008123_ref41","doi-asserted-by":"publisher","DOI":"10.1111\/j.1751-7893.2010.00195.x"},{"key":"S2056472424008123_ref42","doi-asserted-by":"publisher","DOI":"10.1080\/17522439.2016.1259647"},{"key":"S2056472424008123_ref44","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2022.535"},{"key":"S2056472424008123_ref21","unstructured":"21 World Health Organization (WHO). ICD-11: International Classification of Diseases (11th Revision). WHO, 2019."},{"key":"S2056472424008123_ref17","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2022.43"},{"key":"S2056472424008123_ref46","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-016-0786-9"},{"key":"S2056472424008123_ref2","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2021.1019"},{"key":"S2056472424008123_ref20","volume-title":"Diagnostic and Statistical Manual of Mental Disorders: DSM-IV","year":"1994"},{"key":"S2056472424008123_ref19","volume-title":"Diagnostic and Statistical Manual of Mental Disorders","year":"2013"},{"key":"S2056472424008123_ref34","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-015-0590-y"},{"key":"S2056472424008123_ref36","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2959"},{"key":"S2056472424008123_ref10","doi-asserted-by":"publisher","DOI":"10.1002\/eat.23938"},{"key":"S2056472424008123_ref9","doi-asserted-by":"publisher","DOI":"10.1002\/eat.24081"},{"key":"S2056472424008123_ref16","doi-asserted-by":"publisher","DOI":"10.1002\/eat.23441"},{"key":"S2056472424008123_ref37","doi-asserted-by":"publisher","DOI":"10.1111\/j.1751-7893.2012.00373.x"},{"key":"S2056472424008123_ref35","unstructured":"35 Royal College of Psychiatrists. Hidden Waits Force More Than Three Quarters of Mental Health Patients to Seek Help from Emergency Services. Royal College of Psychiatrists, 2022 (https:\/\/www.rcpsych.ac.uk\/news-and-features\/latest-news\/detail\/2022\/10\/10\/hidden-waits-force-more-than-three-quarters-of-mental-health-patients-to-seek-help-from-emergency-services)."},{"key":"S2056472424008123_ref25","doi-asserted-by":"publisher","DOI":"10.1002\/casp.2575"},{"key":"S2056472424008123_ref22","volume-title":"R: A Language and Environment for Statistical Computing","year":"2021"},{"key":"S2056472424008123_ref6","doi-asserted-by":"publisher","DOI":"10.1007\/s10591-022-09637-6"},{"key":"S2056472424008123_ref11","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2019.48"},{"key":"S2056472424008123_ref31","volume-title":"Adult Eating Disorders: Community, Inpatient and Intensive Day Patient Care \u2013 Guidance for Commissioners and Providers","year":"2019"},{"key":"S2056472424008123_ref30","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12796"},{"key":"S2056472424008123_ref23","doi-asserted-by":"publisher","DOI":"10.1111\/eip.13139"},{"key":"S2056472424008123_ref39","doi-asserted-by":"publisher","DOI":"10.1002\/erv.1065"},{"key":"S2056472424008123_ref28","doi-asserted-by":"publisher","DOI":"10.1192\/bjb.2024.20"},{"key":"S2056472424008123_ref3","doi-asserted-by":"publisher","DOI":"10.1002\/eat.22598"},{"key":"S2056472424008123_ref18","volume-title":"Qualtrics","year":"2005"},{"key":"S2056472424008123_ref24","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.2019.153"},{"key":"S2056472424008123_ref45","doi-asserted-by":"publisher","DOI":"10.1111\/eip.12382"},{"key":"S2056472424008123_ref14","unstructured":"14 Beat. Best Practice in the Engagement and Empowerment of Families and Carers Affected by Eating Disorders. Beat, 2019 (https:\/\/beat.contentfiles.net\/media\/documents\/family-empowerment-guidance-1_fP1wHWr.pdf)."},{"key":"S2056472424008123_ref13","volume-title":"Eating Disorders: Recognition and Treatment","year":"2020"},{"key":"S2056472424008123_ref27","unstructured":"27 NHS England. Mental Health: Children and Young People with an Eating Disorder Waiting Times. NHS England, 2023 (https:\/\/www.england.nhs.uk\/statistics\/statistical-work-areas\/cyped-waiting-times\/)."},{"key":"S2056472424008123_ref15","unstructured":"15 World Eating Disorder Healthcare Rights. An AED Global Blueprint for Promoting Excellence in Care through Patient-Carer-Professional Partnerships. 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Royal College of Psychiatrists, 2017 (https:\/\/www.rcpsych.ac.uk\/improving-care\/campaigning-for-better-mental-health-policy\/college-reports\/2017-college-reports\/managing-transitions-when-the-patient-has-an-eating-disorder-cr208-nov-2017)."},{"key":"S2056472424008123_ref38","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2798"},{"key":"S2056472424008123_ref29","doi-asserted-by":"publisher","DOI":"10.1002\/erv.2945"},{"key":"S2056472424008123_ref12","volume-title":"The NHS Long Term Plan","year":"2019"},{"key":"S2056472424008123_ref1","unstructured":"1 Beat. Lives at Risk: The State of NHS Adult Community Eating Disorder Services in England. Beat, 2019 (https:\/\/www.beateatingdisorders.org.uk\/about-beat\/policy-work\/policy-and-best-practice-reports\/lives-at-risk-the-state-of-nhs-adult-services\/)."},{"key":"S2056472424008123_ref5","doi-asserted-by":"publisher","DOI":"10.1002\/cpp.1984"},{"key":"S2056472424008123_ref7","doi-asserted-by":"publisher","DOI":"10.1017\/S2045796020001067"},{"key":"S2056472424008123_ref40","doi-asserted-by":"publisher","DOI":"10.1080\/17522439.2020.1861073"}],"container-title":["BJPsych Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cambridge.org\/core\/services\/aop-cambridge-core\/content\/view\/S2056472424008123","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,1,17]],"date-time":"2025-01-17T08:17:52Z","timestamp":1737101872000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cambridge.org\/core\/product\/identifier\/S2056472424008123\/type\/journal_article"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1]]},"references-count":46,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,1]]}},"alternative-id":["S2056472424008123"],"URL":"https:\/\/doi.org\/10.1192\/bjo.2024.812","relation":{},"ISSN":["2056-4724"],"issn-type":[{"value":"2056-4724","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,1]]},"assertion":[{"value":"Copyright \u00a9 The Author(s), 2025. Published by Cambridge University Press on behalf of Royal College of Psychiatrists","name":"copyright","label":"Copyright","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http:\/\/creativecommons.org\/licenses\/by\/4.0\/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.","name":"license","label":"License","group":{"name":"copyright_and_licensing","label":"Copyright and Licensing"}},{"value":"This content has been made available to all.","name":"free","label":"Free to read"}],"article-number":"e17"}}