{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T05:11:19Z","timestamp":1772169079276,"version":"3.50.1"},"reference-count":9,"publisher":"F1000 Research Ltd","license":[{"start":{"date-parts":[[2021,11,9]],"date-time":"2021-11-09T00:00:00Z","timestamp":1636416000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000865","name":"Bill and Melinda Gates Foundation","doi-asserted-by":"crossref","award":["INV-006254"],"award-info":[{"award-number":["INV-006254"]}],"id":[{"id":"10.13039\/100000865","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["gatesopenresearch.org"],"crossmark-restriction":false},"short-container-title":["Gates Open Res"],"abstract":"<ns4:p>\n                    <ns4:bold>Background:<\/ns4:bold>\n                    The achievement of neglected tropical diseases (NTDs) program goals depends on numerous factors, including the ability of national programs to use high-quality, timely data to inform their decision-making and program delivery. This paper presents a use case analysis of the routine data used by national NTD programs targeting lymphatic filariasis, onchocerciasis, schistosomiasis, soil-transmitted helminthiasis, and trachoma.\n                  <\/ns4:p>\n                  <ns4:p>\n                    <ns4:bold>Methods:<\/ns4:bold>\n                    The use cases were developed through a combination of secondary and primary research focused on both global trends and deep dives into Burkina Faso, Ethiopia, and Tanzania. Results were refined through a stakeholder convening and the final eight use cases were determined through iteration and prioritization with stakeholders.\n                  <\/ns4:p>\n                  <ns4:p>\n                    <ns4:bold>Results:<\/ns4:bold>\n                    Eight use cases were developed: improve treatment register data quality, strengthen supervision of drug distributors during mass drug administration (MDA), generate accurate community-level population data for MDAs, create and manage an accurate inventory of drugs, meet district coverage targets during MDA campaigns, feedback and performance to sub-district teams, feedback on performance to sub-national teams, and national-level program use of data for evaluation and decision making. Each use case identifies key actors and their data-related needs and critical challenges, defines the current and desired state, and articulates the profile of a solution (digital and non-digital) needed to complete the use case.\n                  <\/ns4:p>\n                  <ns4:p>\n                    <ns4:bold>Conclusion:<\/ns4:bold>\n                    The systematic strengthening of data use for decision-making in NTD programs is key for reaching the 2030 Roadmap goals. Integrated together, the presented use cases, when translated into action using appropriate and innovative solutions, can help to ensure that accurate and timely data are present at every step of a program and empower countries to use these data to make program decisions.\n                  <\/ns4:p>","DOI":"10.12688\/gatesopenres.13407.1","type":"journal-article","created":{"date-parts":[[2021,11,9]],"date-time":"2021-11-09T05:15:06Z","timestamp":1636434906000},"page":"153","update-policy":"https:\/\/doi.org\/10.12688\/gatesopenres.crossmark-policy","source":"Crossref","is-referenced-by-count":4,"title":["Improving data use for decision making by neglected tropical disease program teams: eight use cases"],"prefix":"10.12688","volume":"5","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3053-0972","authenticated-orcid":false,"given":"Liz","family":"Grubin","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lakshmi","family":"Balachandran","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Bartlett","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nana-Kwadwo","family":"Biritwum","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2314-0415","authenticated-orcid":false,"given":"Simon","family":"Brooker","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3866-2232","authenticated-orcid":false,"given":"Fiona","family":"Fleming","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karsor","family":"Kollie","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sultani","family":"Matendechero","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Birhan","family":"Mengistu","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"TJ","family":"Muehleman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Upendo","family":"Mwingira","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brooke","family":"Partridge","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alex","family":"Pavluck","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria","family":"Rebollo Polo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6417-1699","authenticated-orcid":false,"given":"Modeste","family":"Tezembong","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Derek","family":"Treatman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rosalyn","family":"Yeary","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katie","family":"Zoerhoff","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Honorat","family":"Zoure","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"2560","published-online":{"date-parts":[[2021,11,9]]},"reference":[{"key":"ref-2","doi-asserted-by":"publisher","first-page":"e0004590","DOI":"10.1371\/journal.pntd.0004590","article-title":"Assessing lymphatic filariasis data quality in endemic communities in Ghana, using the neglected tropical diseases data quality assessment tool for preventive chemotherapy.","volume":"10","author":"D de Souza","year":"2016","journal-title":"PLoS Negl Trop Dis."},{"key":"ref-3","article-title":"ESPEN Portal."},{"key":"ref-4","article-title":"Improving data use for decision making by neglected tropical disease programs: eight use cases.","author":"L Grubin","year":"2021","journal-title":"Detailed description of NTD data use cases\" Harvard Daatverse."},{"key":"ref-5","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-4471-0843-6_46","article-title":"Use Case Analysis.","author":"J Hunt","year":"1999"},{"key":"ref-6","doi-asserted-by":"publisher","first-page":"106-107","DOI":"10.1016\/j.ijmedinf.2018.03.011","article-title":"The role of digital health in supporting the achievement of the sustainable development goals (SDGs).","volume":"114","author":"D Novillo-Ortiz","year":"2018","journal-title":"Int J Med Inform."},{"key":"ref-1","doi-asserted-by":"publisher","first-page":"e152","DOI":"10.1016\/S2214-109X(19)30529-7","article-title":"Taking the neglected out of neglected tropical diseases.","volume":"8","year":"2020","journal-title":"Lancet Glob Health."},{"key":"ref-7","article-title":"Monitoring the Building Blocks of Health Systems: A Handbook of Indicators and their Measurement Strategies.","year":"2010"},{"key":"ref-8","article-title":"Ending the neglect to attain the sustainable development goals: A roadmap for neglected tropical diseases, 2021-2030.","year":"2020a"},{"key":"ref-9","article-title":"Global strategy on digital health 2020-2024.","year":"2020b"}],"container-title":["Gates Open Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1\/xml","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1\/pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1\/iparadigms","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,12,8]],"date-time":"2021-12-08T10:35:23Z","timestamp":1638959723000},"score":1,"resource":{"primary":{"URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,11,9]]},"references-count":9,"URL":"https:\/\/doi.org\/10.12688\/gatesopenres.13407.1","relation":{"has-review":[{"id-type":"doi","id":"10.21956\/gatesopenres.14661.r31399","asserted-by":"subject"},{"id-type":"doi","id":"10.21956\/gatesopenres.14661.r31398","asserted-by":"subject"},{"id-type":"doi","id":"10.21956\/gatesopenres.14661.r31396","asserted-by":"subject"},{"id-type":"doi","id":"10.21956\/gatesopenres.14661.r31396","asserted-by":"object"},{"id-type":"doi","id":"10.21956\/gatesopenres.14661.r31398","asserted-by":"object"},{"id-type":"doi","id":"10.21956\/gatesopenres.14661.r31399","asserted-by":"object"}]},"ISSN":["2572-4754"],"issn-type":[{"value":"2572-4754","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,11,9]]},"assertion":[{"value":"Indexed","URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1#article-reports","order":0,"name":"referee-status","label":"Referee status","group":{"name":"current-referee-status","label":"Current Referee Status"}},{"value":"10.21956\/gatesopenres.14661.r31396, Dziedzom\u00a0K. de Souza, Department of Parasitology, Noguchi Memorial Institute for Medical Research, University of Ghana, Accra, Ghana, 15 Nov 2021, version 1, indexed","URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1#referee-response-31396","order":0,"name":"referee-response-31396","label":"Referee Report","group":{"name":"article-reports","label":"Article Reports"}},{"value":"10.21956\/gatesopenres.14661.r31399, Katherine M. Gass, Neglected Tropical Disease Support Center, Task Force for Global Health, Decatur, GA, USA, 24 Nov 2021, version 1, indexed","URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1#referee-response-31399","order":1,"name":"referee-response-31399","label":"Referee Report","group":{"name":"article-reports","label":"Article Reports"}},{"value":"10.21956\/gatesopenres.14661.r31398, Collins Okoyo, Eastern and Southern Africa Centre of International Parasite Control, Kenya Medical Research Institute (KEMRI), Nairobi, Kenya, 08 Dec 2021, version 1, indexed","URL":"https:\/\/gatesopenresearch.org\/articles\/5-153\/v1#referee-response-31398","order":2,"name":"referee-response-31398","label":"Referee Report","group":{"name":"article-reports","label":"Article Reports"}},{"value":"This work was supported by the Bill and Melinda Gates Foundation [INV-006254]. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.","order":3,"name":"grant-information","label":"Grant Information"},{"value":"This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.","order":0,"name":"copyright-info","label":"Copyright"}]}}