{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,13]],"date-time":"2026-07-13T06:26:42Z","timestamp":1783924002926,"version":"3.55.0"},"update-to":[{"DOI":"10.12688\/wellcomeopenres.16839.1","type":"new_version","label":"New version","source":"publisher","updated":{"date-parts":[[2023,6,7]],"date-time":"2023-06-07T00:00:00Z","timestamp":1686096000000}},{"DOI":"10.12688\/wellcomeopenres.16839.2","type":"new_version","label":"New version","source":"publisher","updated":{"date-parts":[[2023,6,7]],"date-time":"2023-06-07T00:00:00Z","timestamp":1686096000000}}],"reference-count":24,"publisher":"F1000 Research Ltd","license":[{"start":{"date-parts":[[2023,6,7]],"date-time":"2023-06-07T00:00:00Z","timestamp":1686096000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100020171","name":"Foreign, Commonwealth and Development Office","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100020171","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010269","name":"Wellcome Trust","doi-asserted-by":"crossref","award":["206719"],"award-info":[{"award-number":["206719"]}],"id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["wellcomeopenresearch.org"],"crossmark-restriction":false},"short-container-title":["Wellcome Open Res"],"abstract":"<ns4:p>\n                    <ns4:bold>Background:<\/ns4:bold>\n                    The 2015 \u2013 2016 Zika epidemic highlighted gaps in health and social care services for parents of children with developmental disabilities. In response, we developed the \u2018Juntos\u2019 intervention, a 10 week community-based early intervention support group for parents of children with congenital Zika syndrome (CZS). The intervention's components include participatory learning sessions, practical skill acquisition, peer support, and psychological support, aiming to improve caregiver\u2019s knowledge and confidence in caring for their children. This study aimed to evaluate the feasibility of implementing \u2018Juntos\u2019 in Colombia.\n                  <\/ns4:p>\n                  <ns4:p>\n                    <ns4:bold>Methods:<\/ns4:bold>\n                    Two facilitators delivered \u2018Juntos\u2019 to four groups of 8-10 caregivers between 2017 and 2018. One researcher observed each group. Data were collected from: observation notes from 40 sessions, focus group discussions held after each session, pre- post intervention questionnaires with 34 caregivers, and semi-structured interviews conducted with four facilitators, 12 caregivers and three stakeholders. We used the Bowen framework in data analysis.\n                  <\/ns4:p>\n                  <ns4:p>\n                    <ns4:bold>Results:<\/ns4:bold>\n                    \u00a0The feasibility evaluation revealed that 'Juntos' was highly acceptable and in demand among the target population. The intervention was predominantly delivered with fidelity. Practicality was facilitated by providing transport costs and selecting convenient locations. Additional organisational and social media support was required for successful implementation. Community health worker training may support integration and the established groups could facilitate programme expansion. However, participants perceived lack of prioritisation as a limitation within existing health systems. Participants\u2019 knowledge and confidence to care for their child improved after programme enrolment.\n                  <\/ns4:p>\n                  <ns4:p>\n                    <ns4:bold>Conclusion:<\/ns4:bold>\n                    \u00a0The 'Juntos' intervention demonstrated high acceptability, demand, and practicality in supporting parents of children with CZS in Colombia. However, its implementation faces challenges due to existing gaps in health system support for children with CZS.\n                  <\/ns4:p>","DOI":"10.12688\/wellcomeopenres.16839.3","type":"journal-article","created":{"date-parts":[[2023,6,7]],"date-time":"2023-06-07T07:00:06Z","timestamp":1686121206000},"page":"158","update-policy":"https:\/\/doi.org\/10.12688\/wellcomeopenres.crossmark-policy","source":"Crossref","is-referenced-by-count":6,"title":["The feasibility of establishing parent support groups for children with congenital Zika syndrome and their families: a mixed-methods study"],"prefix":"10.12688","volume":"6","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3408-7362","authenticated-orcid":false,"given":"Tracey","family":"Smythe","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6778-2682","authenticated-orcid":false,"given":"Veronika","family":"Reichenberger","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisa Mar\u00eda","family":"Pinz\u00f3n","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Isabel Cristina","family":"Hurtado","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Luisa","family":"Rubiano","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8952-0023","authenticated-orcid":false,"given":"Hannah","family":"Kuper","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"2560","published-online":{"date-parts":[[2023,6,7]]},"reference":[{"key":"ref-1","doi-asserted-by":"publisher","first-page":"1139-49","DOI":"10.1002\/bdr2.1781","article-title":"Teratogen update: Zika virus and pregnancy.","volume":"112","author":"S Rasmussen","year":"2020","journal-title":"Birth Defects Res."},{"key":"ref-2","doi-asserted-by":"publisher","first-page":"6-7","DOI":"10.1002\/uog.15831","article-title":"Zika virus intrauterine infection causes fetal brain abnormality and microcephaly: tip of the iceberg?","volume":"47","author":"A Oliveira Melo","year":"2016","journal-title":"Ultrasound Obstet Gynecol."},{"key":"ref-3","doi-asserted-by":"publisher","first-page":"1407-16","DOI":"10.1001\/jamaneurol.2016.3720","article-title":"Congenital Zika Virus Infection: Beyond Neonatal Microcephaly.","volume":"73","author":"A Melo","year":"2016","journal-title":"JAMA Neurol."},{"key":"ref-4","article-title":"Zika cumulative cases 2018"},{"key":"ref-5","doi-asserted-by":"publisher","first-page":"e1100-e21","DOI":"10.1016\/S2214-109X(18)30309-7","article-title":"Developmental disabilities among children younger than 5 years in 195 countries and territories, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016.","volume":"6","year":"2018","journal-title":"Lancet Glob Health."},{"key":"ref-6","doi-asserted-by":"publisher","first-page":"222-231","DOI":"10.1093\/inthealth\/ihaa044","article-title":"Early intervention for children with developmental disabilities in low and middle-income countries - 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Gi\u00fadici, Department of Health Promotion and Protection, Pedro de Elizalde Children\u2032s Hospital, Buenos Aires, 12 Jun 2023, version 3, indexed","URL":"https:\/\/wellcomeopenresearch.org\/articles\/6-158\/v3#referee-response-59535","order":0,"name":"referee-response-59535","label":"Referee Report","group":{"name":"article-reports","label":"Article Reports"}},{"value":"10.21956\/wellcomeopenres.18574.r56611, Hollie Hix-Small, RISE Institute, Washington, District of Columbia, 23 May 2023, version 1, 1 approved, 1 approved with reservations","URL":"https:\/\/wellcomeopenresearch.org\/articles\/6-158\/v1#referee-response-56611","order":1,"name":"referee-response-56611","label":"Referee Report","group":{"name":"article-reports","label":"Article Reports"}},{"value":"This work was supported by the Wellcome Trust [206719] and the Foreign, Commonwealth and Development Office. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.","order":2,"name":"grant-information","label":"Grant Information"},{"value":"This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.","order":0,"name":"copyright-info","label":"Copyright"}]}}