{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,6,6]],"date-time":"2024-06-06T07:13:23Z","timestamp":1717658003360},"reference-count":11,"publisher":"Mark Allen Group","issue":"5","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Br J Community Nurs"],"published-print":{"date-parts":[[2023,5,2]]},"abstract":"<jats:sec><jats:title>Background:<\/jats:title><jats:p> Mesothelioma is a rare cancer without cure. Clinical guidelines recommend the timely provision of palliative\/supportive care; however, a new study identified barriers to achieving this ambition. <\/jats:p><\/jats:sec><jats:sec><jats:title>Objective:<\/jats:title><jats:p> The study aimed to explore palliative care needs and the role of Mesothelioma Clinical Nurse Specialists (MCNSs); and to develop resources to address study findings. <\/jats:p><\/jats:sec><jats:sec><jats:title>Methods:<\/jats:title><jats:p> The mixed-methods study included a literature review, focus groups, interviews and surveys. <\/jats:p><\/jats:sec><jats:sec><jats:title>Results:<\/jats:title><jats:p> The study highlighted the important role of the MCNSs in palliative care and the need to: address disjointed care; improve support for families; and explain the benefits of palliative care for patients\/families. A co-production approach developed an animation for patients\/families to demystify palliative care and explain the benefits of early-stage engagement; and an infographic targeted at community and primary care professionals. Recommendations for community nursing practice are described. <\/jats:p><\/jats:sec>","DOI":"10.12968\/bjcn.2023.28.5.248","type":"journal-article","created":{"date-parts":[[2023,5,3]],"date-time":"2023-05-03T01:19:11Z","timestamp":1683076751000},"page":"248-252","source":"Crossref","is-referenced-by-count":1,"title":["Mesothelioma palliative care needs: supporting patients and families with new research-based resources"],"prefix":"10.12968","volume":"28","author":[{"given":"Sarah","family":"Hargreaves","sequence":"first","affiliation":[{"name":"Mesothelioma UK Research Centre, Health Sciences School, University of Sheffield, Sheffield, South Yorkshire, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Clare","family":"Gardiner","sequence":"additional","affiliation":[{"name":"Mesothelioma UK Research Centre, Health Sciences School, University of Sheffield, Sheffield, South Yorkshire, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Angela","family":"Tod","sequence":"additional","affiliation":[{"name":"Mesothelioma UK Research Centre, Health Sciences School, University of Sheffield, Sheffield, South Yorkshire, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Liz","family":"Darlison","sequence":"additional","affiliation":[{"name":"University Hospitals of Leicester, Leicester, Leicestershire, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"issue":"4","key":"B1","doi-asserted-by":"crossref","first-page":"354","DOI":"10.1136\/thoraxjnl-2018-212380","volume":"74","author":"Brims F","year":"2019","journal-title":"Thorax"},{"key":"B2","first-page":"ii1","volume":"2007","author":"British Thoracic Society Standards of Care Committee","year":"2007","journal-title":"Thorax"},{"issue":"9","key":"B4","doi-asserted-by":"crossref","first-page":"2973","DOI":"10.1111\/jan.15277","volume":"78","author":"Gardiner C","year":"2022","journal-title":"J Adv Nurs"},{"key":"B5","first-page":"1","author":"Gardiner C","year":"2022","journal-title":"Progress in Palliative Care"},{"key":"B7","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211007379"},{"key":"B8","doi-asserted-by":"publisher","DOI":"10.1177\/08258597221079235"},{"issue":"2","key":"B9","doi-asserted-by":"crossref","first-page":"113","DOI":"10.1177\/0825859720948975","volume":"36","author":"Hoon SN","year":"2021","journal-title":"J Palliat Care"},{"key":"B13","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00063109"},{"key":"B14","doi-asserted-by":"publisher","DOI":"10.1186\/1472-684X-9-4"},{"key":"B15","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.a1720"},{"key":"B16","doi-asserted-by":"publisher","DOI":"10.12968\/bjcn.2020.25.6.276"}],"container-title":["British Journal of Community Nursing"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/pdf\/10.12968\/bjcn.2023.28.5.248","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,5,3]],"date-time":"2023-05-03T01:19:50Z","timestamp":1683076790000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/10.12968\/bjcn.2023.28.5.248"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,5,2]]},"references-count":11,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2023,5,2]]}},"alternative-id":["10.12968\/bjcn.2023.28.5.248"],"URL":"https:\/\/doi.org\/10.12968\/bjcn.2023.28.5.248","relation":{},"ISSN":["1462-4753","2052-2215"],"issn-type":[{"value":"1462-4753","type":"print"},{"value":"2052-2215","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,5,2]]}}}