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His advance decision to refuse treatment directive to avoid non-invasive ventilation during the day was managed through a combination of opioid medication, breath stacking, positioning and other strategies recommended by the National Institute for Health and Care Excellence. Individualised care planning and maintaining quality of life was key in his management. <\/jats:p>","DOI":"10.12968\/bjcn.2025.0023","type":"journal-article","created":{"date-parts":[[2025,10,1]],"date-time":"2025-10-01T17:24:58Z","timestamp":1759339498000},"page":"488-492","source":"Crossref","is-referenced-by-count":0,"title":["A case study exploring the management of dyspnoea in motor neurone disease"],"prefix":"10.12968","volume":"30","author":[{"given":"Lisa","family":"Burkhill","sequence":"first","affiliation":[{"name":"BSc Nursing, Wrexham Glyndwr University School of Social and Life Sciences, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Teresa Marie","family":"Davies","sequence":"additional","affiliation":[{"name":"Senior Lecturer, Wrexham Glyndwr University School of Social and Life Sciences, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"key":"B1","doi-asserted-by":"publisher","DOI":"10.3389\/fnagi.2022.1003792"},{"key":"B2","doi-asserted-by":"publisher","DOI":"10.3390\/brainsci12040494"},{"key":"B3","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2023-082628"},{"key":"B5","doi-asserted-by":"publisher","DOI":"10.1016\/j.rmed.2018.01.012"},{"key":"B6","doi-asserted-by":"publisher","DOI":"10.1136\/oemed-2018-105605"},{"key":"B7","first-page":"1","author":"Cox G","year":"2024","journal-title":"J Eval Clin Pract"},{"key":"B8","doi-asserted-by":"publisher","DOI":"10.2147\/JMDH.S441969"},{"key":"B9","doi-asserted-by":"publisher","DOI":"10.1186\/1472-684X-10-15"},{"key":"B10","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2020-002314"},{"key":"B11","doi-asserted-by":"publisher","DOI":"10.1108\/JAP-07-2020-0027"},{"key":"B12","doi-asserted-by":"publisher","DOI":"10.3390\/neurolint16060101"},{"key":"B15","volume-title":"In: StatPearls [Internet]","author":"Murphy PB","year":"2025"},{"key":"B20","doi-asserted-by":"publisher","DOI":"10.1186\/s12912-024-01721-6"},{"key":"B22","doi-asserted-by":"publisher","DOI":"10.1177\/14799731231175915"},{"issue":"1","key":"B24","doi-asserted-by":"crossref","first-page":"e001241","DOI":"10.1136\/bmjresp-2022-001241","volume":"9","author":"Sheers NL","year":"2022","journal-title":"BMJ Open Respir Res"},{"key":"B25","doi-asserted-by":"crossref","unstructured":"Sheers NL, O'Sullivan R, Howard ME, Berlowitz DJ. 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