{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,18]],"date-time":"2026-04-18T02:36:23Z","timestamp":1776479783286,"version":"3.51.2"},"reference-count":21,"publisher":"Mark Allen Group","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Br J Nurs"],"published-print":{"date-parts":[[2003,2,13]]},"abstract":"<jats:p> Sickle cell disease (SeD) Is one of the world's commonest hereditary disorders. Painful episodes are the overriding manifestation. SeD pain Is largely oplold-sensltlve and, In severe cases, adult patients warranting hospitalization often need parenteral oplolds. Pain Is essentially subjective and Is often best controlled by patients themselves. This study looks at SeD patients' perceptions of self-administering parenteral oplolds. Using a mainly multiple-choice questionnaire and a focus group Interview, data were gathered from 40 adult SeD patients during hospitalization over a 4-month period. The study was approved by the local research ethics committee and the lead c!lnlclans In both the pain and haematology departments. All patients had past oplold-experlence for acute pain. The majority (65%) had previously used peA dlamorphlne In addition to other oplolds. The findings demonstrate that SeD patients perceive the main benefit of peA to lie In Its potential to restore their control over pain relief while In hospital. Other perceived advantages over nurse-administered analgesia Included better analgesia accessibility, quick pain relief and relative Independence from staff. Patients Identified that realization of peA's full potential Is being limited by Ineffective analgesic regimens, analgesic slde-effects and technical shortcomings. Patients found the main disadvantages of peA to relate to nursing care Issues Including restrictions placed upon patients' ability to exercise choice and much reduced direct nurse contact. The Implications for nursing practice and management Involve addressing these patients' concerns through staff training, Improving patient-staff communication, Inputting resources and further research. <\/jats:p>","DOI":"10.12968\/bjon.2003.12.3.144","type":"journal-article","created":{"date-parts":[[2016,11,18]],"date-time":"2016-11-18T16:44:58Z","timestamp":1479487498000},"page":"144-153","source":"Crossref","is-referenced-by-count":6,"title":["Sickle cell disease patients and patient-controlled analgesia"],"prefix":"10.12968","volume":"12","author":[{"given":"Lucy","family":"Johnson","sequence":"first","affiliation":[{"name":"Nurse Consultant in Pain Management, Pain Relief Unit, King's College Hospital, London"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"key":"p_33","volume-title":"and PCA is now regard","author":"Anaesthetists","year":"1990"},{"key":"p_52","volume-title":"eva Iua tion of","author":"In Chum","year":"1998"},{"key":"p_64","volume-title":"j Adv Nurs 19: 725-32","author":"All","year":"1994"},{"key":"p_65","series-title":"Dea r KGB, Anse lill o IF, Mosteller FM (1993) Posropera tive pan ent-conrro Iled a na Iges ia: mera-analyses of Init ia l ra nd o mized conr ro Il ed tri a Is. j C\/in Anesth","first-page":"182","volume":"5","author":"Ba Ila"},{"key":"p_66","volume-title":"ickle Cell Pain. 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