{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2022,5,23]],"date-time":"2022-05-23T21:10:36Z","timestamp":1653340236892},"reference-count":4,"publisher":"Mark Allen Group","issue":"Sup4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Br J Nurs"],"published-print":{"date-parts":[[2003,10,1]]},"abstract":"<jats:p> Epidermolysis bullosa (EB) is a group of rare genetically determined disorders affecting the structure of the skin and sometimes the internal mucosa. Severely affected individuals may die in early infancy, or may live a life where they are never free of wounds. The charity DEBRA (Dystrophic Epidermolysis Bullosa Research Association) funds a healthcare team including eight specialist nurses who offer a service to all those affected by EB throughout the UK. Recent National Specialist Commissioning Advisory Group (NSCAG) funding has led to the provision of additional specialist services. <\/jats:p>","DOI":"10.12968\/bjon.2003.12.sup4.12213","type":"journal-article","created":{"date-parts":[[2014,5,23]],"date-time":"2014-05-23T14:11:12Z","timestamp":1400854272000},"page":"S43-S43","source":"Crossref","is-referenced-by-count":0,"title":["Short Report: Epidermolysis Bullosa"],"prefix":"10.12968","volume":"12","author":[{"given":"Elizabeth","family":"Pillay","sequence":"first","affiliation":[{"name":"South UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"key":"p_1","volume-title":"Crowthorne: 12-13","author":"Atherton DJ","year":"1997"},{"issue":"11","key":"p_2","doi-asserted-by":"crossref","first-page":"44","DOI":"10.12968\/jowc.1994.3.1.44","volume":"3","author":"Downie J","year":"1994","journal-title":"J Wound Care"},{"key":"p_3","volume-title":"Epidermolysis Bullosa","author":"Fine JD","year":"1999"},{"key":"p_4","doi-asserted-by":"publisher","DOI":"10.1067\/mjd.2000.106369"}],"container-title":["British Journal of Nursing"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/pdf\/10.12968\/bjon.2003.12.Sup4.12213","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,5,23]],"date-time":"2022-05-23T20:28:35Z","timestamp":1653337715000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/10.12968\/bjon.2003.12.Sup4.12213"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2003,10,1]]},"references-count":4,"journal-issue":{"issue":"Sup4","published-print":{"date-parts":[[2003,10,1]]}},"alternative-id":["10.12968\/bjon.2003.12.Sup4.12213"],"URL":"https:\/\/doi.org\/10.12968\/bjon.2003.12.sup4.12213","relation":{},"ISSN":["0966-0461","2052-2819"],"issn-type":[{"value":"0966-0461","type":"print"},{"value":"2052-2819","type":"electronic"}],"subject":[],"published":{"date-parts":[[2003,10,1]]}}}