{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,26]],"date-time":"2025-11-26T04:54:23Z","timestamp":1764132863543},"reference-count":26,"publisher":"Mark Allen Group","issue":"14","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Br J Nurs"],"published-print":{"date-parts":[[2012,7,26]]},"abstract":"<jats:p> Genetic counselling and testing for females with a family history of haemophilia has long been advocated. However, there is little research in regard to clients' satisfaction with the existing counselling models in haemophilia, and in particular with nurse-led clinics. The purpose of this study was to evaluate whether clients were satisfied with a nurse-led carrier testing clinic and counselling service. A retrospective quantitative study of clients' satisfaction and perceived knowledge was undertaken using an anonymous questionnaire. A sample of 42 women who had attended the clinic in the last 12 months was identified. The response rate for the study was 71% (n=30). Two thirds of the respondents were 35 years of age or younger, 93% had a family history of haemophilia and 56% were diagnosed as carriers. Perceived understanding and knowledge increased significantly between the first and second appointments (p&lt;0.001). Overall, the study identified a high level of client satisfaction with the nurse-led carrier testing clinic and counselling service. <\/jats:p>","DOI":"10.12968\/bjon.2012.21.14.864","type":"journal-article","created":{"date-parts":[[2014,5,23]],"date-time":"2014-05-23T12:45:40Z","timestamp":1400849140000},"page":"864-870","source":"Crossref","is-referenced-by-count":12,"title":["Evaluation of a nurse-led haemophilia counselling service"],"prefix":"10.12968","volume":"21","author":[{"given":"Eadaoin","family":"O'Shea","sequence":"first","affiliation":[{"name":"National Centre for Hereditary Coagulation Disorders, St James Hospital, Dublin"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael","family":"Coughlan","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery, Trinity College, Dublin"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Helen","family":"Corrigan","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery, Trinity College, Dublin"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gabrielle","family":"McKee","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery, Trinity College, Dublin"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"key":"B1","doi-asserted-by":"publisher","DOI":"10.1258\/0969141053908258"},{"key":"B2","doi-asserted-by":"publisher","DOI":"10.1038\/sj.bjc.6600051"},{"key":"B3","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-005-0519-6"},{"key":"B4","doi-asserted-by":"publisher","DOI":"10.1023\/B:JOGC.0000035523.96133.bc"},{"key":"B5","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2010.03239.x"},{"key":"B6","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2006.01199.x"},{"key":"B8","doi-asserted-by":"publisher","DOI":"10.1038\/sj.bjc.6601562"},{"key":"B9","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2005.01108.x"},{"key":"B10","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2516.2000.00353.x"},{"key":"B11","volume-title":"Genetics of Haemophilia A and B: An introduction for clinicians 2009","author":"Kasper C","year":"2008"},{"key":"B12","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2006.01314.x"},{"key":"B13","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2005.01070.x"},{"key":"B14","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2516.1999.00288.x"},{"key":"B16","volume-title":"Physiology for Nursing Practice","author":"Montague S","year":"2005","edition":"3"},{"key":"B17","doi-asserted-by":"publisher","DOI":"10.1111\/j.1524-4733.2007.00259.x"},{"key":"B18","doi-asserted-by":"publisher","DOI":"10.1016\/S0738-3991(00)00181-6"},{"key":"B19","volume-title":"Nursing Research: Appraising Evidence for Nursing Practice","author":"Polit DF","year":"2010","edition":"7"},{"key":"B20","doi-asserted-by":"publisher","DOI":"10.1080\/02841860903104137"},{"key":"B21","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.1320370419"},{"key":"B22","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.c.10001"},{"key":"B23","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2008.01721.x"},{"key":"B24","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2007.01454.x"},{"key":"B25","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.30317"},{"issue":"1","key":"B26","first-page":"139","volume":"28","author":"Varekamp I","year":"1992","journal-title":"Birth Defects Orig Artic Ser"},{"key":"B27","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(03)00337-X"},{"key":"B28","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2006.03760.x"}],"container-title":["British Journal of Nursing"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/pdf\/10.12968\/bjon.2012.21.14.864","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,5,23]],"date-time":"2022-05-23T13:53:23Z","timestamp":1653314003000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/10.12968\/bjon.2012.21.14.864"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2012,7,26]]},"references-count":26,"journal-issue":{"issue":"14","published-print":{"date-parts":[[2012,7,26]]}},"alternative-id":["10.12968\/bjon.2012.21.14.864"],"URL":"https:\/\/doi.org\/10.12968\/bjon.2012.21.14.864","relation":{},"ISSN":["0966-0461","2052-2819"],"issn-type":[{"value":"0966-0461","type":"print"},{"value":"2052-2819","type":"electronic"}],"subject":[],"published":{"date-parts":[[2012,7,26]]}}}