{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T01:25:07Z","timestamp":1792027507432,"version":"4.4.0"},"reference-count":37,"publisher":"Mark Allen Group","issue":"2","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Int J Palliat Nurs"],"published-print":{"date-parts":[[2004,2]]},"abstract":"<jats:p> Research has consistently shown that family caregivers have a variety of unmet needs, despite comprehensive professional support for caregivers being a central aim of palliative care. This sub-study of a larger randomized controlled trial sought feedback from 47 primary family caregivers of advanced cancer patients who had recently commenced home palliative care. During semi-structured interviews in their homes, family caregivers were asked to comment on the key challenges associated with their role and whether they could identify any positive aspects. All caregivers were able to identify challenges. These were associated with their own ill health, family circumstances, insufficient skills to manage patient symptoms, limited time for themselves and inadequate support from health professionals. Despite these challenges, 60% of family caregivers were readily able to identify positive aspects of the role. Previous research has tended to focus on the negative impact of caregiving. The extent to which the positive aspects buffer the negative aspects of the role warrants further exploration, as does the long-term impact of the caregiver role on those who are unable to recognize positive elements. <\/jats:p>","DOI":"10.12968\/ijpn.2004.10.2.12454","type":"journal-article","created":{"date-parts":[[2014,5,23]],"date-time":"2014-05-23T15:43:35Z","timestamp":1400859815000},"page":"58-65","source":"Crossref","is-referenced-by-count":149,"title":["Positive aspects and challenges associated with caring for a dying relative at home"],"prefix":"10.12968","volume":"10","author":[{"given":"Peter","family":"Hudson","sequence":"first","affiliation":[{"name":"Centre for Palliative Care and School of Nursing University of Melbourne, 6th Floor, Inpatient Services Building, St Vincent\u2019s Hospital, Princes St, Fitzroy, Victoria 3065 Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"5130","reference":[{"key":"p_1","doi-asserted-by":"publisher","DOI":"10.1177\/107484079800400406"},{"key":"p_2","doi-asserted-by":"publisher","DOI":"10.1300\/J077v14n02_01"},{"key":"p_3","doi-asserted-by":"publisher","DOI":"10.2466\/pr0.1994.75.3.1243"},{"key":"p_4","doi-asserted-by":"publisher","DOI":"10.1080\/09699260.1993.11746654"},{"key":"p_5","doi-asserted-by":"publisher","DOI":"10.1002\/gps.561"},{"key":"p_6","doi-asserted-by":"publisher","DOI":"10.1097\/00004045-199711000-00014"},{"key":"p_7","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(97)00040-3"},{"key":"p_8","volume-title":"Assessing Older Persons: Measures, Meaning and Practical Applications","author":"Gaugler J","year":"2000"},{"key":"p_9","doi-asserted-by":"publisher","DOI":"10.3322\/canjclin.51.4.213"},{"key":"p_10","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1611(199603)5:1<23::AID-PON206>3.0.CO;2-H"},{"key":"p_11","doi-asserted-by":"publisher","DOI":"10.1177\/026921639701100304"},{"key":"p_12","doi-asserted-by":"publisher","DOI":"10.1300\/J011v15n04_01"},{"key":"p_13","doi-asserted-by":"publisher","DOI":"10.1191\/0269216303pm667oa"},{"key":"p_14","doi-asserted-by":"publisher","DOI":"10.1038\/bjc.1997.535"},{"key":"p_15","volume-title":"Qualitative Research in Nursing","author":"Holloway I","year":"2002"},{"key":"p_16","unstructured":"Hudson P (2002) Support for family caregivers of dying cancer patients: a randomised controlled trial. PhD thesis,University of Melbourne"},{"key":"p_17","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2003.9.3.11480"},{"key":"p_18","volume-title":"Palliat Support Care (in press)","author":"Hudson P","year":"2004"},{"key":"p_19","volume-title":"J Psychosoc Oncol (in press)","author":"Hudson P","year":"2004"},{"key":"p_20","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2001.7.9.9301"},{"key":"p_21","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2354.2002.00314.x"},{"key":"p_22","doi-asserted-by":"publisher","DOI":"10.1089\/109662104322737214"},{"key":"p_23","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1611(199905\/06)8:3<237::AID-PON375>3.0.CO;2-C"},{"issue":"2","key":"p_24","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1177\/082585979801400206","volume":"14","author":"Kinsella G","year":"1998","journal-title":"J Palliat Care"},{"key":"p_25","doi-asserted-by":"publisher","DOI":"10.1191\/0269216303pm808oa"},{"key":"p_26","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/37.2.218"},{"key":"p_27","doi-asserted-by":"publisher","DOI":"10.1093\/geronj\/44.3.P61"},{"key":"p_28","volume-title":"Stress, Appraisal, and Coping","author":"Lazarus R","year":"1984"},{"key":"p_29","doi-asserted-by":"publisher","DOI":"10.1093\/acprof:oso\/9780192631671.003.0002"},{"key":"p_30","volume-title":"Understanding Family Care","author":"Nolan M","year":"1996"},{"key":"p_31","doi-asserted-by":"publisher","DOI":"10.1097\/00002820-200008000-00007"},{"key":"p_32","volume-title":"Annual Review of Nursing Research","author":"Pasacreta V","year":"2000"},{"key":"p_33","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2001.7.7.9016"},{"issue":"3","key":"p_34","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1177\/082585979801400304","volume":"14","author":"Stajduhar KI","year":"1998","journal-title":"J Palliat Care"},{"issue":"5","key":"p_35","first-page":"823","volume":"23","author":"Steele R","year":"1996","journal-title":"Oncol Nurs Forum"},{"key":"p_36","doi-asserted-by":"publisher","DOI":"10.1177\/104990910001700411"},{"key":"p_37","doi-asserted-by":"publisher","DOI":"10.1093\/swr\/21.3.154"}],"container-title":["International Journal of Palliative Nursing"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/pdf\/10.12968\/ijpn.2004.10.2.12454","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,5,24]],"date-time":"2022-05-24T01:53:15Z","timestamp":1653357195000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.magonlinelibrary.com\/doi\/10.12968\/ijpn.2004.10.2.12454"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2004,2]]},"references-count":37,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2004,2]]}},"alternative-id":["10.12968\/ijpn.2004.10.2.12454"],"URL":"https:\/\/doi.org\/10.12968\/ijpn.2004.10.2.12454","relation":{},"ISSN":["1357-6321","2052-286X"],"issn-type":[{"value":"1357-6321","type":"print"},{"value":"2052-286X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2004,2]]}}}