{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T21:38:45Z","timestamp":1760132325816},"reference-count":17,"publisher":"Mark Allen Group","issue":"9","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Int J Palliat Nurs"],"published-print":{"date-parts":[[2004,9]]},"abstract":"<jats:p> A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care Outcome Scale, with people with motor neurone disease (MND) living at home. The outcome measure was generally viewed positively by those involved. However, problems with this scale itself point to the need for a specialized instrument to assess palliative care outcomes for people living with MND. <\/jats:p>","DOI":"10.12968\/ijpn.2004.10.9.16051","type":"journal-article","created":{"date-parts":[[2014,5,23]],"date-time":"2014-05-23T15:44:10Z","timestamp":1400859850000},"page":"449-453","source":"Crossref","is-referenced-by-count":13,"title":["Assessing palliative care outcomes for people with motor neurone disease living at home"],"prefix":"10.12968","volume":"10","author":[{"given":"Rhidian A","family":"Hughes","sequence":"first","affiliation":[{"name":"Centre for Health and Social Care, School for Policy Studies, University of Bristol, Bristol, BS8 1TZ, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fiona","family":"Aspinal","sequence":"additional","affiliation":[{"name":"Department of Politics, University of York, Heslington, York, YO10 5DD, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Irene J","family":"Higginson","sequence":"additional","affiliation":[{"name":"Department of Palliative Care and Policy, Guy\u2019s, King\u2019s and St Thomas\u2019 School of Medicine, King\u2019s College London, The Weston Education Centre, 10 Cutcombe Road, London, SE5 9RJ, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julia M","family":"Addington-Hall","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery, University of Southampton, Highfield, Southampton, SO17 1BJ, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria","family":"Dunckley","sequence":"additional","affiliation":[{"name":"Department of Palliative Care and Policy, Guy\u2019s, King\u2019s and St Thomas\u2019 School of Medicine, King\u2019s College London, The Weston Education Centre, 10 Cutcombe Road, London, SE5 9RJ, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christina","family":"Faull","sequence":"additional","affiliation":[{"name":"Leicestershire and Rutland Hospice, Groby Road, Leicester, LE3 9QE, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anu","family":"Sinha","sequence":"additional","affiliation":[{"name":"School of Neurology, Neurobiology and Psychiatry, Ridley Building, University of Newcastle upon Tyne, Newcastle upon Tyne, NE1 7RU, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"key":"p_1","volume-title":"Thompson M on behalf of the Palliative care Outcome Scale Action Partnership. 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