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Patients were excluded if the patient had recently been diagnosed or were too sick or disabled to complete the survey. This was a specification of the ethics committee overseeing this project. <\/jats:p><jats:p> Findings: The MND and HD groups had the greatest needs for support and appeared most receptive to a palliative approach. The MS group was least likely to have a carer and more likely to live alone. HD and PD groups had the highest rates of anxiety and HD groups had the highest rate of depression. <\/jats:p><jats:p> Conclusions: Patients and carers who received more tailored services and more palliative care services were the most satisfied. Therefore, results highlight the need for tailored and flexible models of care for these groups with unique care requirements. <\/jats:p>","DOI":"10.12968\/ijpn.2006.12.8.368","type":"journal-article","created":{"date-parts":[[2015,1,23]],"date-time":"2015-01-23T19:48:11Z","timestamp":1422042491000},"page":"368-377","source":"Crossref","is-referenced-by-count":69,"title":["Palliative care and support for people with neurodegenerative conditions and their carers"],"prefix":"10.12968","volume":"12","author":[{"given":"Linda J","family":"Kristjanson","sequence":"first","affiliation":[{"name":"Professor of Palliative Care."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Samar M","family":"Aoun","sequence":"additional","affiliation":[{"name":"Associate Professor, Community and Population Health."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lynn","family":"Oldham","sequence":"additional","affiliation":[{"name":"National Health and Medical Research Council Postdoctoral Fellow, Western Australian Centre for Cancer and Palliative Care, School of Nursing, Midwifery and Postgraduate Medicine, Edith Cowan University, Pearson Street, Churchlands, Western Australia, 6018."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"key":"p_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1166(199910)14:10<866::AID-GPS38>3.0.CO;2-Z"},{"key":"p_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-510X(99)00227-0"},{"issue":"4","key":"p_3","first-page":"183","volume":"1","author":"Barby TFM","year":"1995","journal-title":"IJPN"},{"key":"p_4","doi-asserted-by":"publisher","DOI":"10.1016\/S0733-8619(05)70048-7"},{"key":"p_5","doi-asserted-by":"publisher","DOI":"10.1016\/S0733-8619(05)70049-9"},{"key":"p_6","doi-asserted-by":"publisher","DOI":"10.1007\/BF03324464"},{"key":"p_7","doi-asserted-by":"publisher","DOI":"10.1097\/01376517-200310000-00002"},{"key":"p_8","doi-asserted-by":"publisher","DOI":"10.1191\/026921698668830097"},{"issue":"1","key":"p_9","doi-asserted-by":"crossref","first-page":"36","DOI":"10.1177\/082585970301900107","volume":"19","author":"Dawson S","year":"2004","journal-title":"J Palliat Care"},{"key":"p_10","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291700021644"},{"key":"p_11","doi-asserted-by":"publisher","DOI":"10.1097\/00002820-198712000-00006"},{"key":"p_12","doi-asserted-by":"publisher","DOI":"10.1191\/1352458504ms1116rr"},{"key":"p_13","doi-asserted-by":"publisher","DOI":"10.1108\/14717794200100025"},{"key":"p_14","doi-asserted-by":"publisher","DOI":"10.1016\/S1353-8020(02)00038-X"},{"key":"p_15","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.324.7345.1072"},{"key":"p_16","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.70.1.70"},{"key":"p_17","doi-asserted-by":"crossref","first-page":"311","DOI":"10.5694\/j.1326-5377.2003.tb05218.x","volume":"178","author":"Kiernan MC","year":"2003","journal-title":"Med J Austral"},{"key":"p_18","doi-asserted-by":"publisher","DOI":"10.1191\/026921500669834306"},{"issue":"2","key":"p_19","first-page":"34","volume":"19","author":"Klimek ML","year":"1997","journal-title":"AXON"},{"key":"p_20","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(93)90066-D"},{"key":"p_21","volume-title":"Evaluation of the Revised Symptom Assessment Scale","author":"Kristjanson LJ","year":"1999"},{"key":"p_22","doi-asserted-by":"crossref","first-page":"S42","DOI":"10.5694\/j.1326-5377.2003.tb05578.x","volume":"179","author":"Kristjanson LJ","year":"2003","journal-title":"Med J Aust"},{"key":"p_23","doi-asserted-by":"publisher","DOI":"10.1159\/000110240"},{"key":"p_24","doi-asserted-by":"publisher","DOI":"10.1093\/brain\/117.3.501"},{"key":"p_25","doi-asserted-by":"crossref","first-page":"S21","DOI":"10.1212\/WNL.52.8.21A","volume":"52","author":"MacMahon D","year":"1999","journal-title":"Neurology Report"},{"key":"p_26","doi-asserted-by":"publisher","DOI":"10.1016\/S0733-8619(05)70050-5"},{"key":"p_27","volume-title":"NICE Guidelines: Multiple Sclerosis. 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