{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,22]],"date-time":"2026-04-22T06:28:27Z","timestamp":1776839307348,"version":"3.51.2"},"reference-count":38,"publisher":"Mark Allen Group","issue":"Sup8a","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Wound Care"],"published-print":{"date-parts":[[2024,8,1]]},"abstract":"<jats:sec><jats:title>Objective:<\/jats:title><jats:p> To explore the experience of patients with incontinence and incontinence-associated dermatitis (IAD) in acute care hospitals and their family caregivers, including their perceptions and management, as well as the impact on their wellbeing. <\/jats:p><\/jats:sec><jats:sec><jats:title>Method:<\/jats:title><jats:p> A qualitative exploratory study design was employed in 18 wards across six acute\/subacute hospitals in New South Wales, Australia. Patients with incontinence (with or without IAD) were invited to participate. Where interviews were not possible with the patient, their family caregiver was invited to participate. Semi-structured interviews were conducted. <\/jats:p><\/jats:sec><jats:sec><jats:title>Results:<\/jats:title><jats:p> There were 45 interviewees in the study; 41 were patients with incontinence (11 of whom had IAD) and four were family caregivers. The experience of incontinence was captured by three themes: \u2018incontinence interrupts every aspect of my life\u2019; \u2018actively concealing and cloaking\u2019; and \u2018perceived as irreversible\u2019. Incontinence was expected by the patients at their age and did not come as a surprise. It was normalised and approached with stoicism. As such, patients self-managed their incontinence by developing strategies to ensure they avoided episodes of incontinence during their stay. Incontinence left patients feeling anxious, embarrassed and with a sense of shame, and they did not communicate these feelings, or engage with health professionals about their incontinence, nor did health professionals discuss their incontinence with them. There was a strong sense of resignation that incontinence was irreversible and nothing could be done to improve it. All participants displayed little knowledge of IAD. The experience of having IAD was characterised by the theme \u2018debilitating and desperate for relief\u2019 and was experienced as a particularly painful, itching and burning condition that left patients distressed and irritable. <\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion:<\/jats:title><jats:p> Patients with incontinence in acute settings required further education from health professionals to reduce the stigma of incontinence, and provide further support to manage their incontinence. Health professionals can also play a key role in educating patients about the risks of developing IAD and how it can be prevented. <\/jats:p><\/jats:sec>","DOI":"10.12968\/jowc.2021.0394","type":"journal-article","created":{"date-parts":[[2024,8,20]],"date-time":"2024-08-20T16:21:41Z","timestamp":1724170901000},"page":"cxcix-ccvii","source":"Crossref","is-referenced-by-count":6,"title":["Patients' experience of incontinence and incontinence-associated dermatitis in hospital settings: a qualitative study"],"prefix":"10.12968","volume":"33","author":[{"given":"Michelle","family":"Barakat-Johnson","sequence":"first","affiliation":[{"name":"Executive Nursing and Midwifery Services, Sydney Local Health District, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia."},{"name":"Susan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Camperdown, New South Wales, Australia."},{"name":"School of Human and Health Sciences, University of Huddersfield, Huddersfield, UK."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michelle","family":"Lai","sequence":"additional","affiliation":[{"name":"Executive Nursing and Midwifery Services, Sydney Local Health District, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia."},{"name":"Susan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, The University of Sydney, Camperdown, New South Wales, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shifa","family":"Basjarahil","sequence":"additional","affiliation":[{"name":"Nursing and Midwifery Services, South Eastern Sydney Local Health District, The Sutherland Hospital, Caringbah, New South Wales, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jayne","family":"Campbell","sequence":"additional","affiliation":[{"name":"Nursing and Midwifery Services, Hunter New England Local Health District, Newcastle, New South Wales, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michelle","family":"Cunich","sequence":"additional","affiliation":[{"name":"Sydney Health Economics Collaborative, Sydney Local Health District, Camperdown, New South Wales, Australia."},{"name":"Charles Perkins Centre, Sydney School of Medicine (Central Clinical School), Faculty of Medicine and Health, The University of Sydney, Camperdown, New South Wales, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gary","family":"Disher","sequence":"additional","affiliation":[{"name":"Strategic Reform and Planning Branch, New South Wales Ministry of Health, St Leonards, New South Wales, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Samara","family":"Geering","sequence":"additional","affiliation":[{"name":"South Western Sydney Nursing & Midwifery Research Alliance, South Western Sydney Local Health District, New South Wales, 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Australia."},{"name":"The Daffodil Centre, The University of Sydney, a joint venture with Cancer Council NSW, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fiona","family":"Coyer","sequence":"additional","affiliation":[{"name":"School of Human and Health Sciences, University of Huddersfield, Huddersfield, UK."},{"name":"School of Nursing, Midwifery and Social Work, The University of Queensland, Brisbane, Queensland, Australia."},{"name":"Royal Brisbane and Women's Hospital, Herston, Queensland, Australia."},{"name":"School of Nursing, Queensland University of Technology, Brisbane, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"5130","reference":[{"issue":"4","key":"B2","doi-asserted-by":"crossref","first-page":"285","DOI":"10.1097\/WON.0000000000000548","volume":"46","author":"Kayser SA","year":"2019","journal-title":"J Wound Ostomy Continence 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