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Kharroubi,                AT,              Darwish,            HM. Diabetes            mellitus: The epidemic of the century. World J Diabetes          2015;6: 850\u201367.","DOI":"10.4239\/wjd.v6.i6.850"},{"key":"2","unstructured":"2. World Health Organization          Diabetes [Internet]. [cited 2023 Aug 16]. Available from: https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/diabetes."},{"key":"3","doi-asserted-by":"crossref","unstructured":"3. Armstrong,                KL,                Henderson,              C, Hoan,                NT, Warne,                GL. Living            with congenital adrenal hyperplasia in Vietnam: a survey of parents.            J Pediatr Endocrinol Metab          2006;19: 1207\u201323.","DOI":"10.1515\/JPEM.2006.19.10.1207"},{"key":"4","unstructured":"4. United Nations Goal 3          Ensure healthy lives and promote well-being for all at all ages. [Internet]. [cited 2023          Aug 22]. Available from: https:\/\/sdgs.un.org\/goals\/goal3."},{"key":"5","unstructured":"5. R H. Type                1 diabetes in children, adolescents, and young adults: how to become an expert on                your own diabetes. Class Publishing          Ltd; 2007."},{"key":"6","doi-asserted-by":"crossref","unstructured":"6. Armstrong,                K, Benedict                Yap, A,                Chan-Cua,            S, Craig,                ME, Cole,                C, Chi              Dung, V, et            al. We all have a role to play: Redressing            inequities for children living with CAH and other chronic health conditions of childhood            in resource-Poor settings. Int J Neonatal Screen          2020;6: 76.","DOI":"10.3390\/ijns6040076"},{"key":"7","unstructured":"7. Armstrong,                K. A Health Needs Assessment          (HNA) to Improve Health Outcomes and Redress Inequities for Children Living with Nephrotic          Syndrome in Vietnam [Doctoral dissertation]. Flinders University;          2021."},{"key":"8","doi-asserted-by":"crossref","unstructured":"8. Yesudian,                CAK,                Grepstad,            M, Visintin,                E,              Ferrario,            A. The economic            burden of diabetes in India: a review of the literature. Global            Health          2014;10: 80.","DOI":"10.1186\/s12992-014-0080-x"},{"key":"9","doi-asserted-by":"crossref","unstructured":"9. Ogle,              GD, Kim,                H,                Middlehurst,              AC, Silink,                M, Jenkins,                AJ. Financial            costs for families of children with Type 1 diabetes in lower-income            countries. Diabet Med          2016;33: 820\u20136.","DOI":"10.1111\/dme.12997"},{"key":"10","doi-asserted-by":"crossref","unstructured":"10. Pulungan,                AB,              Fadiana, G,                Annisa,            D. Type 1            diabetes mellitus in children: experience in Indonesia. Clin            Pediatr Endocrinol          2021;30: 11\u20138.","DOI":"10.1297\/cpe.30.11"},{"key":"11","unstructured":"11. Indonesian Pediatric            Society. Database of the Endocrinology Working            Group. 2024."},{"key":"12","doi-asserted-by":"crossref","unstructured":"12. Pulungan,                AB, de                Beaufort, C,                Ratnasari,              AF, Puteri,                HA,                Lewis-Watts,              L, Bhutta,                ZA.            Availability and access to pediatric diabetes care: a global descriptive            study. Clin Pediatr Endocrinol          2023;32: 137\u201346.","DOI":"10.1297\/cpe.2023-0017"},{"key":"13","doi-asserted-by":"crossref","unstructured":"13. Agustina,                R,              Dartanto, T,                Sitompul,            R, Susiloretni,                KA,              Suparmi, ,                Achadi, EL,              et al. Indonesian Health Systems            Group. Universal health coverage in Indonesia: concept,            progress, and challenges. Lancet          2019;393: 75\u2013102.","DOI":"10.1016\/S0140-6736(18)31647-7"},{"key":"14","unstructured":"14. Kementerian,                KRI. Peraturan Menteri          Kesehatan Nomor 76 Tahun 2016 tentang Pedoman Indonesian Case Base Groups (INA-CBG) dalam          Pelaksanaan Jaminan Kesehatan Nasional. Kementerian Kesehatan Republik Indonesia          Indonesia; 2016."},{"key":"15","doi-asserted-by":"crossref","unstructured":"15. Weitzman,                M. School            absence rates as outcome measures in studies of children with chronic            illness. J Chronic Dis          1986;39: 799\u2013808.","DOI":"10.1016\/0021-9681(86)90082-2"},{"key":"16","doi-asserted-by":"crossref","unstructured":"16. Elissa,              K, Bratt,                EL,                Axelsson,              \u00c5B, Khatib,                S,                Sparud-Lundin,              C. Societal            norms and conditions and their influence on daily life in children with type 1 diabetes            in the West Bank in Palestine. J Pediatr Nurs          2017;33: 16\u201322.","DOI":"10.1016\/j.pedn.2016.12.005"},{"key":"17","doi-asserted-by":"crossref","unstructured":"17. Pillen,              H, Ward,                PR. How might            diabetes organisations addressdiabetes-related stigma? Findings from a deliberative            democratic case study. Health Expect          2022;25: 2213\u201322.","DOI":"10.1111\/hex.13398"},{"key":"18","doi-asserted-by":"crossref","unstructured":"18. Streisand,                R,              Monaghan,            M. Young children            with type 1 diabetes: challenges, research, and future directions.            Curr Diab Rep          2014;14: 520.","DOI":"10.1007\/s11892-014-0520-2"},{"key":"19","doi-asserted-by":"crossref","unstructured":"19. Hershey,                JA, Morone,                J, Lipman,                TH, Hawkes,                CP. Social            determinants of health, goals and outcomes in high-risk children with type 1            diabetes. Can J Diabetes          2021;45: 444\u2013450.e1.","DOI":"10.1016\/j.jcjd.2021.02.005"},{"key":"20","doi-asserted-by":"crossref","unstructured":"20. Huynh,              QT, Thuy,                H,                Armstrong,              K, Craig,                M.            Effectiveness of diabetes and congenital adrenal hyperplasia meeting            clubs. Int J Pediatr Endocrinol          2013;2013(S1).","DOI":"10.1186\/1687-9856-2013-S1-P134"},{"key":"21","doi-asserted-by":"crossref","unstructured":"21. Cutrona,                CE, Suhr,                JA.            Controllability of stressful events and satisfaction with spouse support            behaviors. Communic Res          1992;19.","DOI":"10.1177\/009365092019002002"},{"key":"22","doi-asserted-by":"crossref","unstructured":"22. Ko,                HC, Wang,                LL, Xu,                YT.            Understanding the different types of social support offered by audience            to A-list diary-like and informative bloggers. Cyberpsychol            Behav Soc Netw          2013;16: 194\u20139.","DOI":"10.1089\/cyber.2012.0297"},{"key":"23","doi-asserted-by":"crossref","unstructured":"23. Lawrence,                SE,                Albanese-O\u2019Neill,              A, Besan\u00e7on,                S, Black,                T, Bratina,                N, Chaney,                D, et al.            ISPAD Clinical Practice Consensus Guidelines 2022: Management and support            of children and adolescents with diabetes in school. Pediatr            Diabetes          2022;23: 1478\u201395.","DOI":"10.1111\/pedi.13432"},{"key":"24","doi-asserted-by":"crossref","unstructured":"24. Hill,              K, Ward,                P, Gleadle,                J. \u201cI kind of            gave up on it after a while, became too hard, closed my eyes, didn\u2019t want to know about            it\u201d-adults with type 1 diabetes mellitus describe defeat in the context of low social            support. Health Expect          2019;22: 254\u201361.","DOI":"10.1111\/hex.12850"},{"key":"25","doi-asserted-by":"crossref","unstructured":"25. Soenggono,                EP,                Purbasari,              R, Pulungan,                AB,                Tridjaja,            B. Glycemic            control in diabetic children and adolescents after attending diabetic            camp. Paediatr Indones          2011;51.","DOI":"10.14238\/pi51.5.2011.294-7"},{"key":"26","doi-asserted-by":"crossref","unstructured":"26. Khosla,              M. Resilience            and health: implications for interventions and policy making.            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