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However, this could be alleviated by appropriate and timely targeted mental health services. This study examined the experiences of mental health and mental health services in a community sample of parents living in and around York, England. Qualitative data from 66 survey respondents (89.4% female) and 12 interviewees (67% female) were thematically analysed. Results indicated parents experienced numerous challenges related to navigating complexity in their day-to-day lives and in accessing support for their children. Systemic limitations in service accessibility were identified, with participants relying on informal networks and charitable organisations for support due to insufficient or inappropriate formal provision. For some, services were experienced as ineffective or harmful. The absence of appropriate external support for children placed a substantial burden on parents, contributing to psychological distress, isolation, and parents neglecting their own needs to provide for their children. Participants called for more integrated, strengths-based, and family-centred approaches, particularly flexible parallel provision for parents and children. These findings highlight the need for systemic reform to ensure that support services are accessible, joined-up, and responsive to both child and parental needs.<\/jats:p>","DOI":"10.1371\/journal.pmen.0000695","type":"journal-article","created":{"date-parts":[[2026,8,21]],"date-time":"2026-08-21T17:22:16Z","timestamp":1787332936000},"page":"e0000695","update-policy":"https:\/\/doi.org\/10.1371\/journal.pmen.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Experiences of mental health support services in a community sample of parents of children with special educational needs and disabilities"],"prefix":"10.1371","volume":"3","author":[{"given":"Astrid Erica June","family":"Bowen","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0890-9334","authenticated-orcid":true,"given":"Laura","family":"Fox","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2026,8,21]]},"reference":[{"issue":"7","key":"pmen.0000695.ref001","doi-asserted-by":"crossref","first-page":"1411","DOI":"10.1007\/s10803-011-1375-x","article-title":"Maternal depressive symptoms following autism spectrum diagnosis","volume":"42","author":"JL Taylor","year":"2012","journal-title":"J Autism Dev Disord"},{"issue":"5","key":"pmen.0000695.ref002","doi-asserted-by":"crossref","first-page":"697","DOI":"10.1111\/cch.12884","article-title":"Experiences and barriers to accessing mental health support in mothers of children with a disability","volume":"47","author":"K-M Gilson","year":"2021","journal-title":"Child Care Health Dev"},{"key":"pmen.0000695.ref003","unstructured":"Stenson C. 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YC. One city for all, 2023 to 2027. 2023."},{"key":"pmen.0000695.ref029","unstructured":"NHS E. Core20PLUS5 (adults) \u2013 an approach to reducing healthcare inequalities. 2023 July 23."},{"key":"pmen.0000695.ref030","article-title":"Reform of the SEND system: What might the next stage look like and how can we build consensus?","author":"B Bryant","year":"2025"},{"issue":"11","key":"pmen.0000695.ref031","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0335606","article-title":"Barriers, enablers and outcomes reported by parents engaged with the special educational needs system in England: A qualitative study","volume":"20","author":"J Saxton","year":"2025","journal-title":"PLoS One"},{"issue":"1","key":"pmen.0000695.ref032","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1111\/1471-3802.12609","article-title":"Parental experiences of accessing assessments for special educational needs","volume":"24","author":"Z Starkie","year":"2023","journal-title":"Research in Spec Educ Needs"},{"issue":"4","key":"pmen.0000695.ref033","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1111\/jcpp.13481","article-title":"Annual Research Review: The transdiagnostic revolution in neurodevelopmental disorders","volume":"63","author":"DE Astle","year":"2022","journal-title":"Journal of Child Psychology and Psychiatry"},{"key":"pmen.0000695.ref034","unstructured":"Education, D. f. 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