{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,16]],"date-time":"2026-10-16T22:45:47Z","timestamp":1792190747685,"version":"4.4.0"},"reference-count":55,"publisher":"Public Library of Science (PLoS)","issue":"4","license":[{"start":{"date-parts":[[2022,4,18]],"date-time":"2022-04-18T00:00:00Z","timestamp":1650240000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100004587","name":"Instituto de Salud Carlos III","doi-asserted-by":"publisher","award":["PI16\/0123, ISCIII-AES"],"award-info":[{"award-number":["PI16\/0123, ISCIII-AES"]}],"id":[{"id":"10.13039\/501100004587","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010434","name":"\u201cla Caixa\u201d Foundation","doi-asserted-by":"publisher","award":["LCF\/BQ\/ES17\/11600006"],"award-info":[{"award-number":["LCF\/BQ\/ES17\/11600006"]}],"id":[{"id":"10.13039\/100010434","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100005774","name":"Universitat de Barcelona","doi-asserted-by":"crossref","award":["Mobility grant"],"award-info":[{"award-number":["Mobility grant"]}],"id":[{"id":"10.13039\/501100005774","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100014440","name":"Ministerio de Ciencia, Innovaci\u00f3n y Universidades","doi-asserted-by":"publisher","award":["RYC-2013-14512"],"award-info":[{"award-number":["RYC-2013-14512"]}],"id":[{"id":"10.13039\/100014440","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100004837","name":"Spanish Ministry of Science and Innovation","doi-asserted-by":"crossref","award":["CEX2018-000806-S"],"award-info":[{"award-number":["CEX2018-000806-S"]}],"id":[{"id":"10.13039\/501100004837","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100002809","name":"Generalitat de Catalunya","doi-asserted-by":"publisher","award":["CERCA Program"],"award-info":[{"award-number":["CERCA Program"]}],"id":[{"id":"10.13039\/501100002809","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosntds.org"],"crossmark-restriction":false},"short-container-title":["PLoS Negl Trop Dis"],"abstract":"<jats:sec id=\"sec001\">\n<jats:title>Background<\/jats:title>\n<jats:p>The epidemic of Zika virus (ZIKV) was associated with a sudden and unprecedented increase in infants born with microcephaly. Colombia was the second most affected country by the epidemic in the Americas. Primary caregivers of children with ZIKV-associated microcephaly, their mothers mainly, were at higher risk of suffering anxiety and depression. Often, these women were stigmatized and abandoned by their partners, relatives, and communities.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec002\">\n<jats:title>Methodology\/Principal findings<\/jats:title>\n<jats:p>This study aimed to understand the perceptions about ZIKV infection among mothers of children born with microcephaly during the ZIKV epidemic in Caribbean Colombia, and the barriers and facilitators affecting child health follow-up. An exploratory qualitative study, based on Phenomenology and Grounded Theory, was conducted in Caribbean Colombia. Data were collected through In-Depth Interviews (IDI) from women who delivered a baby with microcephaly during the ZIKV epidemic at Cl\u00ednica Salud Social, Sincelejo, Sucre District (N = 11). The themes that emerged during the interviews included experiences from their lives before pregnancy; knowledge about ZIKV; experiences and perceptions when diagnosed; considering a possible termination of pregnancy, and children\u2019s clinical follow-up. In some cases, women reported having been told they were having a baby with microcephaly but decided not to terminate the pregnancy; while in other cases, women found out about their newborn\u2019s microcephaly condition only at birth. The main barriers encountered by participants during children\u2019s follow-up included the lack of psychosocial and economic support, the stigmatization and abandonment by some partners and relatives, and the frustration of seeing the impaired development of their children.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec003\">\n<jats:title>Conclusions<\/jats:title>\n<jats:p>This study contributed to identifying the social, medical, psychological, and economic needs of families with children affected by the ZIKV epidemic. Commitment and action by local and national governments, and international bodies, is required to ensure sustained and quality health services by affected children and their families.<\/jats:p>\n<\/jats:sec>","DOI":"10.1371\/journal.pntd.0010328","type":"journal-article","created":{"date-parts":[[2022,4,18]],"date-time":"2022-04-18T17:26:10Z","timestamp":1650302770000},"page":"e0010328","update-policy":"https:\/\/doi.org\/10.1371\/journal.pntd.corrections_policy","source":"Crossref","is-referenced-by-count":11,"title":["\u201cOne feels anger to know there is no one to help us!\u201d. Perceptions of mothers of children with Zika virus-associated microcephaly in Caribbean Colombia: A qualitative study"],"prefix":"10.1371","volume":"16","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9715-0595","authenticated-orcid":true,"given":"Elena","family":"Marb\u00e1n-Castro","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4945-2094","authenticated-orcid":true,"given":"Cristina","family":"Enguita-Fern\u00e0ndez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6568-1316","authenticated-orcid":true,"given":"Kelly Carolina","family":"Romero-Acosta","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Germ\u00e1n J.","family":"Arrieta","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Mar\u00edn-Cos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Salim","family":"Mattar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Clara","family":"Men\u00e9ndez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5782-8197","authenticated-orcid":true,"given":"Maria","family":"Maixenchs","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Azucena","family":"Bardaj\u00ed","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2022,4,18]]},"reference":[{"key":"pntd.0010328.ref001","article-title":"Growth and Development of Children with Microcephaly Associated with Congenital Zika Virus Syndrome in Brazil","volume":"15","author":"TLB de Fran\u00e7a","year":"2018","journal-title":"Int J Environ Res Public Health"},{"key":"pntd.0010328.ref002","doi-asserted-by":"crossref","first-page":"e0242367","DOI":"10.1371\/journal.pone.0242367","article-title":"Congenital Zika syndrome: A systematic review.","volume":"15","author":"DA Freitas","year":"2020","journal-title":"PLoS One."},{"key":"pntd.0010328.ref003","doi-asserted-by":"crossref","first-page":"162","DOI":"10.1016\/j.ejogrb.2021.07.012","article-title":"Zika virus infection in pregnant women and their children: A review.","volume":"265","author":"E Marb\u00e1n-Castro","year":"2021","journal-title":"Eur J Obstet Gynecol Reprod Biol"},{"key":"pntd.0010328.ref004","doi-asserted-by":"crossref","DOI":"10.3390\/ijerph17113806","article-title":"Zika Virus and the Risk of Developing Microcephaly in Infants: A Systematic Review.","volume":"17","author":"E Antoniou","year":"2020","journal-title":"Int J Environ Res Public Health"},{"key":"pntd.0010328.ref005","doi-asserted-by":"crossref","DOI":"10.3390\/vaccines6040081","article-title":"Clinical Trials and Administration of Zika Virus Vaccine in Pregnant Women: Lessons (that Should Have Been) Learned from Excluding Immunization with the Ebola Vaccine during Pregnancy and Lactation.","volume":"6","author":"DA Schwartz","year":"2018","journal-title":"Vaccines"},{"key":"pntd.0010328.ref006","doi-asserted-by":"crossref","first-page":"473","DOI":"10.1007\/s00737-017-0724-y","article-title":"Anxiety, depression, and quality of life in mothers of newborns with microcephaly and presumed congenital Zika virus infection: a follow-up study during the first year after birth.","author":"SJG Dos Santos Oliveira","year":"2017","journal-title":"Archives of women\u2019s mental health"},{"key":"pntd.0010328.ref007","doi-asserted-by":"crossref","first-page":"e0007768","DOI":"10.1371\/journal.pntd.0007768","article-title":"The association of depression, anxiety, and stress with caring for a child with Congenital Zika Syndrome in Brazil; Results of a cross-sectional study.","volume":"13","author":"H Kuper","year":"2019","journal-title":"PLoS Negl Trop Dis"},{"key":"pntd.0010328.ref008","doi-asserted-by":"crossref","first-page":"344","DOI":"10.1097\/DBP.0000000000000666","article-title":"Depressive Symptoms and Care Demands Among Primary Caregivers of Young Children with Evidence of Congenital Zika Virus Infection in Brazil.","volume":"40","author":"K Kotzky","year":"2019","journal-title":"J Dev Behav Pediatr."},{"key":"pntd.0010328.ref009","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1002\/ijgo.13044","article-title":"How do mothers feel? 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