{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T19:05:08Z","timestamp":1789499108871,"version":"build-2803163510"},"update-to":[{"DOI":"10.1371\/journal.pntd.0014711","type":"new_version","label":"New version","source":"publisher","updated":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T00:00:00Z","timestamp":1789430400000}}],"reference-count":130,"publisher":"Public Library of Science (PLoS)","issue":"9","license":[{"start":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T00:00:00Z","timestamp":1788825600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["www.plosntds.org"],"crossmark-restriction":false},"short-container-title":["PLoS Negl Trop Dis"],"abstract":"<jats:sec id=\"sec001\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Classified as poverty-related diseases (PRD) leprosy and tuberculosis (TB) are long-standing mycobacterial diseases strongly linked to poverty, stigma, and social exclusion, disproportionately affecting vulnerable populations. Gender norms further shape how individuals experience illness, access to care, and coping strategies, but evidence remains fragmented and largely disease-specific. This systematic review synthesizes qualitative evidence on lived experiences of people affected by TB or leprosy worldwide and compares gender inequities across both diseases to identify shared social and structural determinants.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec002\">\n                    <jats:title>Methods\/principal findings<\/jats:title>\n                    <jats:p>\n                      A systematic review following PRISMA guidelines searched PubMed, Embase, Scopus, and Web of Science for peer-reviewed qualitative and mixed methods studies (1995\u201308\/2025) reporting primary qualitative data on gendered experiences of people affected by TB or leprosy. Studies in all countries and languages were eligible. Screening and extraction were conducted using\n                      <jats:italic>Rayyan.<\/jats:italic>\n                      Inductive thematic synthesis was performed using\n                      <jats:italic>MAXQDA<\/jats:italic>\n                      . Quality was assessed using the CASP checklist. A total of 3204 records were identified, with 57 studies from 29 countries across five continents included. Across settings, women experienced greater barriers to diagnosis and care, more severe marital and familial consequences, higher stigma and social exclusion, and greater psychosocial burden than men. Men\u2019s experiences were shaped by norms of masculinity, particularly regarding economic provision and employment. Despite disease differences, psychosocial and socioeconomic impacts were similar across TB and leprosy, embedded in gendered social norms, power relations, and social determinants of health.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec003\">\n                    <jats:title>Conclusions\/significance<\/jats:title>\n                    <jats:p>Gender-based inequities are pervasive across TB and leprosy globally. Comparing both diseases reveals shared social mechanisms beyond biomedical differences. Addressing them requires moving beyond biomedical models and integrating gender as a structural determinant of health. Gender-sensitive, participatory, and intersectional interventions are needed to improve early diagnosis, treatment adherence, and psychosocial and socioeconomic outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec004\">\n                    <jats:title>Registration<\/jats:title>\n                    <jats:p>Registered on Open Science Framework (OSF) on 01\/09\/2025.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1371\/journal.pntd.0014711","type":"journal-article","created":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T17:52:39Z","timestamp":1788889959000},"page":"e0014711","update-policy":"https:\/\/doi.org\/10.1371\/journal.pntd.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Gendered experiences of people living with tuberculosis or leprosy: A global systematic review"],"prefix":"10.1371","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0009-0000-0564-9974","authenticated-orcid":true,"given":"Sophie C. 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Neglected tropical diseases. 2026 (accessed 10 December 2025). https:\/\/www.who.int\/health-topics\/neglected-tropical-diseases"},{"key":"pntd.0014711.ref004","unstructured":"World Health Organization (WHO). Leprosy. Key Facts. 2026 (accessed 8 December 2025). https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/leprosy"},{"key":"pntd.0014711.ref005","unstructured":"World Health Organization (WHO). Tuberculosis. Overview. 2026 (accessed 8 December 2025). https:\/\/www.who.int\/health-topics\/tuberculosis"},{"key":"pntd.0014711.ref006","unstructured":"until No Leprosy Remains (NLR). Facts & Figures. 2026 (accessed 9 February 2026). https:\/\/nlrinternational.org\/facts-figures\/"},{"key":"pntd.0014711.ref007","unstructured":"World Health Organization (WHO). Social determinants of health. 2026 (accessed 23 February 2026). https:\/\/www.who.int\/health-topics\/social-determinants-of-health"},{"issue":"1","key":"pntd.0014711.ref008","doi-asserted-by":"crossref","first-page":"662","DOI":"10.1186\/s12879-023-08627-9","article-title":"The geographical distribution and socioeconomic risk factors of COVID-19, tuberculosis and leprosy in Fortaleza, Brazil","volume":"23","author":"AT Taal","year":"2023","journal-title":"BMC Infect Dis"},{"key":"pntd.0014711.ref009","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1016\/j.ijpp.2019.05.005","article-title":"Revisiting the tuberculosis and leprosy cross-immunity hypothesis: Expanding the dialogue between immunology and paleopathology","volume":"26","author":"F Crespo","year":"2019","journal-title":"Int J Paleopathol"},{"issue":"11","key":"pntd.0014711.ref010","doi-asserted-by":"crossref","first-page":"1569","DOI":"10.3855\/jidc.14308","article-title":"Co-infection leprosy and tuberculosis: a systematic review","volume":"15","author":"L Cavalcante Trindade","year":"2021","journal-title":"J Infect Dev Ctries"},{"key":"pntd.0014711.ref011","unstructured":"World Health Organization (WHO). 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Eliminate leprosy-related discrimination, prejudice and stigma to end leprosy for good. 2019 (accessed 10 December 2025). https:\/\/www.who.int\/southeastasia\/news\/detail\/25-01-2019-eliminate-leprosy-related-discrimination-prejudice-and-stigma-to-end-leprosy-for-good"},{"issue":"5","key":"pntd.0014711.ref014","doi-asserted-by":"crossref","first-page":"391","DOI":"10.1016\/S0962-8479(96)90110-0","article-title":"Gender differentials in tuberculosis: the role of socio-economic and cultural factors","volume":"77","author":"P Hudelson","year":"1996","journal-title":"Tuber Lung Dis"},{"key":"pntd.0014711.ref015","doi-asserted-by":"crossref","first-page":"419","DOI":"10.47276\/lr.88.3.419","article-title":"Gender and leprosy-related stigma in endemic areas: A systematic review","volume":"88","author":"JIR Dijkstra","year":"2017","journal-title":"Lepr Rev"},{"key":"pntd.0014711.ref016","doi-asserted-by":"crossref","unstructured":"van Brakel WH, Peters RMH, da Silva Pereira ZB. 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A Glimpse of Present Day Perspectives of Stigma Associated with Leprosy: A Qualitative Study from a Tertiary Care Centre in Tezpur area of Assam, India."},{"key":"pntd.0014711.ref028","doi-asserted-by":"crossref","unstructured":"Silva LMD\u00c1E, Barsaglini RA. \u201cA rea\u00e7\u00e3o \u00e9 o mais dif\u00edcil, \u00e9 pior que hansen\u00edase\u201d: contradi\u00e7\u00f5es e ambiguidades na experi\u00eancia de mulheres com rea\u00e7\u00f5es hans\u00eanicas. Physis Rev Sa\u00fade Coletiva; 28. 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Lived experiences of female patients aged 15-49 years undergoing treatment for multi-drug resistant tuberculosis (MDR-TB) in Lira Regional Referral Hospital, Uganda. 11. 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