{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,7]],"date-time":"2025-11-07T09:04:44Z","timestamp":1762506284317},"reference-count":24,"publisher":"Public Library of Science (PLoS)","issue":"3","license":[{"start":{"date-parts":[[2014,3,6]],"date-time":"2014-03-06T00:00:00Z","timestamp":1394064000000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"DOI":"10.1371\/journal.pone.0090937","type":"journal-article","created":{"date-parts":[[2014,3,6]],"date-time":"2014-03-06T21:57:17Z","timestamp":1394143037000},"page":"e90937","update-policy":"http:\/\/dx.doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":12,"title":["Impact of Pulmonary Arteriovenous Malformations on Respiratory\u2013Related Quality of Life in Patients with Hereditary Haemorrhagic Telangiectasia"],"prefix":"10.1371","volume":"9","author":[{"given":"Sandra","family":"Blivet","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Daniel","family":"Cobarzan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alain","family":"Beauchet","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mostafa","family":"El Hajjam","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pascal","family":"Lacombe","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thierry","family":"Chinet","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2014,3,6]]},"reference":[{"key":"ref1","doi-asserted-by":"crossref","first-page":"918","DOI":"10.1056\/NEJM199510053331407","article-title":"Hereditary hemorrhagic telangiectasia","volume":"333","author":"AE Guttmacher","year":"1995","journal-title":"N Engl J Med"},{"key":"ref2","doi-asserted-by":"crossref","first-page":"66","DOI":"10.1002\/(SICI)1096-8628(20000306)91:1<66::AID-AJMG12>3.0.CO;2-P","article-title":"Diagnostic criteria for hereditary hemorrhagic telangiectasia (Rendu-Osler-Weber syndrome)","volume":"91","author":"Cl Shovlin","year":"2000","journal-title":"Am J Med Genet"},{"key":"ref3","doi-asserted-by":"crossref","first-page":"97","DOI":"10.1136\/jmg.2005.030833","article-title":"Hereditary haemorrhagic telangiectasia: current views on genetics and mechanisms of disease","volume":"43","author":"SA Abdalla","year":"2006","journal-title":"J Med Genet"},{"key":"ref4","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1136\/jmg.2009.069013","article-title":"International Guidelines for the diagnosis and management of Hereditary Hemorrhagic Telangiectasia","volume":"48","author":"ME Faughnan","year":"2011","journal-title":"J Med Genet"},{"key":"ref5","doi-asserted-by":"crossref","first-page":"643","DOI":"10.1164\/ajrccm.158.2.9711041","article-title":"Pulmonary arteriovenous malformations","volume":"158","author":"JR Gossage","year":"1998","journal-title":"Am J Respir Crit Care Med"},{"key":"ref6","doi-asserted-by":"crossref","first-page":"1186","DOI":"10.1183\/09031936.00061308","article-title":"The pulmonary vascular complications of hereditary hemorrhagic telangiectasia","volume":"33","author":"ME Faughnan","year":"2009","journal-title":"Eur Respir J"},{"key":"ref7","doi-asserted-by":"crossref","first-page":"959","DOI":"10.1212\/WNL.55.7.959","article-title":"Cerebral ischemia and neurologic manifestations","volume":"55","author":"M Moussouttas","year":"2000","journal-title":"Neurology"},{"key":"ref8","doi-asserted-by":"crossref","first-page":"837","DOI":"10.2214\/AJR.10.5230","article-title":"PAVM embolisation: an update","volume":"195","author":"SO Trerotola","year":"2010","journal-title":"Am J Roentgenol"},{"key":"ref9","doi-asserted-by":"crossref","first-page":"1031","DOI":"10.1378\/chest.08-1794","article-title":"Diffuse Pulmonary Arteriovenous Malformations in Hereditary Hemorrhagic Telangiectasia: Long-term results of Embolization According to the Extent of Lung Involvement","volume":"135","author":"P Lacombe","year":"2009","journal-title":"Chest"},{"key":"ref10","doi-asserted-by":"crossref","first-page":"1715","DOI":"10.1007\/s11136-004-7865-y","article-title":"Health-related quality of life in a rare disease: Hereditary hemorrhagic telangiectasia (HHT) or Rendu\u2013Osler\u2013Weber Disease","volume":"13","author":"G Pasculli","year":"2004","journal-title":"Qual Life Res"},{"key":"ref11","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1177\/194589240501900112","article-title":"The SF-36 health status questionnaire in assessing patients with epistaxis secondary to hereditary hemorrhagic telangiectasia","volume":"19","author":"PA Lennox","year":"2005","journal-title":"Am J Rhinol"},{"key":"ref12","doi-asserted-by":"crossref","first-page":"726","DOI":"10.1016\/j.otohns.2006.12.019","article-title":"Health-related quality of life in hereditary hemorrhagic telangiectasia","volume":"136","author":"UW Geisthoff","year":"2007","journal-title":"Otolaryngol Head Neck Surg"},{"key":"ref13","doi-asserted-by":"crossref","first-page":"1269","DOI":"10.1002\/ajmg.a.35309","article-title":"Quality of life in patients with hereditary hemorrhagic telangiectasia in Norway: A population-based study","volume":"158A","author":"A\u00d8 Geirdal","year":"2012","journal-title":"Am J Med Genet Part A"},{"key":"ref14","doi-asserted-by":"crossref","first-page":"862","DOI":"10.1080\/00016480802468138","article-title":"Impact of genotype and mutation type on health-related quality of life in patients with hereditary hemorrhagic telangiectasia","volume":"129","author":"M Pfister","year":"2009","journal-title":"Acta Otolaryngol"},{"key":"ref15","doi-asserted-by":"crossref","first-page":"1321","DOI":"10.1164\/ajrccm\/145.6.1321","article-title":"A self-complete measure of health status for chronic airflow limitation. The St. George\u2019s Respiratory Questionnaire","volume":"145","author":"PW Jones","year":"1992","journal-title":"Am Rev Respir Dis"},{"key":"ref16","doi-asserted-by":"crossref","first-page":"398","DOI":"10.1183\/09031936.02.00063702","article-title":"Interpreting thresholds for a clinically significant change in health status in asthma and COPD","volume":"19","author":"PW Jones","year":"2002","journal-title":"Eur Respir J"},{"key":"ref17","first-page":"85","article-title":"The effect of N-acetylcysteine on epistaxis and quality of life in patients with HHT: A pilot study","volume":"47","author":"EM de Gussem","year":"2009","journal-title":"Rhinology"},{"key":"ref18","doi-asserted-by":"crossref","first-page":"830","DOI":"10.1007\/s00405-004-0911-0","article-title":"Management of epistaxis in hereditary hemorrhagic telangiectasia by Nd:YAG laser and quality of life assessment using the HR-QoL questionnaire","volume":"262","author":"I Karapantzos","year":"2005","journal-title":"Eur Arch Otorhinolaryngol"},{"key":"ref19","doi-asserted-by":"crossref","first-page":"849","DOI":"10.1378\/chest.09-0334","article-title":"Embolization for pulmonary arteriovenous malformation in hereditary haemorrhagic telangiectasia. A decision analysis","volume":"136","author":"S Gupta","year":"2009","journal-title":"Chest"},{"key":"ref20","doi-asserted-by":"crossref","first-page":"542","DOI":"10.1378\/chest.12-1599","article-title":"Grade of pulmonary right-to-left shunt on contrast echocardiography and cerebral complications. A striking association","volume":"144","author":"S Velthuis","year":"2013","journal-title":"Chest"},{"key":"ref21","doi-asserted-by":"crossref","first-page":"408","DOI":"10.1016\/j.rmed.2004.09.005","article-title":"Health-related quality of life in patients with idiopathic pulmonary fibrosis. What is the main contributing factor?","volume":"99","author":"O Nishiyama","year":"2005","journal-title":"Respir Med"},{"key":"ref22","doi-asserted-by":"crossref","first-page":"597","DOI":"10.1378\/chest.08-1260","article-title":"Evaluating Health-Related Quality of Life, Work Ability, and Disability in Pulmonary Arterial Hypertension: An Unmet Need","volume":"136","author":"M Rubenfire","year":"2009","journal-title":"Chest"},{"key":"ref23","doi-asserted-by":"crossref","first-page":"623","DOI":"10.1378\/chest.12-0014","article-title":"Validity and reliability of the St George\u2019s respiratory questionnaire in assessing health status in patients with chronic pulmonary aspergillosis","volume":"144","author":"K Al-Shair","year":"2013","journal-title":"Chest"},{"key":"ref24","first-page":"43","article-title":"Validation du questionnaire St Georges pour mesurer la qualit\u00e9 de vie chez les insuffisants respiratoires chroniques","volume":"13","author":"Ch Bouchet","year":"1996","journal-title":"Rev Mal Resp"}],"container-title":["PLoS ONE"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/dx.plos.org\/10.1371\/journal.pone.0090937","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,5,9]],"date-time":"2020-05-09T01:49:52Z","timestamp":1588988992000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0090937"}},"subtitle":[],"editor":[{"given":"Klaus","family":"Brusgaard","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2014,3,6]]},"references-count":24,"journal-issue":{"issue":"3","published-online":{"date-parts":[[2014,3,6]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0090937","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,3,6]]}}}