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Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisability using multiple methods including systematic review, qualitative research, Delphi survey and consensus meeting. 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Convention on the Rights of the Child, 20 November 1989, United Nations, Treaty Series, vol. 1577, p. 3, <ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"uri\" xlink:href=\"http:\/\/www.refworld.org\/docid\/3ae6b38f0.html\" xlink:type=\"simple\">http:\/\/www.refworld.org\/docid\/3ae6b38f0.html<\/ext-link> [accessed 7 December 2016]"},{"issue":"3","key":"ref44","doi-asserted-by":"crossref","first-page":"174","DOI":"10.1177\/135581969900400310","article-title":"A review of the use of health status measures in economic evaluation","volume":"4","author":"J Brazier","year":"1999","journal-title":"Journal of Health Services Research and Policy"},{"key":"ref45","unstructured":"Scalone L, Carlo Tomasetto C, Broccoli S, Cristiani M, Cortesi P, Borghetti F, et al. A investigation of suitability of EQ-5D-Y proxy version to assess health of children aged from 4 years. Proceedings of the 27th Scientific Plenary Meeting of the EuroQol Group; September 2010; Athens, Greece. Rotterdam (Netherlands): EuroQoL; 2010."},{"issue":"6","key":"ref46","doi-asserted-by":"crossref","first-page":"875","DOI":"10.1007\/s11136-010-9648-y","article-title":"Development of the EQ-5D-Y: a child-friendly version of the EQ-5D","volume":"19","author":"N Wille","year":"2010","journal-title":"Quality of Life Research"},{"issue":"7","key":"ref47","doi-asserted-by":"crossref","first-page":"1717","DOI":"10.1007\/s11136-012-0322-4","article-title":"Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L across eight patient groups: a multi-country study","volume":"22","author":"MF Janssen","year":"2013","journal-title":"Quality of Life Research"},{"key":"ref48","doi-asserted-by":"crossref","first-page":"1446","DOI":"10.1136\/bmj.317.7170.1446","article-title":"Theories of disability in health practice and research","volume":"317","author":"M 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