{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T11:47:34Z","timestamp":1791632854509,"version":"4.3.4"},"reference-count":40,"publisher":"Public Library of Science (PLoS)","issue":"2","license":[{"start":{"date-parts":[[2018,2,5]],"date-time":"2018-02-05T00:00:00Z","timestamp":1517788800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"DOI":"10.1371\/journal.pone.0191960","type":"journal-article","created":{"date-parts":[[2018,2,5]],"date-time":"2018-02-05T13:31:20Z","timestamp":1517837480000},"page":"e0191960","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":30,"title":["Quality of life as assessed by adults with cerebral palsy"],"prefix":"10.1371","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1588-9362","authenticated-orcid":true,"given":"Alba","family":"Maestro-Gonzalez","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M. Cruz","family":"Bilbao-Leon","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Zuazua-Rico","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jose M.","family":"Fernandez-Carreira","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ricardo F.","family":"Baldonedo-Cernuda","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M. Pilar","family":"Mosteiro-Diaz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2018,2,5]]},"reference":[{"key":"ref1","first-page":"7","article-title":"On the influence of abnormal parturition, difficult labours, premature birth, and asphyxia neonatorum, on the mental and physical condition of the child, especially in relation to deformities","volume":"46","author":"WJ Little","year":"1966","journal-title":"Clin Orthop Relat Res"},{"key":"ref2","first-page":"8","article-title":"A report: the definition and classification of cerebral palsy April 2006","volume":"109","author":"P Rosenbaum","year":"2007","journal-title":"Dev Med Child Neurol"},{"issue":"9969","key":"ref3","doi-asserted-by":"crossref","first-page":"705","DOI":"10.1016\/S0140-6736(14)61229-0","article-title":"Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis","volume":"385","author":"A Colver","year":"2015","journal-title":"Lancet"},{"key":"ref4","first-page":"572","article-title":"Proposed definition and classification of cerebral palsy, April 2005","volume":"47","author":"M Bax","year":"2005","journal-title":"Dev Med Child Neurol"},{"key":"ref5","article-title":"Quality of life for people with intellectual and other developmental disabilities: applications across individuals, organizations, communities, and systems","author":"RL Schalock","year":"2007"},{"issue":"9","key":"ref6","doi-asserted-by":"crossref","first-page":"633","DOI":"10.1111\/j.1469-8749.2002.tb00848.x","article-title":"Prevalence and characteristics of children with cerebral palsy in Europe","volume":"44","year":"2002","journal-title":"Dev Med Child Neurol"},{"issue":"4","key":"ref7","doi-asserted-by":"crossref","first-page":"183","DOI":"10.1080\/09638280500158422","article-title":"The epidemiology of cerebral palsy: incidence, impairments and risk factors","volume":"28","author":"E Odding","year":"2006","journal-title":"Disabil Rehabil"},{"issue":"9924","key":"ref8","doi-asserted-by":"crossref","first-page":"124040","DOI":"10.1016\/S0140-6736(13)61835-8","article-title":"Cerebral palsy","volume":"383","author":"A Colver","year":"2014","journal-title":"Lancet"},{"key":"ref9","first-page":"123","article-title":"Quality of life: Conceptualization and measurement. Vol. 1","author":"R Schalock","year":"1996"},{"issue":"5","key":"ref10","doi-asserted-by":"crossref","first-page":"389","DOI":"10.1111\/j.1469-8749.2008.03169.x","article-title":"Subjective well-being and satisfaction with life in adults with spastic cerebral palsy: a pilot study of a randomized sample","volume":"51","author":"H Hergenr\u00f6der","year":"2009","journal-title":"Dev Med Child Neurol"},{"issue":"6","key":"ref11","doi-asserted-by":"crossref","first-page":"576","DOI":"10.1111\/j.1469-8749.2010.03620.x","article-title":"Importance of peers and dating in the development of romantic relationships and sexual activity of young adults with cerebral palsy","volume":"52","author":"DJHG Wiegerink","year":"2010","journal-title":"Dev Med Child Neurol"},{"issue":"20","key":"ref12","doi-asserted-by":"crossref","first-page":"1658","DOI":"10.3109\/09638281003649904","article-title":"Relationship between quality of life and functional status of young adults and adults with cerebral palsy","volume":"32","author":"T Tarsuslu","year":"2010","journal-title":"Disabil Rehabil"},{"issue":"3","key":"ref13","doi-asserted-by":"crossref","first-page":"374","DOI":"10.1111\/cch.12196","article-title":"A retrospective study of past graduates of a residential life skills program for youth with physical disabilities","volume":"41","author":"S Kingsnorth","year":"2015","journal-title":"Child Care Health Dev"},{"issue":"9","key":"ref14","doi-asserted-by":"crossref","first-page":"e108413","DOI":"10.1371\/journal.pone.0108413","article-title":"Influence of the environment on participation in social roles for young adults with down syndrome","volume":"9","author":"KR Foley","year":"2014","journal-title":"PloS One"},{"key":"ref15","article-title":"Teaching self-determination to students with disabilities: basic skills for successful transition","author":"ML Wehmeyer","year":"1998"},{"issue":"5","key":"ref16","doi-asserted-by":"crossref","first-page":"557","DOI":"10.1111\/j.1365-2648.2007.04470.x","article-title":"Lifestyle limitations of children and young people with severe cerebral palsy: a population study protocol","volume":"61","author":"C Donnelly","year":"2008","journal-title":"J Adv Nurs"},{"issue":"2","key":"ref17","doi-asserted-by":"crossref","first-page":"162","DOI":"10.1111\/j.1365-2648.2003.02976.x","article-title":"The International Classification of Functioning, Disability and Health (ICF) and nursing","volume":"46","author":"PM Kearney","year":"2004","journal-title":"J Adv Nurs"},{"issue":"2","key":"ref18","doi-asserted-by":"crossref","first-page":"e0146225","DOI":"10.1371\/journal.pone.0146225","article-title":"Measuring the quality of life of visually impaired children. First stage psychometric evaluation of the Novel VQoL_CYP Instrument","volume":"11","author":"V Tadic","year":"2016","journal-title":"PloS One"},{"issue":"2","key":"ref19","doi-asserted-by":"crossref","first-page":"e0115643","DOI":"10.1371\/journal.pone.0115643","article-title":"Psychometric properties of the Autoquestionnaire Qualite de Vie Enfant Image (AUQEI) applied to children with cerebral palsy","volume":"10","author":"W Barbosa-Resende","year":"2015","journal-title":"PloS One"},{"issue":"13","key":"ref20","doi-asserted-by":"crossref","first-page":"1109","DOI":"10.3109\/09638280903391120","article-title":"Do the self-concept and quality of life decrease in CP patients? Focussing on the predictors of self-concept and quality of life","volume":"32","author":"F Soyupek","year":"2010","journal-title":"Disabil Rehabil"},{"issue":"11","key":"ref21","doi-asserted-by":"crossref","first-page":"e111498","DOI":"10.1371\/journal.pone.0111498","article-title":"Impact of multimorbidity on disability and quality of life in the Spanish older population","volume":"9","author":"N Garin","year":"2014","journal-title":"PloS One"},{"issue":"6","key":"ref22","doi-asserted-by":"crossref","first-page":"792","DOI":"10.1097\/01.bpo.0000164870.26632.6b","article-title":"Assessment of health status in patients with cerebral palsy: what is the role of quality-of-life measures?","volume":"25","author":"MG Vitale","year":"2005","journal-title":"J Pediatr Orthop"},{"issue":"3","key":"ref23","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1111\/j.1469-8749.2008.03194.x","article-title":"Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents","volume":"51","author":"E Davis","year":"2009","journal-title":"Dev Med Child Neurol"},{"issue":"7","key":"ref24","doi-asserted-by":"crossref","first-page":"762","DOI":"10.1111\/j.1365-2648.1990.tb01904.x","article-title":"Long-term follow-up study of cerebral palsy children and coping behaviour of parents","volume":"15","author":"T Hirose","year":"1990","journal-title":"J Adv Nurs"},{"issue":"11","key":"ref25","doi-asserted-by":"crossref","first-page":"2311","DOI":"10.1111\/j.1365-2648.2009.05089.x","article-title":"The health of children with cerebral palsy and stress in their parents","volume":"65","author":"J Parkes","year":"2009","journal-title":"J Adv Nurs"},{"key":"ref26","article-title":"WAIS-IV: Manual de administraci\u00f3n y correcci\u00f3n","author":"D Wechsler","year":"2013"},{"issue":"1","key":"ref27","first-page":"105","article-title":"Development of an objective instrument to assess quality of life in social services: Reliability and validity in Spain","volume":"10","author":"B Arias","year":"2010","journal-title":"Int J Clin Health Psychol"},{"key":"ref28","article-title":"C\u00f3mo mejorar la calidad de vida de las personas con discapacidad: instrumentos y estrategias de evaluaci\u00f3n [How to improve disabled people quality of life: instruments and evaluation strategies]","author":"M\u00c1 Verdugo Alonso","year":"2009"},{"issue":"1","key":"ref29","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1016\/j.apmr.2009.08.152","article-title":"The health and quality of life outcomes among youth and young adults with cerebral palsy","volume":"91","author":"NL Young","year":"2010","journal-title":"Arch Phys Med Rehabil"},{"key":"ref30","unstructured":"Cerebral Palsy Alliance. GMFCS E&R (Gross Motor Function Classification System\u2013Extended and Revised). 2017. Available from: https:\/\/cerebralpalsy.org.au\/what-is-cerebral-palsy\/severity-of-cerebral-palsy\/gross-motor-function-classification-system\/<\/ext-link>"},{"issue":"10","key":"ref31","doi-asserted-by":"crossref","first-page":"744","DOI":"10.1111\/j.1469-8749.2008.03089.x","article-title":"Content validity of the expanded and revised Gross Motor Function Classification System","volume":"50","author":"RJ Palisano","year":"2008","journal-title":"Dev Med Child Neurol"},{"key":"ref32","doi-asserted-by":"crossref","first-page":"132","DOI":"10.1186\/s12955-014-0132-1","article-title":"Health-related quality of life of ambulant adults with cerebral palsy and its association with falls and mobility decline: a preliminary cross-sectional study","volume":"12","author":"PE Morgan","year":"2014","journal-title":"Health Qual Life Outcomes"},{"issue":"5","key":"ref33","doi-asserted-by":"crossref","first-page":"382","DOI":"10.2340\/16501977-0787","article-title":"Physical and mental components of health-related quality of life and musculoskeletal pain sites over seven years in adults with spastic cerebral palsy","volume":"43","author":"A Opheim","year":"2011","journal-title":"J Rehabil Med"},{"issue":"2","key":"ref34","doi-asserted-by":"crossref","first-page":"76","DOI":"10.1017\/S0012162201","article-title":"Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion","volume":"43","author":"C Andersson","year":"2001","journal-title":"Dev Med Child Neurol"},{"issue":"2","key":"ref35","first-page":"280","article-title":"Family and peer issues among adolescents with spina bifida and cerebral palsy","volume":"88","author":"RW Blum","year":"1991","journal-title":"Pediatrics"},{"issue":"1","key":"ref36","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1191\/026921501670159475","article-title":"Functional level of young adults with cerebral palsy","volume":"15","author":"L van der Dussen","year":"2001","journal-title":"Clin Rehabil"},{"issue":"2","key":"ref37","doi-asserted-by":"crossref","first-page":"112","DOI":"10.2340\/16501977-0137","article-title":"Social, intimate and sexual relationships of adolescents with cerebral palsy compared with able-bodied age-mates","volume":"40","author":"DJHG Wiegerink","year":"2008","journal-title":"J Rehabil Med"},{"issue":"9","key":"ref38","doi-asserted-by":"crossref","first-page":"1423","DOI":"10.1016\/j.apmr.2010.06.011","article-title":"Development of romantic relationships and sexual activity in young adults with cerebral palsy: a longitudinal study","volume":"91","author":"DJ Wiegerink","year":"2010","journal-title":"Arch Phys Med Rehabil"},{"issue":"2","key":"ref39","doi-asserted-by":"crossref","first-page":"136","DOI":"10.1097\/WCO.0b013e3282f6a499","article-title":"Health and well being of adults with cerebral palsy","volume":"21","author":"GS Liptak","year":"2008","journal-title":"Curr Opin Neurol"},{"issue":"2","key":"ref40","doi-asserted-by":"crossref","first-page":"327","DOI":"10.1016\/j.ejpn.2016.09.003","article-title":"The relationship of dystonia and choreoathetosis with activity, participation and quality of life in children and youth with dyskinetic cerebral palsy","volume":"21","author":"E Monbaliu","year":"2017","journal-title":"Eur J Paediatr Neurol"}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/dx.plos.org\/10.1371\/journal.pone.0191960","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,6,30]],"date-time":"2024-06-30T20:01:54Z","timestamp":1719777714000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0191960"}},"subtitle":[],"editor":[{"given":"Karen","family":"Lidzba","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2018,2,5]]},"references-count":40,"journal-issue":{"issue":"2","published-online":{"date-parts":[[2018,2,5]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0191960","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2018,2,5]]}}}