{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T01:53:19Z","timestamp":1760147599652,"version":"3.37.3"},"reference-count":26,"publisher":"Public Library of Science (PLoS)","issue":"11","license":[{"start":{"date-parts":[[2018,11,15]],"date-time":"2018-11-15T00:00:00Z","timestamp":1542240000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100008272","name":"Novartis Pharmaceuticals Corporation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"DOI":"10.1371\/journal.pone.0204646","type":"journal-article","created":{"date-parts":[[2018,11,15]],"date-time":"2018-11-15T18:49:32Z","timestamp":1542307772000},"page":"e0204646","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":11,"title":["Observational study of characteristics and clinical outcomes of Dutch patients with tuberous sclerosis complex and renal angiomyolipoma treated with everolimus"],"prefix":"10.1371","volume":"13","author":[{"given":"Bernard A.","family":"Zonnenberg","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maureen P.","family":"Neary","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mei Sheng","family":"Duh","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Raluca","family":"Ionescu-Ittu","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jonathan","family":"Fortier","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Francis","family":"Vekeman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2018,11,15]]},"reference":[{"issue":"13","key":"ref1","doi-asserted-by":"crossref","first-page":"1345","DOI":"10.1056\/NEJMra055323","article-title":"The tuberous sclerosis complex","volume":"355","author":"PB Crino","year":"2006","journal-title":"The New England Journal of Medicine"},{"issue":"10","key":"ref2","doi-asserted-by":"crossref","first-page":"1777","DOI":"10.1038\/sj.ki.5001853","article-title":"Renal manifestations of tuberous sclerosis complex: Incidence, prognosis, and predictive factors","volume":"70","author":"SK Rakowski","year":"2006","journal-title":"Kidney International"},{"issue":"1","key":"ref3","doi-asserted-by":"crossref","first-page":"141","DOI":"10.1016\/S0022-5347(01)63072-6","article-title":"Renal lesion growth in children with tuberous sclerosis complex","volume":"160","author":"DH Ewalt","year":"1998","journal-title":"The Journal of Urology"},{"issue":"6","key":"ref4","doi-asserted-by":"crossref","first-page":"853","DOI":"10.1111\/j.1464-410X.2004.05046.x","article-title":"An epidemiological study of renal pathology in tuberous sclerosis complex","volume":"94","author":"FJ O'Callaghan","year":"2004","journal-title":"BJU International"},{"issue":"2","key":"ref5","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1148\/radiol.2252011584","article-title":"Tuberous sclerosis complex: renal imaging findings","volume":"225","author":"KA Casper","year":"2002","journal-title":"Radiology"},{"issue":"10","key":"ref6","doi-asserted-by":"crossref","first-page":"1065","DOI":"10.1038\/sj.ejhg.5201625","article-title":"Tuberous sclerosis","volume":"14","author":"JR Yates","year":"2006","journal-title":"European Journal of Human Genetics: EJHG"},{"issue":"4","key":"ref7","first-page":"216","article-title":"Concurrent bilateral renal angiomyolipoma and renal cell carcinoma in a patient with tuberous sclerosis complex","volume":"11","author":"A Khallouk","year":"2009","journal-title":"Rev Urol"},{"issue":"3","key":"ref8","doi-asserted-by":"crossref","first-page":"225","DOI":"10.1016\/j.diii.2013.01.003","article-title":"Kidney damage due to tuberous sclerosis complex: Management recommendations","volume":"94","author":"O Rouvi\u00e8re","year":"2013","journal-title":"Diagn Interv Imaging"},{"issue":"5","key":"ref9","doi-asserted-by":"crossref","first-page":"728","DOI":"10.3349\/ymj.2010.51.5.728","article-title":"Trends of presentation and clinical outcome of treated renal angiomyolipoma","volume":"51","author":"KC Koo","year":"2010","journal-title":"Yonsei Med J"},{"issue":"1","key":"ref10","doi-asserted-by":"crossref","first-page":"95","DOI":"10.1053\/j.ajkd.2005.09.028","article-title":"Embolization of renal angiomyolipomata in patients with tuberous sclerosis complex","volume":"47","author":"JM Williams","year":"2006","journal-title":"American Journal of Kidney Diseases: The Official Journal of the National Kidney Foundation"},{"key":"ref11","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1186\/1824-7288-39-57","article-title":"Is mTOR inhibition a systemic treatment for tuberous sclerosis?","volume":"39","author":"R Moavero","year":"2013","journal-title":"Ital J Pediatr"},{"issue":"12","key":"ref12","doi-asserted-by":"crossref","first-page":"1550","DOI":"10.1093\/neuonc\/nov152","article-title":"Differentiating the mTOR inhibitors everolimus and sirolimus in the treatment of tuberous sclerosis complex","volume":"17","author":"JP MacKeigan","year":"2015","journal-title":"Neuro-oncology"},{"issue":"4","key":"ref13","doi-asserted-by":"crossref","first-page":"404","DOI":"10.2174\/157015912804499537","article-title":"mTOR Inhibitors in Tuberous Sclerosis Complex","volume":"10","author":"P Curatolo","year":"2012","journal-title":"Curr Neuropharmacol"},{"key":"ref14","unstructured":"Food and Drug Administration (FDA) [Internet]. Everolimus; c2017 [cited 2017 Dec 29]. Available from: <ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"uri\" xlink:href=\"http:\/\/www.fda.gov\/Drugs\/InformationOnDrugs\/ApprovedDrugs\/ucm302081.htm\" xlink:type=\"simple\">http:\/\/www.fda.gov\/Drugs\/InformationOnDrugs\/ApprovedDrugs\/ucm302081.htm<\/ext-link>."},{"key":"ref15","unstructured":"Tuberous Sclerosis Association (TSA) [Internet]. Everolimus granted European Licence for renal AML; c2017 [cited 2017 Dec 29]. Available from: <ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"uri\" xlink:href=\"http:\/\/www.tuberous-sclerosis.org\/tsa-news\/everolimus-granted-european-licence-for-renal-aml\" xlink:type=\"simple\">http:\/\/www.tuberous-sclerosis.org\/tsa-news\/everolimus-granted-european-licence-for-renal-aml<\/ext-link>."},{"issue":"9869","key":"ref16","doi-asserted-by":"crossref","first-page":"817","DOI":"10.1016\/S0140-6736(12)61767-X","article-title":"Everolimus for angiomyolipoma associated with tuberous sclerosis complex or sporadic lymphangioleiomyomatosis (EXIST-2): a multicentre, randomised, double-blind, placebo-controlled trial","volume":"381","author":"JJ Bissler","year":"2013","journal-title":"Lancet (London, England)"},{"issue":"12","key":"ref17","doi-asserted-by":"crossref","first-page":"624","DOI":"10.1177\/088307389801301206","article-title":"Tuberous sclerosis complex consensus conference: revised clinical diagnostic criteria","volume":"13","author":"ES Roach","year":"1998","journal-title":"J Child Neurol"},{"issue":"10","key":"ref18","doi-asserted-by":"crossref","first-page":"3176","DOI":"10.1093\/ndt\/gfr003","article-title":"Introduction of the CKD-EPI equation to estimate glomerular filtration rate in a Caucasian population","volume":"26","author":"JA van den Brand","year":"2011","journal-title":"Nephrology, Dialysis, Transplantation: Official Publication of the European Dialysis and Transplant Association\u2014European Renal Association"},{"key":"ref19","article-title":"Outcomes of everolimus treatment for renal angiomyolipoma associated with tuberous sclerosis complex: A single institution experience in Japan","author":"T Hatano","year":"2016","journal-title":"International Journal of Urology: Official Journal of the Japanese Urological Association"},{"issue":"8","key":"ref20","doi-asserted-by":"crossref","first-page":"2322","DOI":"10.1093\/ndt\/gfm192","article-title":"A comparative study of methods of estimating kidney length in kidney transplantation donors","volume":"22","author":"KY Kang","year":"2007","journal-title":"Nephrology, Dialysis, Transplantation: Official Publication of the European Dialysis and Transplant Association\u2014European Renal Association"},{"issue":"1","key":"ref21","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1373\/clinchem.2005.0525144","article-title":"Recommendations for improving serum creatinine measurement: a report from the Laboratory Working Group of the National Kidney Disease Education Program","volume":"52","author":"GL Myers","year":"2006","journal-title":"Clinical Chemistry"},{"key":"ref22","doi-asserted-by":"crossref","first-page":"9","DOI":"10.2147\/IJNRD.S4191","article-title":"The use of everolimus in renal-transplant patients","volume":"2","author":"J Pascual","year":"2009","journal-title":"International Journal of Nephrology and Renovascular Disease"},{"issue":"5","key":"ref23","doi-asserted-by":"crossref","first-page":"e64558","DOI":"10.1371\/journal.pone.0064558","article-title":"Decreased microRNA is involved in the vascular remodeling abnormalities in chronic kidney disease (CKD)","volume":"8","author":"NX Chen","year":"2013","journal-title":"PloS one"},{"issue":"1024","key":"ref24","doi-asserted-by":"crossref","first-page":"20120633","DOI":"10.1259\/bjr.20120633","article-title":"Patterns of renal angiomyolipoma regression post embolisation on medium- to long-term follow-up","volume":"86","author":"K Patatas","year":"2013","journal-title":"The British Journal of Radiology"},{"issue":"6","key":"ref25","doi-asserted-by":"crossref","first-page":"1203","DOI":"10.1093\/ndt\/gfu013","article-title":"The effect of everolimus on renal angiomyolipoma in patients with tuberous sclerosis complex being treated for subependymal giant cell astrocytoma: subgroup results from the randomized, placebo-controlled, Phase 3 trial EXIST-1","volume":"29","author":"JC Kingswood","year":"2014","journal-title":"Nephrology, Dialysis, Transplantation: Official Publication of the European Dialysis and Transplant Association\u2014European Renal Association"},{"issue":"2","key":"ref26","first-page":"216","article-title":"Is suppression of cyst growth in PKD enough to preserve renal function?","volume":"2","author":"C Deltas","year":"2013","journal-title":"JAK-STAT"}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/dx.plos.org\/10.1371\/journal.pone.0204646","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,5,9]],"date-time":"2020-05-09T15:21:25Z","timestamp":1589037685000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0204646"}},"subtitle":[],"editor":[{"given":"Emilio","family":"Russo","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2018,11,15]]},"references-count":26,"journal-issue":{"issue":"11","published-online":{"date-parts":[[2018,11,15]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0204646","relation":{},"ISSN":["1932-6203"],"issn-type":[{"type":"electronic","value":"1932-6203"}],"subject":[],"published":{"date-parts":[[2018,11,15]]}}}