{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T02:53:06Z","timestamp":1790650386956,"version":"4.1.0"},"reference-count":60,"publisher":"Public Library of Science (PLoS)","issue":"6","license":[{"start":{"date-parts":[[2020,6,5]],"date-time":"2020-06-05T00:00:00Z","timestamp":1591315200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100009685","name":"Parkinson\u2019s Victoria","doi-asserted-by":"publisher","award":["Argyrou Family Fellowship"],"award-info":[{"award-number":["Argyrou Family Fellowship"]}],"id":[{"id":"10.13039\/100009685","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001215","name":"La Trobe University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001215","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"DOI":"10.1371\/journal.pone.0234265","type":"journal-article","created":{"date-parts":[[2020,6,5]],"date-time":"2020-06-05T17:38:09Z","timestamp":1591378689000},"page":"e0234265","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":8,"title":["Patient and care partner views on exercise and structured physical activity for people with Progressive Supranuclear Palsy"],"prefix":"10.1371","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6325-2705","authenticated-orcid":true,"given":"Susan C.","family":"Slade","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christopher","family":"Bruce","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer L.","family":"McGinley","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bastiaan R.","family":"Bloem","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0114-4175","authenticated-orcid":true,"given":"Meg E.","family":"Morris","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2020,6,5]]},"reference":[{"issue":"4","key":"pone.0234265.ref001","doi-asserted-by":"crossref","first-page":"401","DOI":"10.1097\/WCO.0b013e3283632da6","article-title":"Atypical Parkinsonism: an update","volume":"26","author":"M Stamelou","year":"2013","journal-title":"Current Opinion Neurol"},{"issue":"9","key":"pone.0234265.ref002","doi-asserted-by":"crossref","first-page":"1284","DOI":"10.1002\/mds.27788","article-title":"One decade ago, one decade ahead in Progressive Supranuclear Palsy","volume":"34","author":"M Stamelou","year":"2019","journal-title":"Mov Disord"},{"issue":"8","key":"pone.0234265.ref003","doi-asserted-by":"crossref","first-page":"1144","DOI":"10.1002\/mds.27619","article-title":"Sensitivity and specificity of diagnostic criteria for progressive supranuclear palsy","volume":"34","author":"F Ali","year":"2019","journal-title":"Mov Disord"},{"issue":"8","key":"pone.0234265.ref004","doi-asserted-by":"crossref","first-page":"1228","DOI":"10.1002\/mds.27666","article-title":"How to apply the movement disorder society criteria for diagnosis of Progressive Supranuclear Palsy","volume":"34","author":"MJ Grimm","year":"2019","journal-title":"Mov Disord"},{"issue":"6","key":"pone.0234265.ref005","doi-asserted-by":"crossref","first-page":"853","DOI":"10.1002\/mds.26987","article-title":"Clinical diagnosis of progressive supranuclear palsy\u2014the Movement Disorder Society Criteria","volume":"32","author":"for the Movement Disorder Society-endorsed PSP Study Group","year":"2017","journal-title":"Mov Disord"},{"issue":"6","key":"pone.0234265.ref006","doi-asserted-by":"crossref","first-page":"1578","DOI":"10.1093\/brain\/awq115","article-title":"Rational therapeutic approaches to progressive supranuclear palsy","volume":"133","author":"M Stamelou","year":"2010","journal-title":"Brain"},{"issue":"3","key":"pone.0234265.ref007","doi-asserted-by":"crossref","first-page":"253","DOI":"10.1517\/21678707.2015.1018180","article-title":"Pathophysiology, genetics, clinical features, diagnosis and therapeutic trials in progressive supranuclear palsy","volume":"3","author":"B Bluett","year":"2015","journal-title":"Expert Opin Orphan Drugs"},{"issue":"7","key":"pone.0234265.ref008","doi-asserted-by":"crossref","first-page":"552","DOI":"10.1016\/S1474-4422(17)30157-6","article-title":"Advances in progressive supranuclear palsy: new diagnostic criteria, biomarkers, and therapeutic approaches","volume":"16","author":"AL Boxer","year":"2017","journal-title":"Lancet Neurol"},{"key":"pone.0234265.ref009","article-title":"Exercise for osteoarthritis of the hip","volume":"4","author":"M Fransen","year":"2014","journal-title":"Cochrane Database Syst Rev"},{"key":"pone.0234265.ref010","article-title":"Exercise for osteoarthritis of the knee","volume":"1","author":"M Fransen","year":"2015","journal-title":"Cochrane Database Syst Rev"},{"key":"pone.0234265.ref011","doi-asserted-by":"crossref","DOI":"10.1002\/14651858.CD012264","article-title":"Exercise-based cardiac rehabilitation for coronary heart disease","volume":"1","author":"L Anderson","year":"2016","journal-title":"Cochrane Database Syst Rev"},{"issue":"1","key":"pone.0234265.ref012","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1177\/0269215519877235","article-title":"Exercise and physical activity for people with Progressive Supranuclear Palsy: a systematic review","volume":"34","author":"SC Slade","year":"2020","journal-title":"Clinical Rehabil"},{"key":"pone.0234265.ref013","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1186\/s12883-019-1539-4","article-title":"Exercise and Progressive Supranuclear Palsy: the need for explicit exercise reporting","volume":"19","author":"SC Slade","year":"2019","journal-title":"BMC Neurol"},{"key":"pone.0234265.ref014","first-page":"41","article-title":"Physiotherapy management for progressive supra- nuclear palsy","volume":"2","author":"C Ashok","year":"2013","journal-title":"Internat J Physiother Res"},{"issue":"11","key":"pone.0234265.ref015","doi-asserted-by":"crossref","first-page":"1437","DOI":"10.1007\/s00702-019-02065-1","article-title":"Characteristics and progression of cognitive deficits in Progressive Supranuclear Palsy versus Multiple System Atrophy and Parkinson\u2019s disease","volume":"126","author":"E Fiorenzato","year":"2019","journal-title":"J Neural Trans"},{"issue":"6","key":"pone.0234265.ref016","doi-asserted-by":"crossref","first-page":"636","DOI":"10.1016\/j.pmrj.2017.12.011","article-title":"The role of rehabilitation in patients with Progressive Supranuclear Palsy: A narrative review","volume":"10","author":"D Intiso","year":"2018","journal-title":"PMR"},{"issue":"6","key":"pone.0234265.ref017","doi-asserted-by":"crossref","first-page":"148","DOI":"10.11124\/JBISRIR-2016-2002352","article-title":"Effectiveness of allied health therapy in the symptomatic management of progressive supranuclear palsy: a systematic review","volume":"14","author":"E Tilley","year":"2016","journal-title":"JBI Database System Rev Implement Rep"},{"issue":"3","key":"pone.0234265.ref018","doi-asserted-by":"crossref","first-page":"177","DOI":"10.14802\/jmd.19015","article-title":"Clinical milestones preceding the diagnosis of Multiple System Atrophy and Progressive Supranuclear Palsy: a retrospective cohort study","volume":"12","author":"L Wiblin","year":"2019","journal-title":"J Mov Disord"},{"key":"pone.0234265.ref019","doi-asserted-by":"crossref","first-page":"551","DOI":"10.1093\/brain\/119.2.551","article-title":"Stride length regulation in Parkinson\u2019s disease: Normalisation strategies and underlying mechanisms","volume":"119","author":"ME Morris","year":"1996","journal-title":"Brain"},{"issue":"8","key":"pone.0234265.ref020","doi-asserted-by":"crossref","first-page":"777","DOI":"10.1177\/1545968314565511","article-title":"A randomized controlled trial to reduce falls and improve mobility in people with Parkinson\u2019s disease","volume":"29","author":"ME Morris","year":"2015","journal-title":"Neurorehabil Neural Repair"},{"issue":"2","key":"pone.0234265.ref021","doi-asserted-by":"crossref","first-page":"134","DOI":"10.1136\/jnnp.200X.097923","article-title":"Cueing training in the home improves gait-related mobility in Parkinson's disease: the RESCUE trial","volume":"78","author":"A Nieuwboer","year":"2007","journal-title":"J Neurol Neurosurg Psych"},{"issue":"2","key":"pone.0234265.ref022","doi-asserted-by":"crossref","first-page":"94","DOI":"10.1016\/j.jphys.2017.02.015","article-title":"A home program of strength training, movement strategy training and education did not prevent falls in people with Parkinson's disease: a randomised trial","volume":"63","author":"ME Morris","year":"2017","journal-title":"J Physiother"},{"issue":"3","key":"pone.0234265.ref023","doi-asserted-by":"crossref","first-page":"304","DOI":"10.1212\/WNL.0000000000001155","article-title":"Exercise for falls prevention in Parkinson disease: a randomized controlled trial","volume":"84","author":"CG Canning","year":"2015","journal-title":"Neurol"},{"key":"pone.0234265.ref024","doi-asserted-by":"crossref","first-page":"631","DOI":"10.1016\/j.apmr.2016.12.006","article-title":"Aquatic Exercise Therapy for People with Parkinson disease","volume":"98","author":"LM Carroll","year":"2017","journal-title":"Arch Phys Med Rehabil"},{"issue":"11","key":"pone.0234265.ref025","doi-asserted-by":"crossref","first-page":"689","DOI":"10.1038\/nrneurol.2017.128","article-title":"Long-term effects of exercise and physical therapy in people with Parkinson disease","volume":"13","author":"MK Mak","year":"2017","journal-title":"Nat Rev Neurol"},{"key":"pone.0234265.ref026","doi-asserted-by":"crossref","first-page":"384","DOI":"10.1016\/j.gaitpost.2018.03.041","article-title":"Treadmill walking reduces pre-frontal activation in patients with Parkinson's disease","volume":"62","author":"PC Thumm","year":"2018","journal-title":"Gait Posture"},{"issue":"2","key":"pone.0234265.ref027","doi-asserted-by":"crossref","first-page":"219","DOI":"10.1001\/jamaneurol.2017.3517","article-title":"Effect of high-intensity treadmill exercise on motor symptoms in patients with de novo Parkinson disease: a phase 2 randomized clinical trial","volume":"75","author":"M Schenkman","year":"2018","journal-title":"JAMA Neurol"},{"issue":"11","key":"pone.0234265.ref028","doi-asserted-by":"crossref","first-page":"998","DOI":"10.1016\/S1474-4422(19)30285-6","article-title":"Effectiveness of home-based and remotely supervised aerobic exercise in Parkinson's disease: a double-blind, randomised controlled trial","volume":"18","author":"NM van der Kolk","year":"2019","journal-title":"Lancet Neurol"},{"key":"pone.0234265.ref029","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.ctim.2017.07.006","article-title":"Dance is more than therapy: results from a consumer forum on therapeutic dancing classes for Parkinson\u2019s","volume":"34","author":"PA Rocha","year":"2017","journal-title":"Complem Ther Med J"},{"issue":"9","key":"pone.0234265.ref030","doi-asserted-by":"crossref","first-page":"1744","DOI":"10.1016\/j.apmr.2017.02.017","article-title":"Dancing for Parkinson disease: a randomized trial of Irish set dancing compared with usual care","volume":"98","author":"J Shanahan","year":"2017","journal-title":"Arch Phys Med Rehabil"},{"key":"pone.0234265.ref031","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1136\/bmj.312.7023.71","article-title":"Evidence based medicine: what it is and what it isn\u2019t","volume":"312","author":"DL Sackett","year":"1996","journal-title":"BMJ"},{"issue":"1","key":"pone.0234265.ref032","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1177\/1468017316637222","article-title":"The place of service-user expertise in evidence-based practice","volume":"17","author":"K Davies","year":"2017","journal-title":"J Soc Work"},{"issue":"2","key":"pone.0234265.ref033","doi-asserted-by":"crossref","first-page":"280","DOI":"10.2522\/ptj.20090091","article-title":"Striding out with Parkinson disease: evidence-based physical therapy for gait disorders","volume":"90","author":"ME Morris","year":"2010","journal-title":"Phys Ther"},{"issue":"12","key":"pone.0234265.ref034","doi-asserted-by":"crossref","first-page":"1838","DOI":"10.2522\/ptj.20100390","article-title":"Factors associated with exercise behavior in people with Parkinson disease","volume":"91","author":"T Ellis","year":"2011","journal-title":"Phys Ther"},{"issue":"1","key":"pone.0234265.ref035","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1038\/nrneurol.2014.231","article-title":"Parkinson disease: exercise matters in patients with PD\u2014another piece of evidence","volume":"11","author":"G Ebersbach","year":"2015","journal-title":"Nat Rev Neurol"},{"issue":"12","key":"pone.0234265.ref036","doi-asserted-by":"crossref","first-page":"2214","DOI":"10.1007\/s00415-011-6097-7","article-title":"Physical inactivity in Parkinson's disease","volume":"258","author":"M van Nimwegen","year":"2011","journal-title":"J Neurol"},{"key":"pone.0234265.ref037","article-title":"The experience of Parkinson\u2019s disease: a systematic review and meta-ethnography","author":"A Soundy","year":"2014","journal-title":"Sci World J"},{"issue":"2","key":"pone.0234265.ref038","first-page":"115","article-title":"People with non-specific chronic low back pain who have participated in exercise programs have preferences about exercise: a qualitative study","volume":"55","author":"SC Slade","year":"2009","journal-title":"J Physiother"},{"issue":"15","key":"pone.0234265.ref039","doi-asserted-by":"crossref","first-page":"1523","DOI":"10.1080\/02640414.2016.1223334","article-title":"Identifying motivators and barriers to older community-dwelling people participating in exercise training","volume":"35","author":"E Burton","year":"2016","journal-title":"J Sports Sci"},{"key":"pone.0234265.ref040","doi-asserted-by":"crossref","first-page":"S95","DOI":"10.3233\/JPD-181489","article-title":"Mobilizing Parkinson's disease: the future of exercise","volume":"8","author":"T Ellis","year":"2018","journal-title":"J Parkinsons Dis"},{"key":"pone.0234265.ref041","volume-title":"Qualitative data analysis: a methods sourcebook","author":"M Miles","year":"2004","edition":"3"},{"key":"pone.0234265.ref042","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1136\/bmj.320.7227.114","article-title":"Qualitative research in health care: analysing qualitative data","volume":"320","author":"C Pope","year":"2000","journal-title":"BMJ"},{"key":"pone.0234265.ref043","volume-title":"Basics in Qualitative Research: Techniques and Procedures for Developing Grounded Theory","author":"A Strauss","year":"1997","edition":"2"},{"issue":"1","key":"pone.0234265.ref044","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1177\/2049463714541642","article-title":"Interpretative phenomenological analysis as a useful methodology for research on the lived experience of pain","volume":"9","author":"JA Smith","year":"2015","journal-title":"Br J Pain"},{"issue":"10","key":"pone.0234265.ref045","doi-asserted-by":"crossref","first-page":"1372","DOI":"10.1177\/1049732307307031","article-title":"Choose Your Method: A comparison of phenomenology, discourse analysis, and grounded theory","volume":"17","author":"H Starks","year":"2007","journal-title":"Qual Health Res"},{"key":"pone.0234265.ref046","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1177\/160940690400300101","article-title":"The analytic challenge in interpretive description","volume":"3","author":"S Thorne","year":"2004","journal-title":"Internat J Qual Methods"},{"key":"pone.0234265.ref047","doi-asserted-by":"crossref","first-page":"3493","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"A Tong","year":"2007","journal-title":"Internat J Quality Health Care"},{"issue":"1","key":"pone.0234265.ref048","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1186\/1471-2288-13-117","article-title":"Using the framework method for the analysis of qualitative data in multi-disciplinary health research","volume":"13","author":"NK Gale","year":"2013","journal-title":"BMC Med Res Methodol"},{"issue":"1","key":"pone.0234265.ref049","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1177\/160940690900800106","article-title":"Reconsidering evaluation criteria for scientific adequacy of health care research: an integrative framework of quantitative and qualitative research","volume":"8","author":"H Miyata","year":"2009","journal-title":"Int J Qual Methods"},{"issue":"20","key":"pone.0234265.ref050","first-page":"1","article-title":"The health profile of people living with Parkinson\u2019s disease managed in a comprehensive care setting","volume":"3","author":"ME Morris","year":"2015","journal-title":"JAging Sci"},{"issue":"4","key":"pone.0234265.ref051","doi-asserted-by":"crossref","first-page":"703","DOI":"10.3233\/JPD-171173","article-title":"Motivators and barriers to exercise in Parkinson's disease","volume":"7","author":"M Afshari","year":"2017","journal-title":"J Parkinsons Dis"},{"issue":"3","key":"pone.0234265.ref052","doi-asserted-by":"crossref","first-page":"188","DOI":"10.1002\/mdc3.12037","article-title":"Challenges faced by patients with Progressive Supranuclear Palsy and their families","volume":"1","author":"T Moore","year":"2014","journal-title":"Mov Disord"},{"issue":"2","key":"pone.0234265.ref053","doi-asserted-by":"crossref","first-page":"153","DOI":"10.1016\/S1474-4422(17)30406-4","article-title":"Effectiveness and costs of specialised physiotherapy given via ParkinsonNet: a retrospective analysis of medical claims data","volume":"17","author":"JHL Ypinga","year":"2018","journal-title":"Lancet Neurol"},{"issue":"suppl 2","key":"pone.0234265.ref054","article-title":"Relationship between Progressive Supranuclear Palsy and caregiver burden","volume":"34","author":"Y Inuzuka","year":"2019","journal-title":"Mov Disord"},{"key":"pone.0234265.ref055","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1186\/1471-2377-12-57","article-title":"Health-related quality of life and strain in caregivers of Australians with Parkinson's disease: an observational study","volume":"12","author":"DH Kelly","year":"2012","journal-title":"BMC Neurol"},{"issue":"6","key":"pone.0234265.ref056","doi-asserted-by":"crossref","first-page":"629","DOI":"10.1016\/j.parkreldis.2015.03.024","article-title":"Neuropsychiatric symptoms and caregiver's burden in Parkinson's disease","volume":"21","author":"P Martinez-Martin","year":"2015","journal-title":"Parkinsonism Relat Disord"},{"issue":"5","key":"pone.0234265.ref057","doi-asserted-by":"crossref","first-page":"267","DOI":"10.1177\/0891988717720300","article-title":"High burden and depression among late-stage idiopathic Parkinson disease and Progressive Supranuclear Palsy caregivers","volume":"30","author":"C Schmotz","year":"2017","journal-title":"J Geriatr Psychiatry Neurol"},{"issue":"3","key":"pone.0234265.ref058","doi-asserted-by":"crossref","first-page":"248","DOI":"10.1111\/1753-6405.12647","article-title":"The relationship of sport participation to provision of sports facilities and socioeconomic status: a geographical analysis","volume":"41","author":"RM Eime","year":"2017","journal-title":"Aust NZ J Pub Health"},{"key":"pone.0234265.ref059","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1186\/1479-5868-8-125","article-title":"In search of causality: a systematic review of the relationship between the built environment and physical activity among adults","volume":"8","author":"GR McCormack","year":"2011","journal-title":"Int J Behav Nutr Phys Act"},{"key":"pone.0234265.ref060","article-title":"The importance of connection to others in QoL in MSA and PSP","author":"L Wiblin","year":"2017","journal-title":"Parkinson\u2019s Dis"}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0234265","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,6,5]],"date-time":"2020-06-05T17:38:49Z","timestamp":1591378729000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0234265"}},"subtitle":[],"editor":[{"given":"John","family":"Duda","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2020,6,5]]},"references-count":60,"journal-issue":{"issue":"6","published-online":{"date-parts":[[2020,6,5]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0234265","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,6,5]]}}}