{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T03:01:09Z","timestamp":1787022069939,"version":"build-2736575974"},"reference-count":36,"publisher":"Public Library of Science (PLoS)","issue":"10","license":[{"start":{"date-parts":[[2020,10,8]],"date-time":"2020-10-08T00:00:00Z","timestamp":1602115200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100001711","name":"Schweizerischer Nationalfonds zur F\u00f6rderung der Wissenschaftlichen Forschung","doi-asserted-by":"publisher","award":["PZ00P1_132633\/1"],"award-info":[{"award-number":["PZ00P1_132633\/1"]}],"id":[{"id":"10.13039\/501100001711","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"DOI":"10.1371\/journal.pone.0240054","type":"journal-article","created":{"date-parts":[[2020,10,8]],"date-time":"2020-10-08T13:57:19Z","timestamp":1602165439000},"page":"e0240054","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":9,"title":["Physicians communicating with women at genetic risk of breast and ovarian cancer: Are we in the middle of the ford between contradictory messages and unshared decision making?"],"prefix":"10.1371","volume":"15","author":[{"given":"Marta","family":"Fadda","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pierre O.","family":"Chappuis","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3903-3750","authenticated-orcid":true,"given":"Maria C.","family":"Katapodi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olivia","family":"Pagani","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christian","family":"Monnerat","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"V\u00e9ronique","family":"Membrez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sheila","family":"Unger","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3537-0346","authenticated-orcid":true,"given":"Maria","family":"Caiata Zufferey","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2020,10,8]]},"reference":[{"issue":"5182","key":"pone.0240054.ref001","doi-asserted-by":"crossref","first-page":"66","DOI":"10.1126\/science.7545954","article-title":"A strong candidate for the breast and ovarian cancer susceptibility gene BRCA1","volume":"266","author":"Y Miki","year":"1994","journal-title":"Science (80-)"},{"issue":"6559","key":"pone.0240054.ref002","doi-asserted-by":"crossref","first-page":"789","DOI":"10.1038\/378789a0","article-title":"Identification of the breast cancer susceptibility gene BRCA2","volume":"378","author":"R Wooster","year":"1995","journal-title":"Nature"},{"issue":"9","key":"pone.0240054.ref003","doi-asserted-by":"crossref","first-page":"571","DOI":"10.1136\/jmedgenet-2018-105472","article-title":"Evolution of genetic assessment for BRCA-associated gynaecologic malignancies: a Canadian multisociety roadmap","volume":"55","author":"JM McCuaig","year":"2018","journal-title":"J Med Genet"},{"issue":"5","key":"pone.0240054.ref004","doi-asserted-by":"crossref","first-page":"533","DOI":"10.1615\/JLongTermEffMedImplants.v15.i5.60","article-title":"Breast cancer and ovarian cancer genetics","volume":"15","author":"RF Edlich","year":"2005","journal-title":"J Long Term Eff Med Implants"},{"key":"pone.0240054.ref005","doi-asserted-by":"crossref","first-page":"747318","DOI":"10.1155\/2013\/747318","article-title":"Hereditary breast cancer: the era of new susceptibility genes","volume":"2013","author":"P Apostolou","year":"2013","journal-title":"Biomed Res Int"},{"issue":"2","key":"pone.0240054.ref006","doi-asserted-by":"crossref","first-page":"341","DOI":"10.1016\/S0889-8545(01)00004-3","article-title":"Counseling the at risk patient in the BRCA1 and BRCA2 Era","volume":"29","author":"IM Barnes-Kedar","year":"2002","journal-title":"Obstet Gynecol Clin North Am"},{"issue":"1","key":"pone.0240054.ref007","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1017\/S0963180100001043","article-title":"The creation of partial patients","volume":"9","author":"D. Greaves","year":"2000","journal-title":"Camb Q Healthc Ethics"},{"issue":"4","key":"pone.0240054.ref008","doi-asserted-by":"crossref","first-page":"408","DOI":"10.1177\/0022146510386794","article-title":"Patients-in-waiting: Living between sickness and health in the genomics era","volume":"51","author":"S Timmermans","year":"2010","journal-title":"J Health Soc Behav"},{"issue":"9666","key":"pone.0240054.ref009","doi-asserted-by":"crossref","first-page":"802","DOI":"10.1016\/S0140-6736(09)60467-0","article-title":"Managed fear","volume":"373","author":"C. Rosenberg","year":"2009","journal-title":"Lancet (London, England)"},{"issue":"6","key":"pone.0240054.ref010","doi-asserted-by":"crossref","first-page":"870","DOI":"10.1111\/1467-9566.12115","article-title":"The pursuit of preventive care for chronic illness: Turning healthy people into chronic patients","volume":"36","author":"MJ Kreiner","year":"2013","journal-title":"Sociol Heal Illn"},{"issue":"23","key":"pone.0240054.ref011","doi-asserted-by":"crossref","first-page":"2402","DOI":"10.1001\/jama.2017.7112","article-title":"Risks of Breast, Ovarian, and Contralateral Breast Cancer for BRCA1 and BRCA2 Mutation Carriers.","volume":"317","author":"KB Kuchenbaecker","year":"2017","journal-title":"JAMA"},{"issue":"1","key":"pone.0240054.ref012","doi-asserted-by":"crossref","first-page":"59","DOI":"10.1080\/09581599808409212","article-title":"The new genetics and the politics of public health","volume":"8","author":"A. Petersen","year":"1998","journal-title":"Crit Public Health"},{"issue":"SUPPL. 6","key":"pone.0240054.ref013","article-title":"BRCA in breast cancer: ESMO clinical practice guidelines","volume":"22","author":"J Balma\u00f1a","year":"2011","journal-title":"Ann Oncol"},{"key":"pone.0240054.ref014","unstructured":"The Federal Assembly of the Swiss Confederation. Federal Act on Human Genetic Testing.; 2014. https:\/\/www.admin.ch\/opc\/en\/classified-compilation\/20011087\/201401010000\/810.12.pdf. Accessed September 4, 2019."},{"key":"pone.0240054.ref015","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1016\/j.breast.2018.08.102","article-title":"A Systematic Review of Women\u2019s Knowledge of Screening Mammography","volume":"42","author":"K Seaman","year":"2018","journal-title":"The Breast"},{"key":"pone.0240054.ref016","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.ejca.2017.07.056","article-title":"Avoiding harm and supporting autonomy are under-prioritised in cancer-screening policies and practices","volume":"85","author":"L Parker","year":"2017","journal-title":"Eur J Cancer"},{"issue":"9","key":"pone.0240054.ref017","doi-asserted-by":"crossref","first-page":"726","DOI":"10.1038\/gim.2014.183","article-title":"Challenges in managing genetic cancer risk: a long-term qualitative study of unaffected women carrying BRCA1\/BRCA2 mutations","volume":"17","author":"M Caiata-Zufferey","year":"2015","journal-title":"Genet Med"},{"key":"pone.0240054.ref018","first-page":"374","article-title":"Votre analyse: avec ou sans conseil g\u00e9n\u00e9tique?","volume":"16","author":"M Met-Domestici","year":"2020","journal-title":"Rev Med Suisse"},{"issue":"12","key":"pone.0240054.ref019","doi-asserted-by":"crossref","first-page":"657","DOI":"10.1089\/gtmb.2015.0061","article-title":"Next-generation testing for cancer risk: Perceptions, experiences, and needs among early adopters in community healthcare settings","volume":"19","author":"KR Blazer","year":"2015","journal-title":"Genet Test Mol Biomarkers"},{"issue":"5","key":"pone.0240054.ref020","doi-asserted-by":"crossref","first-page":"793","DOI":"10.1377\/hlthaff.2017.1548","article-title":"Views of primary care providers on testing patients for genetic risks for common chronic diseases","volume":"37","author":"D Hauser","year":"2018","journal-title":"Health Aff"},{"issue":"2","key":"pone.0240054.ref021","doi-asserted-by":"crossref","first-page":"228","DOI":"10.1111\/cge.12626","article-title":"Are physicians prepared for whole genome sequencing? A qualitative analysis","volume":"89","author":"KD Christensen","year":"2016","journal-title":"Clin Genet"},{"key":"pone.0240054.ref022","unstructured":"Muhr T. ATLAS.ti (Version 5). 2004."},{"issue":"1","key":"pone.0240054.ref023","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1200\/PO.16.00066","article-title":"Breast and Ovarian Cancer Penetrance Estimates Derived From Germline Multiple-Gene Sequencing Results in Women","author":"AW Kurian","year":"2017","journal-title":"JCO Precis Oncol"},{"issue":"3","key":"pone.0240054.ref024","doi-asserted-by":"crossref","first-page":"150","DOI":"10.1177\/1477750917704156","article-title":"Beyond individualism: Is there a place for relational autonomy in clinical practice and research?","volume":"12","author":"ES Dove","year":"2017","journal-title":"Clin Ethics"},{"issue":"17","key":"pone.0240054.ref025","doi-asserted-by":"crossref","first-page":"1814","DOI":"10.1001\/jama.2018.3388","article-title":"Breast Cancer Screening in 2018","volume":"319","author":"NL Keating","year":"2018","journal-title":"JAMA"},{"issue":"4","key":"pone.0240054.ref026","doi-asserted-by":"crossref","first-page":"495","DOI":"10.1007\/s11673-009-9188-8","article-title":"The \u2018Obligation\u2019 to Screen and its Effect on Autonomy","volume":"6","author":"Y Lau","year":"2009","journal-title":"J Bioeth Inq"},{"issue":"3","key":"pone.0240054.ref027","doi-asserted-by":"crossref","first-page":"299","DOI":"10.1177\/0162243907306855","article-title":"Localizing the Global: Testing for Hereditary Risks of Breast Cancer","volume":"33","author":"I L\u00f6wy","year":"2008","journal-title":"Sci Technol Hum Values"},{"issue":"7212","key":"pone.0240054.ref028","doi-asserted-by":"crossref","first-page":"780","DOI":"10.1136\/bmj.319.7212.780","article-title":"What do we mean by partnership in making decisions about treatment?","volume":"319","author":"C Charles","year":"1999","journal-title":"BMJ"},{"issue":"7497","key":"pone.0240054.ref029","doi-asserted-by":"crossref","DOI":"10.1136\/bmj.330.7497.0-f","article-title":"Preventive medicine makes us miserable","volume":"330","author":"F. Godlee","year":"2005","journal-title":"BMJ"},{"issue":"1","key":"pone.0240054.ref030","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1186\/s12910-016-0149-6","article-title":"Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine","volume":"17","author":"A Blasimme","year":"2016","journal-title":"BMC Med Ethics"},{"issue":"7","key":"pone.0240054.ref031","doi-asserted-by":"crossref","first-page":"741","DOI":"10.1007\/s11606-010-1292-2","article-title":"Supporting patient autonomy: the importance of clinician-patient relationships","volume":"25","author":"V a Entwistle","year":"2010","journal-title":"J Gen Intern Med"},{"issue":"2","key":"pone.0240054.ref032","doi-asserted-by":"crossref","first-page":"283","DOI":"10.1007\/s10897-016-0022-2","article-title":"A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer","volume":"26","author":"R Forbes Shepherd","year":"2017","journal-title":"J Genet Couns"},{"issue":"1","key":"pone.0240054.ref033","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1016\/j.amjsurg.2018.01.011","article-title":"Association of shared decision-making on patient-reported health outcomes and healthcare utilization","volume":"216","author":"TM Hughes","year":"2018","journal-title":"Am J Surg"},{"issue":"6997","key":"pone.0240054.ref034","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1136\/bmj.311.6997.109","article-title":"Qualitative Research: Rigour and qualitative research","volume":"311","author":"N Mays","year":"1995","journal-title":"BMJ"},{"issue":"3","key":"pone.0240054.ref035","doi-asserted-by":"crossref","first-page":"295","DOI":"10.1136\/thoraxjnl-2013-204903","article-title":"Interpretation of genetic variants","volume":"69","author":"PR Sosnay","year":"2014","journal-title":"Thorax"},{"issue":"1","key":"pone.0240054.ref036","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1016\/j.ajhg.2018.11.014","article-title":"Integrating Genomics into Healthcare: A Global Responsibility","volume":"104","author":"Z Stark","year":"2019","journal-title":"Am J Hum Genet"}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0240054","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,8,15]],"date-time":"2024-08-15T14:34:54Z","timestamp":1723732494000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0240054"}},"subtitle":[],"editor":[{"given":"Alvaro","family":"Galli","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2020,10,8]]},"references-count":36,"journal-issue":{"issue":"10","published-online":{"date-parts":[[2020,10,8]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0240054","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,10,8]]}}}