{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,11]],"date-time":"2026-05-11T20:56:43Z","timestamp":1778533003992,"version":"3.51.4"},"reference-count":25,"publisher":"Public Library of Science (PLoS)","issue":"11","license":[{"start":{"date-parts":[[2021,11,29]],"date-time":"2021-11-29T00:00:00Z","timestamp":1638144000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"National Science Foundation","award":["#1541342"],"award-info":[{"award-number":["#1541342"]}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:p>A migraine is more than head pain, and chronic migraine can dramatically impact a person and those around her\/him\/them. To better understand those effects it is important to study the experiences of persons with migraine and their caregivers, family, friends, and health and mental health providers. When they collaborate, stakeholders may improve outcomes for persons with chronic migraine. One type of stakeholder cooperation is Health Co-Inquiry, involving a person-centered approach, activation of persons toward collaboration and improved health, evidence-based practice, and integrated care. The current study investigated Health Co-Inquiry at online forums, blogs, and bulletin boards where people came together to discuss migraine. A \u201cBifurcated Method\u201d was used to conduct inductive, thematic analyses, quantitize themes, and cross-check themes using a robot program, which crawled the Internet to gather data about stakeholder sites and posts related to migraine. Key themes in the online narratives of migraine stakeholders included seeking and providing advice, help, and information. In addition, giving personal stories and testimonials, selling computer applications and products, and providing misinformation were frequent. Differences in the types of posts by various stakeholder groups were identified and may inform researchers about their varied perspectives and goals. Remarkably, migraine is still migraine\u2013before a pandemic and during it. As such, migraineur concerns remained stable across thematic analyses of blog and forum posts before and during the worldwide COVID-19 pandemic.<\/jats:p>","DOI":"10.1371\/journal.pone.0260376","type":"journal-article","created":{"date-parts":[[2021,11,29]],"date-time":"2021-11-29T18:49:56Z","timestamp":1638211796000},"page":"e0260376","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":5,"title":["Health co-inquiry in migraine: Online participation and stakeholder experiences before and during the COVID-19 pandemic"],"prefix":"10.1371","volume":"16","author":[{"given":"Camden L.","family":"Baucke","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1388-3407","authenticated-orcid":true,"given":"Lauren S.","family":"Seifert","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kara","family":"Kaelber","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2021,11,29]]},"reference":[{"key":"pone.0260376.ref001","unstructured":"International Headache Society. 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Available at http:\/\/www.who.int\/mental_health\/neurology\/neurogy_atlas_review_references.pdf, accessed 13 January 2019."},{"issue":"3","key":"pone.0260376.ref003","doi-asserted-by":"crossref","first-page":"248","DOI":"10.1097\/WCO.0b013e328360edb1","article-title":"Multisensory integration in migraine.","volume":"26","author":"TJ Schwedt","year":"2013","journal-title":"Curr Opin Neurol."},{"issue":"4","key":"pone.0260376.ref004","doi-asserted-by":"crossref","first-page":"336","DOI":"10.1046\/j.1526-4610.2003.03068.x","article-title":"Assessment of migraine disability using the Migraine Disability Assessment (MIDAS) questionnaire: A comparison of chronic migraine with episodic migraine.","volume":"43","author":"ME Bigal","year":"2003","journal-title":"Headache"},{"issue":"3","key":"pone.0260376.ref005","doi-asserted-by":"crossref","first-page":"301","DOI":"10.1177\/0333102410381145","article-title":"Disability, GRQoL and resource use among chronic and episodic migraineurs: Results from the International Burden of Migraine Study (IBMS).","volume":"31","author":"AM Blumenfeld","year":"2010","journal-title":"Cephalalgia"},{"key":"pone.0260376.ref006","unstructured":"World Health Organization. Neurological disorders: Public health challenges (Ch. 3). 2006. Available at http:\/\/www.who.int\/mental_health\/neurology\/neurodiso\/en\/m, accessed 13 January 2019\/ Currently available from https:\/\/www.who.int\/mental_health\/neurology\/chapter1_neuro_disorders_public_h_challenges.pdf"},{"issue":"6","key":"pone.0260376.ref007","doi-asserted-by":"crossref","first-page":"1772","DOI":"10.1007\/s12144-019-00474-9","article-title":"Using online resources in Health Co-Inquiry: A Bifurcated Method for analyzing stakeholder narratives.","volume":"38","author":"LS Seifert","year":"2019","journal-title":"Curr Psychol."},{"key":"pone.0260376.ref008","article-title":"Multi-method Health Co-Inquiry: A case illustration for persons with chronic illness, caregivers, providers, and researchers.","author":"LS Seifert","year":"2017","journal-title":"Curr Psychol."},{"key":"pone.0260376.ref009","unstructured":"Internet Live Stats. Internet users. 2019 January. Available at: http:\/\/www.internetlivestats.com\/, accessed 13 January 2019."},{"key":"pone.0260376.ref010","volume-title":"Doing qualitative research in education settings","author":"JA Hatch","year":"2002"},{"issue":"1","key":"pone.0260376.ref011","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1177\/1460458213475894","article-title":"The use of weblogs within palliative care: A systematic literature review.","volume":"20","author":"NB Ngwenya","year":"2014","journal-title":"Health Informatics J."},{"key":"pone.0260376.ref012","unstructured":"Seifert LS. (2018, July). Health Co-Inquiry WebCrawler guidebook. 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Available at https:\/\/www.nytimes.com\/interactive\/2020\/us\/states-reopen-map-coronavirus.html, accessed 1 June 2021."},{"key":"pone.0260376.ref017","article-title":"Aimovig (Erenumab-aooe) first CGRP receptor antagonist approved for the prevention of migraine in adults.","author":"LA Raedle","year":"2019","journal-title":"AHDB."},{"issue":"6","key":"pone.0260376.ref018","doi-asserted-by":"crossref","first-page":"839","DOI":"10.1111\/j.1526-4610.2011.01900.x","article-title":"Sex matters: evaluating sex and gender in migraine and headache research.","volume":"51","author":"BL Peterlin","year":"2011","journal-title":"Headache"},{"key":"pone.0260376.ref019","doi-asserted-by":"crossref","DOI":"10.1016\/j.jns.2021.119337","article-title":"Use of traditional medicine in treatment of migraine during coronavirus disease 2019 (COVID-19) pandemic- an online survey.","volume":"429","author":"I Ismail","year":"2021","journal-title":"J Neurol Sci"},{"key":"pone.0260376.ref020","first-page":"108","article-title":"The impact of a digital platform on migraine patient-centered outcome research. Evaluation of midolordecabeza.org, a headache website in Spanish.","volume":"00","author":"VJ Gallardo","year":"2021","journal-title":"Headache"},{"key":"pone.0260376.ref021","doi-asserted-by":"crossref","first-page":"175","DOI":"10.1016\/j.msard.2018.07.046","article-title":"Fake news, influencers and health-related professional participation on the Web: A pilot study on a social-network of people with Multiple Sclerosis.","volume":"25","author":"L Lavorgna","year":"2018","journal-title":"Mult Scler Rel Dis"},{"issue":"2","key":"pone.0260376.ref022","doi-asserted-by":"crossref","first-page":"e18","DOI":"10.2196\/ijmr.7879","article-title":"Social media and multiple sclerosis in the posttruth age.","volume":"6","author":"L Lavorgna","year":"2017","journal-title":"Interact J Res"},{"issue":"12","key":"pone.0260376.ref023","doi-asserted-by":"crossref","first-page":"1560","DOI":"10.1080\/10410236.2020.1773705","article-title":"Effects of information veracity and message frames on information dissemination: a case study of 2016 Zika epidemic discussion on Twitter.","volume":"36","author":"Q Xu","year":"2021","journal-title":"Health Commun."},{"issue":"1","key":"pone.0260376.ref024","first-page":"100256","article-title":"An international study on psychological coping during COVID-19: towards a meaning-centered coping style.","volume":"22","author":"N Eisenbeck","year":"2022","journal-title":"IJCHP"},{"key":"pone.0260376.ref025","unstructured":"Kuruvilla DE. 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