{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T05:36:01Z","timestamp":1784698561988,"version":"3.55.0"},"reference-count":64,"publisher":"Public Library of Science (PLoS)","issue":"7","license":[{"start":{"date-parts":[[2022,7,18]],"date-time":"2022-07-18T00:00:00Z","timestamp":1658102400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100007602","name":"Programme Grants for Applied Research","doi-asserted-by":"publisher","award":["RP-PG-1016-20001"],"award-info":[{"award-number":["RP-PG-1016-20001"]}],"id":[{"id":"10.13039\/501100007602","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:sec id=\"sec001\">\n<jats:title>Objective<\/jats:title>\n<jats:p>To explore the experiences and challenges of people with Parkinson\u2019s and their family members living in the community through the lens of their transitions to better understand the phases and changes in their lives.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec002\">\n<jats:title>Design<\/jats:title>\n<jats:p>Qualitative study using semi-structured interviews and analysed using codebook thematic analysis.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec003\">\n<jats:title>Setting\/participants<\/jats:title>\n<jats:p>Purposive sampling was used in primary and secondary healthcare services across Southern England in 2019 to recruit 21 people with Parkinson\u2019s (aged between 45\u201389 years) and 17 family members (13 spouses and 4 adult children, aged between 26\u201379 years).<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec004\">\n<jats:title>Results<\/jats:title>\n<jats:p>Participants\u2019 descriptions were classified in three main phases of transition from a place of health towards greater dependency on others: 1) \u2018Being told you are a person with Parkinson\u2019s\u2019 (early), 2) \u2018Living with Parkinson\u2019s\u2019 (mid), and 3) \u2018Increasing dependency\u2019 (decline). Seven sub-themes were identified to describe the transitions within these three phases: phase 1: receiving and accepting a diagnosis; navigating reactions; phase 2: changing social interactions and maintaining sense of self; information: wanting to know but not wanting to know; finding a place within the healthcare system; and 3: changes in roles and relationships; and increasingly dependent.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec005\">\n<jats:title>Conclusion<\/jats:title>\n<jats:p>This study has identified points of change and means of supporting key transitions such as diagnosis, changes in social connections, and increased use of secondary healthcare services so that comprehensive, holistic, individualised and well-timed support can be put in place to maintain well-being.<\/jats:p>\n<\/jats:sec>","DOI":"10.1371\/journal.pone.0268588","type":"journal-article","created":{"date-parts":[[2022,7,18]],"date-time":"2022-07-18T17:23:40Z","timestamp":1658165020000},"page":"e0268588","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":12,"title":["Transitions and challenges for people with Parkinson\u2019s and their family members: A qualitative 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