{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,16]],"date-time":"2026-04-16T11:26:51Z","timestamp":1776338811504,"version":"3.51.2"},"reference-count":23,"publisher":"Public Library of Science (PLoS)","issue":"8","license":[{"start":{"date-parts":[[2022,8,18]],"date-time":"2022-08-18T00:00:00Z","timestamp":1660780800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Danish Health Confederation and Danish Regions","award":["2657"],"award-info":[{"award-number":["2657"]}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:sec id=\"sec001\">\n<jats:title>Introduction<\/jats:title>\n<jats:p>Involving relatives can contribute to better quality of care and treatment, and lead to higher satisfaction with hospitalisation in the patients, relatives and healthcare professionals. Nurses play an important role in developing a trusting relationship and facilitating relatives\u2019 involvement, since they are around the patient and relatives all day. Thus, involvement is central to the nursing practice. However, involving relatives seems complex and multifaceted with many possible facilitators and barriers to nurses.\u2019<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec002\">\n<jats:title>Objective<\/jats:title>\n<jats:p>The objective of this scoping review is to identify and map the available evidence concerning possible facilitators and barriers to nurses involving relatives in the course of treating disease in individuals who have sustained an acquired brain injury or malignant brain tumour in all settings.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec003\">\n<jats:title>Methods and analysis<\/jats:title>\n<jats:p>The proposed scoping review will be performed following the Joanna Briggs Institute\u2019s (JBI) methodology for scoping reviews. Indexed and grey literature in English, Scandinavian or German languages from 2010 to the present will be considered. The searches will be conducted using bibliographic databases: Medline (via PubMed), CINAHL (via EBSCO) and EMBASE (via OVID). Two reviewers will independently screen the studies and determine if their title, abstract and full text meet the study\u2019s inclusion criteria. In case of disagreement, a third and fourth reviewer will be consulted. A customised data extraction form will be used to extract data from the included studies. The results will be presented in tabular form, accompanied by a narrative summary related to the objective of the present scoping review. This scoping review will consider studies that involve nurses caring for individuals with an acquired brain injury or malignant brain tumour in all settings (community, primary care, health care centres, hospital and long-term care institutions). Studies will be included if they describe any kind of facilitators or barriers to involving relatives, and the review will consider all study designs.<\/jats:p>\n<\/jats:sec>","DOI":"10.1371\/journal.pone.0273151","type":"journal-article","created":{"date-parts":[[2022,8,18]],"date-time":"2022-08-18T17:50:25Z","timestamp":1660845025000},"page":"e0273151","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":3,"title":["Facilitators and barriers of relatives\u2019 involvement in nursing care decisions and self-care of patients with acquired brain injury or malignant brain tumour: A scoping review protocol"],"prefix":"10.1371","volume":"17","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1491-2556","authenticated-orcid":true,"given":"Rikke","family":"Guldager","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mia Ingerslev","family":"Loft","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5600-2644","authenticated-orcid":true,"given":"Sara","family":"Nordentoft","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7365-3916","authenticated-orcid":true,"given":"Lena","family":"Aadal","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ingrid","family":"Poulsen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2022,8,18]]},"reference":[{"issue":"3","key":"pone.0273151.ref001","doi-asserted-by":"crossref","first-page":"729","DOI":"10.1161\/STROKEAHA.119.024156","article-title":"Risk factors for ischemic stroke in younger adults","volume":"51","author":"MG George","year":"2020","journal-title":"Stroke"},{"key":"pone.0273151.ref002","unstructured":"Brain Injury Association of America. What is the difference between an acquired brain injury and a traumatic brain injury? [cited: 2 September 2020]. https:\/\/www.biausa.org\/brain-injury\/about-brain-injury\/nbiic\/what-is-the-difference-between-an-acquired-brain-injury-and-a-traumatic-brain-injury."},{"issue":"2","key":"pone.0273151.ref003","doi-asserted-by":"crossref","first-page":"114","DOI":"10.4103\/0253-7176.203129","article-title":"Traumatic brain injury and neuropsychiatric complications","volume":"39","author":"S Ahmed","year":"2017","journal-title":"Indian Journal of Psychological Medicine"},{"issue":"2","key":"pone.0273151.ref004","doi-asserted-by":"crossref","first-page":"151","DOI":"10.1080\/02699052.2016.1225987","article-title":"The experience of patients with ABI and their families during the hospital stay: A systematic review of qualitative literature","volume":"31","author":"T. 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Located: https:\/\/www.cancer.dk\/hjernetumorer-hjernesvulst\/diagnose-hjernesvulster\/2018."},{"issue":"4","key":"pone.0273151.ref008","doi-asserted-by":"crossref","first-page":"959","DOI":"10.1007\/s00701-020-04693-z","article-title":"Past, present and future, the experience of time during examination for malignant brain tumor: A qualitative observational study","volume":"163","author":"R Guldager","year":"2021","journal-title":"Acta Neurochir (Wien)"},{"issue":"2","key":"pone.0273151.ref009","doi-asserted-by":"crossref","first-page":"185","DOI":"10.1007\/s11060-015-1821-2","article-title":"Health-related quality of life in patients with high-grade gliomas: A quantitative longitudinal study","volume":"124","author":"K Piil","year":"2015","journal-title":"J Neuro Oncol"},{"key":"pone.0273151.ref010","unstructured":"World Heart Federation. Stroke 2017 [updated 2017. http:\/\/www.world-heart-federation.org\/cardiovascular-health\/stroke\/."},{"key":"pone.0273151.ref011","unstructured":"Jacobsen, CBA, Pedersen, K, Hjelholt, V. Patientinddragelse mellem ideal og virkelighed: en empirisk unders\u00f8gelse af f\u00e6lles beslutningstagning og dagligdagens m\u00f8der mellem patient og behandler (Patient involvement between ideal and reality: an empirical study of shared decision making and everyday meetings between patient and therapist) (Version: 1,0 ed.): Danish Health Authority DSI."},{"issue":"4","key":"pone.0273151.ref012","first-page":"242","article-title":"P\u00e5r\u00f8rendepositioner I neurorehabilitering: den ops\u00f8gende, den observerende og afventende p\u00e5r\u00f8rende. (Relatives position in neurorehabilitation: The warrior, the observer, and the hesitant)","volume":"34","author":"R Guldager","year":"2020","journal-title":"The Danish Journal of Clinical Nursing"},{"key":"pone.0273151.ref013","doi-asserted-by":"crossref","first-page":"66","DOI":"10.2174\/1874434620130516002","article-title":"Can participation in documentation influence experiences of involvement in care decision-making?","volume":"7","author":"H Vestala","year":"2013","journal-title":"Open Nurs. J"},{"issue":"23\u201324","key":"pone.0273151.ref014","doi-asserted-by":"crossref","first-page":"4905","DOI":"10.1111\/jocn.13972","article-title":"Nurses\u2019 and nurse assistants\u2019 beliefs, attitudes and actions related to role and function in an inpatient stroke rehabilitation unit-A qualitative study","volume":"26","author":"MI Loft","year":"2017","journal-title":"J Clin Nurs"},{"key":"pone.0273151.ref015","unstructured":"Kitson A, Conroy T, Kuluski K, Locock L, Lyons R. Reclaiming and redefining the Fundamentals of Care: Nursing\u2019s response to meeting patients\u2019 basic human needs. School of Nursing, The University of Adelaide; 2013."},{"issue":"4","key":"pone.0273151.ref016","doi-asserted-by":"crossref","first-page":"1314","DOI":"10.1002\/nop2.326","article-title":"Nurses\u2019 contribution to relatives\u2019 involvement in neurorehabilitation: Facilitators and barriers","volume":"6","author":"R Guldager","year":"2019","journal-title":"Nurs. Open"},{"key":"pone.0273151.ref017","doi-asserted-by":"crossref","unstructured":"Fisher A, Bellon M, Lawn S, Lennon S, Sohlberg M. Family-directed approach to brain injury (FAB) model: A preliminary framework to guide family-directed intervention for individuals with brain injury. Disabil. Rehabili. 2017:1\u20137.","DOI":"10.1080\/09638288.2017.1407966"},{"issue":"1","key":"pone.0273151.ref018","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1046\/j.1440-172x.2002.00344.x","article-title":"Communication: Principal barrier to nurse-consumer partnerships","volume":"8","author":"D Keatinge","year":"2002","journal-title":"International journal of nursing practice"},{"key":"pone.0273151.ref019","unstructured":"Danish Patients. Theme- relative involvement. (Videnscenter for Brugerinddragelse i Sundhedsv\u00e6senet. Tema\u2013P\u00e5r\u00f8rendeinddragelse). Copenhagen 2015"},{"key":"pone.0273151.ref020","unstructured":"The National Patient Safety Foundation. Safety Is Personal: Partnering With Patients and Families for the Safest Care.; 2014."},{"issue":"12","key":"pone.0273151.ref021","doi-asserted-by":"crossref","first-page":"1291","DOI":"10.1016\/j.jclinepi.2014.03.013","article-title":"Scoping reviews: Time for clarity in definition, methods, and reporting","volume":"67","author":"HL Colquhoun","year":"2014","journal-title":"J Clin Epidemiol"},{"key":"pone.0273151.ref022","doi-asserted-by":"crossref","unstructured":"Peters MDJ GC, McInerney P, Munn Z, Tricco AC, Khalil, H. Chapter 11: Scoping Reviews. In: Aromataris E MZ, editor. JBI Manual for Evidence Synthesis. Adelaide: JBI2020.","DOI":"10.46658\/JBIMES-20-12"},{"key":"pone.0273151.ref023","unstructured":"Veritas Health Innovation. Covidence Systematic Review Software 2018 [https:\/\/www.covidence.org\/."}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0273151","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,8,18]],"date-time":"2022-08-18T17:50:51Z","timestamp":1660845051000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0273151"}},"subtitle":[],"editor":[{"given":"Robert","family":"Didden","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2022,8,18]]},"references-count":23,"journal-issue":{"issue":"8","published-online":{"date-parts":[[2022,8,18]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0273151","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,8,18]]}}}