{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,4]],"date-time":"2026-09-04T21:00:11Z","timestamp":1788555611384,"version":"build-2803163510"},"reference-count":39,"publisher":"Public Library of Science (PLoS)","issue":"8","license":[{"start":{"date-parts":[[2022,8,25]],"date-time":"2022-08-25T00:00:00Z","timestamp":1661385600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Human Research Council New Zealand","award":["HRC 20\/1225"],"award-info":[{"award-number":["HRC 20\/1225"]}]},{"name":"Ross Bailey Nephrology Trust"}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:sec id=\"sec001\">\n<jats:title>Background<\/jats:title>\n<jats:p>Kidney transplantation is considered the ideal treatment for most people with kidney failure, conferring both survival and quality of life advantages, and is more cost effective than dialysis. Yet, current health systems may serve some people better than others, creating inequities in access to kidney failure treatments and health outcomes. AcceSS and Equity in Transplantation (ASSET) investigators aim to create a linked data platform to facilitate research enquiry into equity of health service delivery for people with kidney failure in New Zealand.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec002\">\n<jats:title>Methods<\/jats:title>\n<jats:p>The New Zealand Ministry of Health will use patients\u2019 National Health Index (NHI) numbers to deterministically link individual records held in existing registry and administrative health databases in New Zealand to create the data platform. The initial data linkage will include a study population of incident patients captured in the Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), New Zealand Blood Service Database and the Australia and New Zealand Living Kidney Donor Registry (ANZLKD) from 2006 to 2019 and their linked health data. Health data sources will include National Non-Admitted Patient Collection Data, National Minimum Dataset, Cancer Registry, Programme for the Integration of Mental Health Data (PRIMHD), Pharmaceutical Claims Database and Mortality Collection Database. Initial exemplar studies include 1) kidney waitlist dynamics and pathway to transplantation; 2) impact of mental illness on accessing kidney waitlist and transplantation; 3) health service use of living donors following donation.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec003\">\n<jats:title>Conclusion<\/jats:title>\n<jats:p>The AcceSS and Equity in Transplantation (ASSET) linked data platform will provide opportunity for population-based health services research to examine equity in health care delivery and health outcomes in New Zealand. It also offers potential to inform future service planning by identifying where improvements can be made in the current health system to promote equity in access to health services for those in New Zealand.<\/jats:p>\n<\/jats:sec>","DOI":"10.1371\/journal.pone.0273371","type":"journal-article","created":{"date-parts":[[2022,8,25]],"date-time":"2022-08-25T17:36:52Z","timestamp":1661449012000},"page":"e0273371","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":3,"title":["AcceSS and Equity in Transplantation (ASSET) New Zealand: Protocol for population-wide data linkage platform to investigate equity in access to kidney failure health services in New Zealand"],"prefix":"10.1371","volume":"17","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1071-0511","authenticated-orcid":true,"given":"Rachel B.","family":"Cutting","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angela C.","family":"Webster","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicholas B.","family":"Cross","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heather","family":"Dunckley","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ben","family":"Beaglehole","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ian","family":"Dittmer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Irvine","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Curtis","family":"Walker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Merryn","family":"Jones","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melanie","family":"Wyld","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrick J.","family":"Kelly","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"Wyburn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7739-3656","authenticated-orcid":true,"given":"Nicole L.","family":"De La Mata","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2022,8,25]]},"reference":[{"issue":"7","key":"pone.0273371.ref001","doi-asserted-by":"crossref","first-page":"e0158765","DOI":"10.1371\/journal.pone.0158765","article-title":"Global Prevalence of Chronic Kidney Disease\u2014A Systematic Review and Meta-Analysis.","volume":"11","author":"NR Hill","year":"2016","journal-title":"PLoS One."},{"issue":"10225","key":"pone.0273371.ref002","doi-asserted-by":"crossref","first-page":"709","DOI":"10.1016\/S0140-6736(20)30045-3","article-title":"Global, regional, and national burden of chronic kidney disease, 1990\u20132017: a systematic analysis for the Global Burden of Disease Study 2017.","volume":"395","year":"2020","journal-title":"Lancet"},{"key":"pone.0273371.ref003","unstructured":"Institute for Health Metrics and Evaluation (IHME). New Zealand. Seattle, WA 2019 [cited 2021 May 6]. Available from: http:\/\/www.healthdata.org\/new-zealand."},{"key":"pone.0273371.ref004","volume-title":"Living with kidney disease a comprehensive guide for coping with chronic kidney disease","author":"Ministry of Health and Kidney Health New Zealand.","year":"2014"},{"issue":"3","key":"pone.0273371.ref005","doi-asserted-by":"crossref","first-page":"205","DOI":"10.1097\/TP.0b013e31824e3db4","article-title":"Hepatitis B-positive donors in renal transplantation: increasing the deceased donor pool","volume":"94","author":"HL Pilmore","year":"2012","journal-title":"Transplantation"},{"issue":"6","key":"pone.0273371.ref006","doi-asserted-by":"crossref","first-page":"659","DOI":"10.1038\/ki.2009.236","article-title":"Indigenous people in Australia, Canada, New Zealand and the United States are less likely to receive renal transplantation","volume":"76","author":"KE Yeates","year":"2009","journal-title":"Kidney Int"},{"issue":"7","key":"pone.0273371.ref007","doi-asserted-by":"crossref","first-page":"758","DOI":"10.1111\/nep.13484","article-title":"Access to waitlisting for deceased donor kidney transplantation in Australia.","volume":"24","author":"MP Sypek","year":"2019","journal-title":"Nephrology (Carlton)."},{"issue":"1","key":"pone.0273371.ref008","doi-asserted-by":"crossref","first-page":"e29591","DOI":"10.1371\/journal.pone.0029591","article-title":"Comparative survival and economic benefits of deceased donor kidney transplantation and dialysis in people with varying ages and co-morbidities","volume":"7","author":"G Wong","year":"2012","journal-title":"PLoS One"},{"issue":"10","key":"pone.0273371.ref009","doi-asserted-by":"crossref","first-page":"2093","DOI":"10.1111\/j.1600-6143.2011.03686.x","article-title":"Systematic Review: Kidney Transplantation Compared With Dialysis in Clinically Relevant Outcomes.","volume":"11","author":"M Tonelli","year":"2011","journal-title":"American Journal of Transplantation"},{"key":"pone.0273371.ref010","unstructured":"The Transplantation Society of Australia and New Zealand. Clinical guidelines for organ transplantation from deceased donors: Organ and Tissue Authority; 2021 [cited 2021 April 22]. Available from: https:\/\/tsanz.com.au."},{"key":"pone.0273371.ref011","unstructured":"Ministry of Health. Increasing Deceased Organ Donation and Transplantation: a National Strategy. Wellington, New Zealand; 2017."},{"key":"pone.0273371.ref012","unstructured":"Ministry of Health. Becoming a live organ donor: New Zealand Government; 2021 [cited 2022 February 10]. Available from: https:\/\/www.health.govt.nz\/."},{"key":"pone.0273371.ref013","volume-title":"Chapter 8: Kidney Donation Adelaide","author":"ANZDATA Registry.","year":"2020"},{"key":"pone.0273371.ref014","volume-title":"Chatper 7: Kidney Transplantation Adelaide","author":"ANZDATA Registry","year":"2019"},{"issue":"3","key":"pone.0273371.ref015","doi-asserted-by":"crossref","first-page":"621","DOI":"10.1681\/ASN.2008060591","article-title":"Age and comorbidities are effect modifiers of gender disparities in renal transplantation","volume":"20","author":"DL Segev","year":"2009","journal-title":"J Am Soc Nephrol"},{"key":"pone.0273371.ref016","doi-asserted-by":"crossref","first-page":"800933","DOI":"10.3389\/fmed.2021.800933","article-title":"Sex Differences in Kidney Transplantation: Austria and the United States, 1978\u20132018.","volume":"8","author":"S H\u00f6dlmoser","year":"2022","journal-title":"Front Med (Lausanne)."},{"issue":"2","key":"pone.0273371.ref017","doi-asserted-by":"crossref","first-page":"358","DOI":"10.1111\/j.1600-6143.2011.03927.x","article-title":"The role of race and poverty on steps to kidney transplantation in the Southeastern United States","volume":"12","author":"RE Patzer","year":"2012","journal-title":"Am J Transplant"},{"issue":"6","key":"pone.0273371.ref018","doi-asserted-by":"crossref","first-page":"1011","DOI":"10.1007\/s00467-015-3279-z","article-title":"The impact of socioeconomic status and geographic remoteness on access to pre-emptive kidney transplantation and transplant outcomes among children","volume":"31","author":"A Francis","year":"2016","journal-title":"Pediatric Nephrology"},{"issue":"8","key":"pone.0273371.ref019","doi-asserted-by":"crossref","first-page":"2624","DOI":"10.1093\/ndt\/gfq110","article-title":"Regional and social inequalities in chronic renal replacement therapy in Denmark.","volume":"25","author":"K Hommel","year":"2010","journal-title":"Nephrol Dial Transplant"},{"key":"pone.0273371.ref020","author":"N. 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Overview of the health system 2017 [cited 2022 March 25]. Available from: https:\/\/www.health.govt.nz\/new-zealand-health-system\/overview-health-system."},{"issue":"1","key":"pone.0273371.ref029","doi-asserted-by":"crossref","first-page":"e0245131","DOI":"10.1371\/journal.pone.0245131","article-title":"Prevalence and factors associated with multimorbidity among primary care patients with decreased renal function.","volume":"16","author":"JA Hirst","year":"2021","journal-title":"PLOS ONE."},{"issue":"1","key":"pone.0273371.ref030","doi-asserted-by":"crossref","first-page":"411","DOI":"10.1186\/s12882-020-02063-6","article-title":"Symptom-burden in people living with frailty and chronic kidney disease.","volume":"21","author":"AC Nixon","year":"2020","journal-title":"BMC Nephrol"},{"issue":"7","key":"pone.0273371.ref031","doi-asserted-by":"crossref","first-page":"e323","DOI":"10.1016\/S2468-2667(18)30091-4","article-title":"Frailty and pre-frailty in middle-aged and older adults and its association with multimorbidity and mortality: a prospective analysis of 493\u2008737 UK Biobank participants","volume":"3","author":"P Hanlon","year":"2018","journal-title":"Lancet Public Health"},{"issue":"8","key":"pone.0273371.ref032","doi-asserted-by":"crossref","first-page":"374","DOI":"10.5694\/mja2.50354","article-title":"Impending challenges of the burden of end-stage kidney disease in Australia.","volume":"211","author":"WH Lim","year":"2019","journal-title":"Medical Journal of Australia"},{"issue":"3","key":"pone.0273371.ref033","doi-asserted-by":"crossref","first-page":"727","DOI":"10.1016\/j.ekir.2020.11.035","article-title":"Factors Influencing Long-Term Patient and Allograft Outcomes in Elderly Kidney Transplant Recipients","volume":"6","author":"S So","year":"2021","journal-title":"Kidney International Reports"},{"key":"pone.0273371.ref034","unstructured":"ANZDATA Registry. Chapter 11: Kidney Failure among in M\u0101ori in Aotearoa New Zealand Adelaide, Australia: Australia and New Zealand Dialysis and Transplant Registry; 2020 [cited 2022 April 11]. Available from: http:\/\/www.anzdata.org.au."},{"issue":"12","key":"pone.0273371.ref035","doi-asserted-by":"crossref","first-page":"2338","DOI":"10.2215\/CJN.03040410","article-title":"Barriers to living donor kidney transplantation among black or older transplant candidates","volume":"5","author":"FL Weng","year":"2010","journal-title":"Clin J Am Soc Nephrol"},{"issue":"1","key":"pone.0273371.ref036","doi-asserted-by":"crossref","first-page":"204","DOI":"10.1186\/s12939-019-1115-y","article-title":"Experiences, perspectives and values of Indigenous peoples regarding kidney transplantation: systematic review and thematic synthesis of qualitative studies","volume":"18","author":"RC Walker","year":"2019","journal-title":"International Journal for Equity in Health"},{"key":"pone.0273371.ref037","volume-title":"Socioeconomic deprivation profile","author":"Environmental Health Intelligence New Zealand."},{"issue":"12","key":"pone.0273371.ref038","doi-asserted-by":"crossref","first-page":"2656","DOI":"10.1111\/ans.16997","article-title":"Socioeconomic inequality: accessibility and outcomes after renal transplantation in New Zealand.","volume":"91","author":"AM Belyaev","year":"2021","journal-title":"ANZ J Surg"},{"key":"pone.0273371.ref039","volume-title":"Achieving equity in health outcomes: highlights of important national and international papers Wellington:","author":"Ministry of Health","year":"2018"}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0273371","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,8,25]],"date-time":"2022-08-25T17:37:29Z","timestamp":1661449049000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0273371"}},"subtitle":[],"editor":[{"given":"Justyna","family":"Go\u0142\u0119biewska","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2022,8,25]]},"references-count":39,"journal-issue":{"issue":"8","published-online":{"date-parts":[[2022,8,25]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0273371","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,8,25]]}}}