{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,21]],"date-time":"2026-10-21T22:13:45Z","timestamp":1792620825343,"version":"4.5.0"},"reference-count":89,"publisher":"Public Library of Science (PLoS)","issue":"9","license":[{"start":{"date-parts":[[2023,9,15]],"date-time":"2023-09-15T00:00:00Z","timestamp":1694736000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:sec id=\"sec001\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Parkinson\u2019s disease (PD) is a common neurological disease affecting around 1% of people above sixty years old. It is characterised by both motor and non-motor symptoms including tremor, slow movement, unsteady gait, constipation and urinary incontinence. As the disease progresses, individuals living with the disease are likely to lose their independence and autonomy, subsequently affecting their quality of life. People with PD should be supported to live well within their communities but there has been limited research regarding what the public know about PD. This review aims to develop an understanding of how the public view people living with PD, which has the potential to aid the development of an educational resource for the future to improve public awareness and understanding of PD. The purpose of this scoping review is to review and synthesise the literature on the public perception and attitudes towards people living with PD and identify and describe key findings.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec002\">\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>This scoping review aims to explore public perceptions and awareness of Parkinson\u2019s Disease among diverse populations, encompassing beliefs, knowledge, attitudes, and the broader societal context influencing these perceptions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec003\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A scoping review of the literature was conducted following the Preferred Reporting Items for Systematic Reviews and Meta-analysis extension for ScR (PRISMA-ScR). Four electronic databases were searched systematically (CINAHL Plus, Medline, PsycINFO and International Bibliography of the Social Sciences). The Joanna Briggs Institute Critical Appraisal Tools (JBI) were used to assess the quality of primary studies, however, all relevant studies were considered regardless of their methodological quality. The \u2018Population-Concept-Context\u2019 framework was used in the screening process to identify eligible papers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec004\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 23 studies were included in the review representing global research in quantitative (n = 12) and mixed methods approaches (n = 11). All 23 studies adopted some aspect of cross-sectional design. Three themes emerged from the studies, the first being public knowledge of symptoms, causes and treatment of PD and this highlighted a lack of understanding about the disease. Secondly, the review identified public attitudes towards PD, highlighting the social consequences of the disease, including the association between PD and depression, isolation and loss of independence. Finally, the third theme highlighted that there was a paucity of educational resources available to help increase public understanding of PD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec005\">\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Findings from this scoping review have indicated that public awareness of PD is a growing area of interest. To our knowledge, this is the first scoping review on this topic and review findings have indicated that public knowledge and attitudes towards PD vary internationally. The implications of this are that people with PD are more likely to be a marginalised group within their communities. Future research should focus on understanding the perception of the public from the perspective of people with PD, the development of interventions and awareness campaigns to promote public knowledge and attitude and further high-quality research to gauge public perceptions of PD.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1371\/journal.pone.0291357","type":"journal-article","created":{"date-parts":[[2023,9,15]],"date-time":"2023-09-15T13:27:33Z","timestamp":1694784453000},"page":"e0291357","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":33,"title":["Exploring public perceptions and awareness of Parkinson\u2019s disease: A scoping review"],"prefix":"10.1371","volume":"18","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0466-3293","authenticated-orcid":true,"given":"Sophie","family":"Crooks","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gillian","family":"Carter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christine Brown","family":"Wilson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa","family":"Wynne","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patrick","family":"Stark","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5323-6258","authenticated-orcid":true,"given":"Michail","family":"Doumas","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew","family":"Rodger","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emma","family":"O\u2019Shea","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2133-2998","authenticated-orcid":true,"given":"Gary","family":"Mitchell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2023,9,15]]},"reference":[{"issue":"1","key":"pone.0291357.ref001","doi-asserted-by":"crossref","first-page":"3","DOI":"10.3233\/JPD-181474","article-title":"The Emerging Evidence of the Parkinson Pandemic","volume":"8","author":"E Dorsey","year":"2018","journal-title":"Journal of Parkinson\u2019s Disease"},{"issue":"5","key":"pone.0291357.ref002","doi-asserted-by":"crossref","first-page":"735","DOI":"10.1111\/j.1460-9568.2009.06873.x","article-title":"The second brain and Parkinson\u2019s disease","volume":"30","author":"T Lebouvier","year":"2009","journal-title":"European Journal of Neuroscience"},{"key":"pone.0291357.ref003","unstructured":"Parkinson\u2019s UK. Reporting on Parkinson\u2019s: information for journalists [Internet]. 2020. [cited 24 August 2022]. https:\/\/www.parkinsons.org.uk\/about-us\/reporting-parkinsons-information-journalists."},{"key":"pone.0291357.ref004","doi-asserted-by":"crossref","first-page":"795","DOI":"10.1136\/jnnp-2019-322338","article-title":"Parkinson\u2019s disease: etiopathogenesis and treatment","volume":"91","author":"J Jankovic","year":"2020","journal-title":"Journal of Neurology, Neurosurgery & Psychiatry"},{"issue":"7","key":"pone.0291357.ref005","first-page":"1","article-title":"Sex specific cognitive differences in Parkinson disease","volume":"6","author":"T Reekes","year":"2020","journal-title":"npj Parkinsons Dis"},{"issue":"12","key":"pone.0291357.ref006","first-page":"1257","article-title":"The epidemiology of Parkinson\u2019s disease: risk factors and prevention","volume":"15","author":"A Ascherio","year":"2016","journal-title":"Neurology"},{"issue":"8","key":"pone.0291357.ref007","first-page":"504","article-title":"Parkinson\u2019s Disease and Its Management","volume":"40","author":"G DeMaagd","year":"2015","journal-title":"Pharmacy and Therapeutics"},{"key":"pone.0291357.ref008","unstructured":"Parkinson\u2019s UK. 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[Dissertation]. 2021."},{"key":"pone.0291357.ref050","first-page":"196150","article-title":"Knowledge and Attitudes of Parkinson\u2019s Disease in Rural and Urban Mukono District, Uganda: A Cross-Sectional, Community-Based Study","author":"M Kaddumukasa","year":"2015","journal-title":"Parkinson\u2019s Disease"},{"issue":"4","key":"pone.0291357.ref051","first-page":"564","article-title":"GENERAL KNOWLEDGE AND ATTITUDE ABOUT PARKINSON\u2019S DISEASE AMONG ALMAAREFA COLLEGES STUDENTS","volume":"5","author":"A Khalifa","year":"2018","journal-title":"European Journal of Pharmaceutical and Medical Research"},{"issue":"1","key":"pone.0291357.ref052","doi-asserted-by":"crossref","first-page":"15","DOI":"10.7790\/ejap.v2i1.32","article-title":"Beliefs and knowledge about Parkinson\u2019s disease","volume":"2","author":"S Moore","year":"2006","journal-title":"E-Journal of Applied Psychology: Clinical and Social 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Flynn","year":"2009","journal-title":"Aphasiology"},{"issue":"2","key":"pone.0291357.ref067","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1159\/000452500","article-title":"Public Awareness and Knowledge about Parkinson\u2019s Disease: A National Population Based Survey in South Korea","volume":"47","author":"J Youn","year":"2016","journal-title":"Neuroepidemiology"},{"key":"pone.0291357.ref068","first-page":"JBI","volume-title":"JBI Manual for Evidence Synthesis","author":"S Moola","year":"2020"},{"key":"pone.0291357.ref069","unstructured":"Popay J, Roberts H, Sowden A, Petticrew M, Arai L, Rodgers M, et al. Guidance on the Conduct of Narrative Synthesis in Systematic Reviews: A product from the ESRC Methods Programme. [Internet]. 2006. [cited 22 September 2022]. https:\/\/www.lancaster.ac.uk\/media\/lancaster-university\/content-assets\/documents\/fhm\/dhr\/chir\/NSsynthesisguidanceVersion1-April2006.pdf"},{"issue":"6","key":"pone.0291357.ref070","doi-asserted-by":"crossref","first-page":"548","DOI":"10.1001\/jama.2019.22360","article-title":"Diagnosis and Treatment of Parkinson\u2019s Disease: A Review","volume":"323","author":"M Armstrong","year":"2020","journal-title":"JAMA"},{"issue":"2","key":"pone.0291357.ref071","doi-asserted-by":"crossref","first-page":"143","DOI":"10.5152\/npa.2016.12758","article-title":"Motor and Non-Motor Symptoms in Parkinsons\u2019 Disease: Effects on Quality of Life","volume":"54","author":"E Gokcal","year":"2017","journal-title":"Noro Psikiyatr Ars"},{"key":"pone.0291357.ref072","volume-title":"National Library of Medicine Current Bibliographies in Medicine: Health Literacy","author":"S Ratzan","year":"2000"},{"issue":"4","key":"pone.0291357.ref073","first-page":"251","article-title":"Health Literacy Interventions to Improve Health Outcomes in Low- and Middle-Income Countries","volume":"4","author":"S Meherali","year":"2020","journal-title":"Health Lit Res Practic"},{"issue":"3","key":"pone.0291357.ref074","doi-asserted-by":"crossref","first-page":"250","DOI":"10.1002\/mdc3.12272","article-title":"Associations and Implications of Low Health Literacy in Parkinson\u2019s Disease","volume":"3","author":"J Fleisher","year":"2015","journal-title":"Movement Disorders Clinical Practice"},{"key":"pone.0291357.ref075","doi-asserted-by":"crossref","DOI":"10.1177\/2333721416630492","article-title":"Health Literacy and Older Adults","volume":"2","author":"A Chesser","year":"2016","journal-title":"Gerontology and Geriatric Medicine"},{"key":"pone.0291357.ref076","unstructured":"Health literacy around the world: policy approaches to wellbeing through knowledge and empowerment. The Economist. [Internet] 2021. [cited 29 March 2023]. https:\/\/impact.economist.com\/perspectives\/sites\/default\/files\/lon_-_es_-_health_literacy_paper_v8_0.pdf."},{"issue":"5","key":"pone.0291357.ref077","article-title":"Digital Disenfranchisement and COVID-19: Broadband Internet Access as a Social Determinant of Health","volume":"22","author":"J Early","year":"2021","journal-title":"SOPHE"},{"issue":"8","key":"pone.0291357.ref078","doi-asserted-by":"crossref","first-page":"1878","DOI":"10.3390\/cells9081878","article-title":"The Michael J. Fox Foundation\u2019s Strategies for Accelerating Translation of LRRK2 into Therapies for Parkinson Disease","volume":"9","author":"S Padmanabhan","year":"2020","journal-title":"Cells"},{"key":"pone.0291357.ref079","doi-asserted-by":"crossref","first-page":"143","DOI":"10.2147\/PROM.S243990","article-title":"If Your Patients Were Too Embarrassed to Go Out in Public, What Would You Do?\u2013Public Education to Break the Stigma on Parkinson\u2019s Disease Using Integrated Media","volume":"11","author":"P Jagota","year":"2020","journal-title":"Patient Related Outcome Measures"},{"key":"pone.0291357.ref080","doi-asserted-by":"crossref","first-page":"385","DOI":"10.1111\/imj.14782","article-title":"Reducing medication errors for hospital in patients with Parkinsonism","volume":"51","author":"S Lance","year":"2021","journal-title":"Internal Medical Journal"},{"key":"pone.0291357.ref081","doi-asserted-by":"crossref","first-page":"124","DOI":"10.4103\/jehp.jehp_90_20","article-title":"Effective use of social medica platforms for promotion of mental health awareness","volume":"9","author":"K Latha","year":"2020","journal-title":"Journal of Education and Health Promotion"},{"key":"pone.0291357.ref082","unstructured":"Langley J, Patridge R, Ankeny U, Wheeler G, Carroll C. Co-designing resources for knowledge based self-reflection for people living with Parkinson\u2019s disease to better enable independent living. [Internet]. 2019. [cited 31st January 2023]. http:\/\/shura.shu.ac.uk\/25363\/"},{"key":"pone.0291357.ref083","unstructured":"World Health Organisation. Age Friendly Environments. [Internet]. 2022. [cited 17th January 2023]. https:\/\/www.who.int\/teams\/social-determinants-of-health\/demographic-change-and-healthy-ageing\/age-friendly-environments"},{"key":"pone.0291357.ref084","doi-asserted-by":"crossref","first-page":"86","DOI":"10.3389\/fpsyg.2020.00086","article-title":"Sense of Community Mediating Between Age-Friendly Characteristics and Life Satisfaction of Community-Dwelling Older Adults","volume":"11","author":"A Au","year":"2020","journal-title":"Frontiers in Psychology"},{"issue":"1","key":"pone.0291357.ref085","doi-asserted-by":"crossref","first-page":"83","DOI":"10.3390\/healthcare9010083","article-title":"Age-Friendly Health Care: A Systematic Review","volume":"9","author":"J Tavares","year":"2021","journal-title":"Healthcare (Basel)"},{"issue":"7","key":"pone.0291357.ref086","doi-asserted-by":"crossref","first-page":"2059","DOI":"10.1007\/s11606-020-05730-4","article-title":"Lack of Awareness and Common Misconceptions About Palliative Care Among Adults: Insights from a National Survey","volume":"35","author":"S Flieger","year":"2020","journal-title":"J Gen Intern Med"},{"issue":"34","key":"pone.0291357.ref087","article-title":"Public awareness and attitudes toward palliative care in Northern Ireland","volume":"12","author":"S McIlfatrick","year":"2013","journal-title":"BMC Palliat Care"},{"issue":"44","key":"pone.0291357.ref088","article-title":"Examining public knowledge, attitudes and perceptions towards palliative care: a mixed method sequential study","volume":"20","author":"S McIlfatrick","year":"2021","journal-title":"BMC Palliat Care"},{"issue":"367","key":"pone.0291357.ref089","first-page":"1","article-title":"Palliative Care in Parkinson\u2019s Disease","volume":"13","author":"J. Miyasaki","year":"2013","journal-title":"Curr Neurol Neurosci Reo"}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0291357","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,15]],"date-time":"2023-09-15T13:28:38Z","timestamp":1694784518000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0291357"}},"subtitle":[],"editor":[{"given":"Nicola","family":"Diviani","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2023,9,15]]},"references-count":89,"journal-issue":{"issue":"9","published-online":{"date-parts":[[2023,9,15]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0291357","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,9,15]]}}}