{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,29]],"date-time":"2026-08-29T00:21:01Z","timestamp":1787962861657,"version":"build-2784847793"},"reference-count":54,"publisher":"Public Library of Science (PLoS)","issue":"1","license":[{"start":{"date-parts":[[2024,1,19]],"date-time":"2024-01-19T00:00:00Z","timestamp":1705622400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010877","name":"ViiV Healthcare","doi-asserted-by":"publisher","award":["Red Carpet 1255"],"award-info":[{"award-number":["Red Carpet 1255"]}],"id":[{"id":"10.13039\/100010877","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:p>Adolescents and youth living with HIV (AYLHIV) experience worse health outcomes compared to adults. We aimed to understand the experiences of AYLHIV in care in the youth-focused Red-Carpet program in Kenya to assess the quality of service provision and identify programmatic areas for optimization. We conducted focus group discussions among 39 AYLHIV (15\u201324 years) and structured analysis into four thematic areas. Within the HIV testing theme, participants cited fear of positive results, confidentiality and stigma concerns, and suggested engaging the community and youth in HIV testing opportunities. Within the HIV treatment adherence theme, participants cited forgetfulness, stigma, adverse side effects, lack of family support, and treatment illiteracy as barriers to adherence. Most participants reported positive experiences with healthcare providers and peer support. In terms of the HIV status disclosure theme, AYLHIV cited concerns about their future capacity to conceive children and start families and discussed challenges with understanding HIV health implications and sharing their status with friends and partners. Youth voices informing service implementation are essential in strengthening our capacity to optimize the support for AYLHIV within the community, at schools and healthcare facilities.<\/jats:p>","DOI":"10.1371\/journal.pone.0296786","type":"journal-article","created":{"date-parts":[[2024,1,19]],"date-time":"2024-01-19T18:30:30Z","timestamp":1705689030000},"page":"e0296786","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":10,"title":["Experiences of adolescents and youth with HIV testing and linkage to care through the Red Carpet Program (RCP) in Kenya"],"prefix":"10.1371","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3569-8811","authenticated-orcid":true,"given":"Judith","family":"Kose","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8140-7333","authenticated-orcid":true,"given":"Tyriesa","family":"Howard","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8041-6943","authenticated-orcid":true,"given":"Cosima","family":"Lenz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rose","family":"Masaba","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Job","family":"Akuno","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8382-0893","authenticated-orcid":true,"given":"Godfrey","family":"Woelk","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pieter Leendert","family":"Fraaij","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natella","family":"Rakhmanina","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2024,1,19]]},"reference":[{"key":"pone.0296786.ref001","unstructured":"UNICEF, \u201cAdolescent HIV prevention.\u201d Accessed: Dec. 03, 2023. 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Onyango","year":"2021","journal-title":"Open AIDS J"},{"key":"pone.0296786.ref036","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1080\/17290376.2019.1626760","article-title":"Youth living with HIV\/AIDS in secondary schools: perspectives of peer educators and patron teachers in Western Uganda on stressors and supports","volume":"16","author":"E. Kimera","year":"2019","journal-title":"SAHARA J"},{"key":"pone.0296786.ref037","doi-asserted-by":"crossref","first-page":"e60073","DOI":"10.1371\/journal.pone.0060073","article-title":"Living Situation Affects Adherence to Combination Antiretroviral Therapy in HIV-Infected Adolescents in Rwanda: A Qualitative Study","volume":"8","author":"P. R. Mutwa","year":"2013","journal-title":"PLoS One"},{"key":"pone.0296786.ref038","unstructured":"EGPAF, \u201cImplementing the Red Carpet Program\u2014EGPAF.\u201d Accessed: Dec. 04, 2023. [Online]. 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