{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,16]],"date-time":"2026-10-16T18:12:22Z","timestamp":1792174342650,"version":"4.4.0"},"reference-count":31,"publisher":"Public Library of Science (PLoS)","issue":"4","license":[{"start":{"date-parts":[[2024,4,5]],"date-time":"2024-04-05T00:00:00Z","timestamp":1712275200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Research Foundation \u2013 Flanders","award":["G066622N"],"award-info":[{"award-number":["G066622N"]}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:sec id=\"sec001\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>During adolescence, adolescents and young adults (AYAs) are expected to transfer their care from the pediatric environment towards an adult-focused setting. To prevent an abrupt transfer of care, it is recommended to provide AYAs with chronic conditions an adequate transition program. The aim of this paper is to describe the study protocol for the development of a transition program for AYAs with common chronic conditions (COCCOS study), using the Experience-Based Co-Design (EBCD) methodology.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec002\">\n                    <jats:title>Methods and analysis<\/jats:title>\n                    <jats:p>A qualitative, participatory study is conducted in Flanders (Belgium). Study participants are AYAs (n\u226515, 14\u201325 years old, diagnosed with type 1 diabetes, asthma, or obesity), their families, and healthcare providers (n\u226515). The study is composed of eight EBCD stages: clinical site observations, in-depth interviews, trigger film, healthcare providers\u2019 feedback event, AYAs\u2019 feedback event, joint event, co-design workshops, and a celebration event. Photovoice will take place as a starting point of EBCD. Data will be analyzed using thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec003\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Data collection has started in January 2023 and is expected to be completed in May 2024. As of August 2023, over 15 clinical site observations have been conducted. A total of 18 AYAs, two parents, six healthcare providers have been enrolled and a total of 20 interviews have been conducted.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec004\">\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Advancing transitional care is essential for tackling negative health outcomes. Applying the innovative participatory EBCD methodology will reveal key elements of transitional care for AYAs with common chronic conditions in the development of a person-centered transition program.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec005\">\n                    <jats:title>Practice implications<\/jats:title>\n                    <jats:p>Study findings will apply key elements of transitional care of AYAs with chronic conditions in the development of an adequate transition program.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1371\/journal.pone.0298571","type":"journal-article","created":{"date-parts":[[2024,4,5]],"date-time":"2024-04-05T12:19:25Z","timestamp":1712319565000},"page":"e0298571","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":4,"title":["COCCOS study: Developing a transition program for adolescents with chronic conditions using Experience-Based Co-Design. A study protocol"],"prefix":"10.1371","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4821-5444","authenticated-orcid":true,"given":"Natwarin","family":"Janssens","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa","family":"Van Wilder","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ann","family":"Van Hecke","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kim","family":"Van Hoorenbeeck","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karsten","family":"Vanden Wyngaert","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Delphine","family":"De Smedt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eva","family":"Goossens","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2024,4,5]]},"reference":[{"issue":"12","key":"pone.0298571.ref001","doi-asserted-by":"crossref","first-page":"2099","DOI":"10.1377\/hlthaff.2014.0832","article-title":"The rise in chronic conditions among infants, children, and youth can be met with continued health system innovations.","volume":"33","author":"JM Perrin","year":"2014","journal-title":"Health Affairs."},{"issue":"4","key":"pone.0298571.ref002","doi-asserted-by":"crossref","first-page":"819","DOI":"10.1016\/j.psc.2007.07.009","article-title":"Late consequences of pediatric chronic illness.","volume":"30","author":"S Turkel","year":"2007","journal-title":"The Psychiatric clinics of North America."},{"issue":"1","key":"pone.0298571.ref003","doi-asserted-by":"crossref","first-page":"478","DOI":"10.3892\/etm.2017.4526","article-title":"Chronic conditions in adolescents.","volume":"14","author":"M Jin","year":"2017","journal-title":"Exp Ther Med"},{"issue":"1","key":"pone.0298571.ref004","doi-asserted-by":"crossref","first-page":"182","DOI":"10.1542\/peds.2011-0969","article-title":"Pediatrics AAo, Physicians AAoF. 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