{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T04:21:15Z","timestamp":1747196475055,"version":"3.40.5"},"reference-count":29,"publisher":"Public Library of Science (PLoS)","issue":"7","license":[{"start":{"date-parts":[[2024,7,3]],"date-time":"2024-07-03T00:00:00Z","timestamp":1719964800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"NIHR Institute for Health and Social Care Delivery Research","award":["NIHR151776"],"award-info":[{"award-number":["NIHR151776"]}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:p>Adults with a learning disability who receive social care are legally entitled to a personal budget. Personal budgets were introduced to promote choice and control in support. Individual Service Funds were introduced as a flexible way that personal budgets can be managed by a provider while maintaining choice and control for the individual. Individual Service Funds have been shown to improve quality of life for individuals and efficiency in support. Despite this, only 20% of local authorities offer them to adults with a learning disability, demonstrating the need for resources to be developed to support their delivery. This protocol described a co-production study with key stakeholders to develop and refine Individual Service Fund resources. Our primary aim is to co-produce two actionable resources: to support development, delivery, consistency, and sustained provision of ISFs; and to support uptake and optimal use of ISFs by recipients. We also aim to user-test and evaluate these resources with three Local Authorities. The result of this study will be two resources that will support the uptake of Individual Service Funds for adults with a learning disability that will be freely available online.<\/jats:p>","DOI":"10.1371\/journal.pone.0306522","type":"journal-article","created":{"date-parts":[[2024,7,3]],"date-time":"2024-07-03T17:32:49Z","timestamp":1720027969000},"page":"e0306522","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Co-production of research derived actionable resources for the delivery of Individual Service Funds (EQUALD study): Protocol"],"prefix":"10.1371","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5078-7567","authenticated-orcid":true,"given":"Alice","family":"Dunning","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Clare","family":"Tarling","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Liz","family":"Croot","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2024,7,3]]},"reference":[{"key":"pone.0306522.ref001","unstructured":"Office for National Statistics (ONS). Population estimates for the UK, England and Wales, Scotland and Northern Ireland: mid-2020. In: ONS website sb, editor. 2021."},{"key":"pone.0306522.ref002","unstructured":"NHS England. Adult Social Care Activity and Finance Report, England, 2022\u201323. NHS Digital; 2023."},{"key":"pone.0306522.ref003","unstructured":"Department of Health and Social Care. Valuing People: A New Strategy for Learning Disability for the 21st Century. gov.uk; 2001."},{"key":"pone.0306522.ref004","unstructured":"The Care Act 2014, (2014)."},{"key":"pone.0306522.ref005","unstructured":"NHS. Personal budgets and direct payments. 2022."},{"key":"pone.0306522.ref006","unstructured":"House of Commons Committee of Public Accounts. Personal budgets in social care. House of Commons; 2016."},{"issue":"7","key":"pone.0306522.ref007","doi-asserted-by":"crossref","first-page":"797","DOI":"10.1080\/0968759022000039082","article-title":"The Future Challenge for Direct Payments","volume":"17","author":"A Carmichael","year":"2002","journal-title":"Disabil Soc"},{"issue":"3","key":"pone.0306522.ref008","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1111\/bld.12329","article-title":"Getting by\u201d: People with learning disability and the financial responsibility of independent living","volume":"48","author":"J Conder","year":"2020","journal-title":"Br J Learn Disabil"},{"issue":"5","key":"pone.0306522.ref009","doi-asserted-by":"crossref","first-page":"557","DOI":"10.1080\/09687590903010909","article-title":"Disabled People and Self Directed Support Schemes: Re-Conceptualising Work and Welfare in the 21st Century","volume":"24","author":"S Prideaux","year":"2009","journal-title":"Disabil Soc"},{"issue":"3","key":"pone.0306522.ref010","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1177\/1744629511419615","article-title":"Keeping it in the family? People with learning disabilities and families employing their own care and support workers: Findings from a scoping review of the literature","volume":"15","author":"J Manthorpe","year":"2011","journal-title":"J Intellect Disabil"},{"issue":"1","key":"pone.0306522.ref011","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1111\/hsc.12048","article-title":"A scoping review of personalisation in the UK: approaches to social work and people with learning disabilities","volume":"22","author":"D Sims","year":"2014","journal-title":"Health Soc Care Community"},{"issue":"1","key":"pone.0306522.ref012","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1080\/09503150208414292","article-title":"Independence pays? \u2010 Barriers to the progress of direct payments","volume":"14","author":"J Glasby","year":"2002","journal-title":"Practice"},{"volume-title":"The Individual Service Funds Handbook: Implementing Personal Budgets in Provider Organisations","year":"2014","author":"Jessica Kingsley Publishers","key":"pone.0306522.ref013"},{"journal-title":"Contracting for personalised outcomes: learning from emerging practice","year":"2009","author":"Department of Health","key":"pone.0306522.ref014"},{"volume-title":"A report on In Control\u2019s first phase 2003\u20132005","year":"2006","author":"In Control Publications","key":"pone.0306522.ref015"},{"key":"pone.0306522.ref016","unstructured":"Animate. Individual Service Funds: Learning from Inclusions\u2019s 18 Years of Practice. Sheffield: The Centre for Welfare Reform; 2014."},{"volume-title":"Better Lives: An Evaluation of the Choice Support Personalisation Programme for Adults with Learning Difficulties in Southwark","year":"2014","author":"The Centre for Welfare Reform","key":"pone.0306522.ref017"},{"volume-title":"Self-Directed Support in Lancashire: An Interim Report","year":"2009","author":"In Control Publications","key":"pone.0306522.ref018"},{"journal-title":"Personalising a Block Contract Barnsley: Barnsley MB Council and Together","year":"2012","author":"L Wands-Murray","key":"pone.0306522.ref019"},{"key":"pone.0306522.ref020","unstructured":"Citizen Network. Map of ISFs in England. 2019. https:\/\/citizen-network.org\/library\/map-of-isfs-in-england.html accessed 2024."},{"key":"pone.0306522.ref021","unstructured":"NIHR Involve. Guidance on co-producing a research project. Southampton; 2018."},{"volume-title":"Research Coproduction in Healthcare","year":"2022","author":"Wiley-Blackwell","key":"pone.0306522.ref022"},{"issue":"4","key":"pone.0306522.ref023","doi-asserted-by":"crossref","first-page":"699","DOI":"10.2307\/591081","article-title":"Parasites, pawns and partners: disability research and the role of non-disabled researchers","volume":"47","author":"E Stone","year":"1996","journal-title":"Br J Sociol"},{"issue":"7","key":"pone.0306522.ref024","doi-asserted-by":"crossref","first-page":"415","DOI":"10.1177\/0308022620929542","article-title":"Co-production in research: co-researcher perspectives on its value and challenges","volume":"83","author":"H Atkin","year":"2020","journal-title":"Br J Occup Ther"},{"issue":"2","key":"pone.0306522.ref025","doi-asserted-by":"crossref","first-page":"53","DOI":"10.3109\/13668251003716425","article-title":"Reflections on doing inclusive research in the \"making life good in the community\" study","volume":"35","author":"C Bigby","year":"2010","journal-title":"J Intellect Dev Disabil"},{"issue":"1","key":"pone.0306522.ref026","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1186\/s12961-020-00558-0","article-title":"Lost in the shadows: reflections on the dark side of co-production","volume":"18","author":"O Williams","year":"2020","journal-title":"Health Res Policy Syst"},{"journal-title":"Research in Practice: Co-production and strengths based practice","year":"2020","author":"J. Sutton","key":"pone.0306522.ref027"},{"key":"pone.0306522.ref028","article-title":"Social Care Institute for Excellence","author":"P Wood","year":"2022","journal-title":"Developing our understanding of the difference co-production makes in social care"},{"key":"pone.0306522.ref029","unstructured":"Design Council. The Double Diamond: A universally accepted depiction of the design process. 2024.https:\/\/www.designcouncil.org.uk\/our-resources\/the-double-diamond\/ accessed 2024."}],"container-title":["PLOS ONE"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0306522","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,7,3]],"date-time":"2024-07-03T17:33:05Z","timestamp":1720027985000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0306522"}},"subtitle":[],"editor":[{"given":"Avanti","family":"Dey","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2024,7,3]]},"references-count":29,"journal-issue":{"issue":"7","published-online":{"date-parts":[[2024,7,3]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0306522","relation":{},"ISSN":["1932-6203"],"issn-type":[{"type":"electronic","value":"1932-6203"}],"subject":[],"published":{"date-parts":[[2024,7,3]]}}}