{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T07:21:02Z","timestamp":1767856862740,"version":"3.49.0"},"reference-count":49,"publisher":"Public Library of Science (PLoS)","issue":"8","license":[{"start":{"date-parts":[[2024,8,30]],"date-time":"2024-08-30T00:00:00Z","timestamp":1724976000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100003093","name":"Ministry of Higher Education, Malaysia","doi-asserted-by":"publisher","award":["MYPAIR\/1\/2020\/SS05\/TAYLOR\/1"],"award-info":[{"award-number":["MYPAIR\/1\/2020\/SS05\/TAYLOR\/1"]}],"id":[{"id":"10.13039\/501100003093","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100015262","name":"Minist\u00e8re de l\u2019Europe et des Affaires \u00e9trang\u00e8res","doi-asserted-by":"publisher","award":["MYPAIR\/1\/2020\/SS05\/TAYLOR\/1"],"award-info":[{"award-number":["MYPAIR\/1\/2020\/SS05\/TAYLOR\/1"]}],"id":[{"id":"10.13039\/501100015262","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Ministry of National Education, Higher Education and Research (MESRI),","award":["MYPAIR\/1\/2020\/SS05\/TAYLOR\/1"],"award-info":[{"award-number":["MYPAIR\/1\/2020\/SS05\/TAYLOR\/1"]}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS ONE"],"abstract":"<jats:p>This study aims to explore the food management strategies among caregivers\/family members of children with Prader\u2013Willi Syndrome (PWS) using the lens of \u2018familialisation\u2019 of a health problem and the sociology of food socialization. Food intake among individuals with PWS is a main concern for parents, caregivers, and medical practitioners as it affects their physical, mental, and social well-being throughout their lives. Earlier studies on PWS and food intake centered around dietary management, dietary intake and growth, nutritional treatment and pharmacological approaches, nutritional phases, and weight gain. However, little has been done to understand the challenges of managing children with PWS from the sociological lens of food management strategies and socialization among families in Malaysia. This study is based on an investigation involving eight children with PWS and 46 family members and caregivers through lab observations and reflexive interviews. Ten food management strategies were identified that were adopted by the caregivers and families, which were influenced by cultural factors, family norms, and formal and informal support systems. The findings will influence future behavioral interventions to ensure the empowerment and well-being of individuals with PWS and their families.<\/jats:p>","DOI":"10.1371\/journal.pone.0307874","type":"journal-article","created":{"date-parts":[[2024,8,30]],"date-time":"2024-08-30T17:46:53Z","timestamp":1725040013000},"page":"e0307874","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":1,"title":["Management of food socialization for children with Prader-Willi Syndrome: An exploration study in Malaysia"],"prefix":"10.1371","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3471-8374","authenticated-orcid":true,"given":"Puspa Melati","family":"Wan","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Affezah","family":"Ali","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9579-236X","authenticated-orcid":true,"given":"Elise","family":"Mognard","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anasuya Jegathevi","family":"Jegathesan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Soon Li","family":"Lee","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rajalakshmi","family":"Ganesan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mohd Ismail","family":"Noor","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amandine","family":"Rochedy","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marion","family":"Valette","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ma\u00efth\u00e9","family":"Tauber","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Meow-Keong","family":"Thong","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jean-Pierre","family":"Poulain","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2024,8,30]]},"reference":[{"issue":"5","key":"pone.0307874.ref001","doi-asserted-by":"crossref","first-page":"1040","DOI":"10.1002\/ajmg.a.33951","article-title":"Nutritional phases in Prader\u2013Willi syndrome","volume":"155","author":"JL Miller","year":"2011","journal-title":"Am J Med Genet A"},{"issue":"11","key":"pone.0307874.ref002","doi-asserted-by":"crossref","first-page":"4183","DOI":"10.1210\/jc.2008-0649","article-title":"Recommendations for the diagnosis and management of Prader-Willi Syndrome","volume":"93","author":"AP Goldstone","year":"2008","journal-title":"J Clin Endocrinol Metab"},{"issue":"1","key":"pone.0307874.ref003","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1016\/j.tem.2003.11.003","article-title":"Prader-Willi syndrome: advances in genetics, pathophysiology and treatment","volume":"15","author":"AP Goldstone","year":"2004","journal-title":"Trends Endocrinol Metab"},{"issue":"1","key":"pone.0307874.ref004","article-title":"Early diagnosis and care is achieved but should be improved in infants with Prader-Willi syndrome.","volume":"12","author":"C Bar","year":"2017","journal-title":"Orphanet J Rare Dis"},{"issue":"3","key":"pone.0307874.ref005","doi-asserted-by":"crossref","first-page":"264","DOI":"10.4274\/jcrpe.0029","article-title":"Neonatal features of the prader-Willi syndrome; The case for making the diagnosis during the first week of life.","volume":"10","author":"FM \u00c7izmecio\u011flu","year":"2018","journal-title":"J Clin Res Pediatr Endocrinol"},{"key":"pone.0307874.ref006","first-page":"16","article-title":"Prader\u2013Willi syndrome in neonates: twenty cases and review of the literature in Southern China","author":"P Wang","year":"2016","journal-title":"BMC Pediatr"},{"issue":"8","key":"pone.0307874.ref007","doi-asserted-by":"crossref","first-page":"923","DOI":"10.1515\/jpem-2016-0085","article-title":"Feeding, eating and behavioral disturbances in Prader-Willi syndrome and non-syndromal obesity","volume":"29","author":"L Sonnengr\u00fcn","year":"2016","journal-title":"J Pediatr Endocrinol Metab"},{"issue":"14","key":"pone.0307874.ref008","doi-asserted-by":"crossref","first-page":"2195","DOI":"10.1177\/1049732318793417","article-title":"Eating According to One\u2019s Genes? 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