{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,21]],"date-time":"2026-02-21T15:39:58Z","timestamp":1771688398230,"version":"3.50.1"},"reference-count":34,"publisher":"Public Library of Science (PLoS)","issue":"7","license":[{"start":{"date-parts":[[2025,7,7]],"date-time":"2025-07-07T00:00:00Z","timestamp":1751846400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS One"],"abstract":"<jats:sec id=\"sec019\">\n<jats:title>Background<\/jats:title>\n<jats:p>Satisfying patients\u2019 preferences is an important outcome in palliative care. Previous research has reported that a patient\u2019s place of death was associated with quality of death and dying.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec020\">\n<jats:title>Purpose<\/jats:title>\n<jats:p>This study aimed to evaluate the association between the congruence between a patient\u2019s preferred and actual place of death and their quality of death and dying, as perceived by their family caregivers.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec021\">\n<jats:title>Method<\/jats:title>\n<jats:p>Data were obtained from a nationwide cross-sectional questionnaire survey of bereaved family caregivers of patients with cancer in Japan. A total of 13,711 family caregivers participated. We evaluated the quality of death and dying using the Good Death Inventory.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec022\">\n<jats:title>Results<\/jats:title>\n<jats:p>9,123 responses were analyzed (effective response rate: 67%). Patients who died in their preferred place were categorized as the \u201cachieved group,\u201d whereas patients who died in a place that they did not prefer were classified as the \u201cnot-achieved group.\u201d Good Death Inventory scores were significantly higher for the achieved group compared with the not-achieved group (48.8\u2009\u00b1\u200910.1 and 44.0\u2009\u00b1\u20099.5, respectively; p\u2009&lt;\u20090.001). A multiple linear regression analysis indicated that congruence between the preferred and actual place of death was an independent determinant of good quality of death and dying (p\u2009&lt;\u20090.001).<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec023\">\n<jats:title>Conclusion<\/jats:title>\n<jats:p>Congruence between a patient\u2019s preferred and actual place of death may contribute to better quality of death and dying among terminally ill patients with cancer. Congruence between the preferred and actual place of death should be regarded as an essential component in end-of-life care.<\/jats:p>\n<\/jats:sec>","DOI":"10.1371\/journal.pone.0320541","type":"journal-article","created":{"date-parts":[[2025,7,7]],"date-time":"2025-07-07T17:29:51Z","timestamp":1751909391000},"page":"e0320541","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":2,"title":["Congruence between preferred and actual place of death and its association with quality of death and dying in advanced cancer patients: A nationwide survey in Japan"],"prefix":"10.1371","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-0580-2096","authenticated-orcid":true,"given":"Mariko","family":"Shutoh","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tatsuya","family":"Morita","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6094-0788","authenticated-orcid":true,"given":"Maho","family":"Aoyama","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yoshiyuki","family":"Kizawa","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yasuo","family":"Shima","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7637-0409","authenticated-orcid":true,"given":"Mitsunori","family":"Miyashita","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2025,7,7]]},"reference":[{"key":"pone.0320541.ref001"},{"issue":"2","key":"pone.0320541.ref002","doi-asserted-by":"crossref","first-page":"140","DOI":"10.1016\/j.jpainsymman.2005.06.012","article-title":"Good death in Japanese cancer care: a qualitative study","volume":"31","author":"K Hirai","year":"2006","journal-title":"J Pain Symptom Manage"},{"issue":"6","key":"pone.0320541.ref003","doi-asserted-by":"crossref","first-page":"1090","DOI":"10.1093\/annonc\/mdm068","article-title":"Good death in cancer care: a nationwide quantitative study","volume":"18","author":"M Miyashita","year":"2007","journal-title":"Ann Oncol"},{"issue":"4","key":"pone.0320541.ref004","doi-asserted-by":"crossref","first-page":"556","DOI":"10.1016\/j.jpainsymman.2012.09.013","article-title":"Quality indicators for palliative care: update of a systematic review","volume":"46","author":"ML De Roo","year":"2013","journal-title":"J Pain Symptom Manag"},{"issue":"9","key":"pone.0320541.ref005","doi-asserted-by":"crossref","first-page":"1397","DOI":"10.1038\/bjc.2015.312","article-title":"International study of the place of death of people with cancer: a population-level comparison of 14 countries across 4 continents using death certificate data","volume":"113","author":"J Cohen","year":"2015","journal-title":"Br J Cancer"},{"issue":"24","key":"pone.0320541.ref006","doi-asserted-by":"crossref","first-page":"2369","DOI":"10.1056\/NEJMc1911892","article-title":"Changes in the Place of Death in the United States","volume":"381","author":"SH Cross","year":"2019","journal-title":"N Engl J Med"},{"issue":"3","key":"pone.0320541.ref007","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0320086","article-title":"Influence of palliative care policy on place of death for people with different cancer types: a nationwide register study","volume":"20","author":"J \u00d6hl\u00e9n","year":"2025","journal-title":"PLoS One"},{"issue":"10","key":"pone.0320541.ref008","doi-asserted-by":"crossref","first-page":"1752","DOI":"10.1016\/j.socscimed.2009.03.006","article-title":"The rapidly changing location of death in Canada, 1994\u20132004","volume":"68","author":"DM Wilson","year":"2009","journal-title":"Soc Sci Med"},{"issue":"5","key":"pone.0320541.ref009","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1001\/jama.2012.207624","article-title":"Change in end-of-life care for Medicare beneficiaries: Site of death, place of care, and health care transitions in 2000, 2005, and 2009","volume":"309","author":"JM Teno","year":"2013","journal-title":"JAMA"},{"issue":"13","key":"pone.0320541.ref010","doi-asserted-by":"crossref","first-page":"2267","DOI":"10.1200\/JCO.2009.23.2850","article-title":"Which patients with cancer die at home? A study of six European countries using death certificate data","volume":"28","author":"J Cohen","year":"2010","journal-title":"J Clin Oncol"},{"key":"pone.0320541.ref011","article-title":"Place of care and death preferences among recently bereaved family members: a cross-sectional survey","volume":"14","author":"A O\u2019Sullivan","year":"2024","journal-title":"BMJ Support Palliat Care"},{"issue":"29","key":"pone.0320541.ref012","doi-asserted-by":"crossref","first-page":"4457","DOI":"10.1200\/JCO.2009.26.3863","article-title":"Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers\u2019 mental health","volume":"28","author":"AA Wright","year":"2010","journal-title":"J Clin Oncol"},{"issue":"3","key":"pone.0320541.ref013","doi-asserted-by":"crossref","first-page":"287","DOI":"10.1089\/jpm.2000.3.287","article-title":"Place of care in advanced cancer: a qualitative systematic literature review of patient preferences","volume":"3","author":"IJ Higginson","year":"2000","journal-title":"J Palliat Med"},{"issue":"4","key":"pone.0320541.ref014","doi-asserted-by":"crossref","first-page":"357","DOI":"10.1200\/JCO.2014.55.7355","article-title":"Place of death and the differences in patient quality of death and dying and caregiver burden","volume":"33","author":"H Kinoshita","year":"2015","journal-title":"J Clin Oncol"},{"key":"pone.0320541.ref015","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1186\/1472-684X-12-7","article-title":"Heterogeneity and changes in preferences for dying at home: a systematic review","volume":"12","author":"B Gomes","year":"2013","journal-title":"BMC Palliat Care"},{"key":"pone.0320541.ref016","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1001\/jama.291.1.88","volume":"291","author":"JM Teno","year":"2004","journal-title":"JAMA"},{"issue":"1","key":"pone.0320541.ref017","doi-asserted-by":"crossref","first-page":"164","DOI":"10.1186\/s12904-021-00865-5","article-title":"Predictors of the final place of care of patients with advanced cancer receiving integrated home-based palliative care: a retrospective cohort study","volume":"20","author":"RY Tay","year":"2021","journal-title":"BMC Palliat Care"},{"issue":"11","key":"pone.0320541.ref018","doi-asserted-by":"crossref","first-page":"1445","DOI":"10.1007\/s00520-009-0767-3","article-title":"Preference of place for end-of-life cancer care and death among bereaved Japanese families who experienced home hospice care and death of a loved one","volume":"18","author":"J Choi","year":"2010","journal-title":"Support Care Cancer"},{"issue":"1","key":"pone.0320541.ref019","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1188\/09.ONF.69-77","article-title":"Where the dying live: a systematic review of determinants of place of end-of-life cancer care","volume":"36","author":"MA Murray","year":"2009","journal-title":"Oncol Nurs Forum"},{"issue":"7","key":"pone.0320541.ref020","doi-asserted-by":"crossref","first-page":"654","DOI":"10.1177\/1049909116646336","article-title":"The Japan HOspice and Palliative Care Evaluation Study 3: Study Design, Characteristics of Participants and Participating Institutions, and Response Rates","volume":"34","author":"M Aoyama","year":"2017","journal-title":"Am J Hosp Palliat Care"},{"key":"pone.0320541.ref021","article-title":"Measuring end-of-life care outcomes retrospectively","volume":"8","author":"JM Teno","year":"2005","journal-title":"J Palliat Med"},{"issue":"8","key":"pone.0320541.ref022","doi-asserted-by":"crossref","first-page":"628","DOI":"10.1191\/0269216305pm1086oa","article-title":"The last three months of life of Italian cancer patients. Methods, sample characteristics and response rate of the Italian Survey of the Dying of Cancer (ISDOC)","volume":"19","author":"M Costantini","year":"2005","journal-title":"Palliat Med"},{"key":"pone.0320541.ref023","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1186\/s12904-015-0009-z","article-title":"The effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study","volume":"14","author":"LJ Breen","year":"2015","journal-title":"BMC Palliat Care"},{"issue":"7","key":"pone.0320541.ref024","doi-asserted-by":"crossref","first-page":"716","DOI":"10.1001\/jama.297.7.716","article-title":"An empirical examination of the stage theory of grief","volume":"297","author":"PK Maciejewski","year":"2007","journal-title":"JAMA"},{"issue":"14","key":"pone.0320541.ref025","doi-asserted-by":"crossref","first-page":"1665","DOI":"10.1001\/jama.300.14.1665","article-title":"Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment","volume":"300","author":"AA Wright","year":"2008","journal-title":"JAMA"},{"issue":"7540","key":"pone.0320541.ref026","doi-asserted-by":"crossref","first-page":"515","DOI":"10.1136\/bmj.38740.614954.55","article-title":"Factors influencing death at home in terminally ill patients with cancer: systematic review","volume":"332","author":"B Gomes","year":"2006","journal-title":"BMJ"},{"issue":"9","key":"pone.0320541.ref027","doi-asserted-by":"crossref","first-page":"2113","DOI":"10.1093\/annonc\/mdq719","article-title":"Late referrals to home palliative care service affecting death at home in advanced cancer patients in Japan: a nationwide survey","volume":"22","author":"S Fukui","year":"2011","journal-title":"Ann Oncol"},{"issue":"5","key":"pone.0320541.ref028","doi-asserted-by":"crossref","first-page":"486","DOI":"10.1016\/j.jpainsymman.2007.07.009","article-title":"Good death inventory: a measure for evaluating good death from the bereaved family member\u2019s perspective","volume":"35","author":"M Miyashita","year":"2008","journal-title":"J Pain Symptom Manage"},{"issue":"6","key":"pone.0320541.ref029","doi-asserted-by":"crossref","first-page":"612","DOI":"10.1002\/pon.1283","article-title":"Factors contributing to evaluation of a good death from the bereaved family member\u2019s perspective","volume":"17","author":"M Miyashita","year":"2008","journal-title":"Psychooncology"},{"issue":"4","key":"pone.0320541.ref030","doi-asserted-by":"crossref","first-page":"632","DOI":"10.1016\/j.jpainsymman.2010.12.012","article-title":"Measuring comprehensive outcomes in palliative care: validation of the Korean version of the Good Death Inventory","volume":"42","author":"DW Shin","year":"2011","journal-title":"J Pain Symptom Manage"},{"issue":"3","key":"pone.0320541.ref031","doi-asserted-by":"crossref","first-page":"452","DOI":"10.1038\/bmt.2012.244","article-title":"Investigation of the freely available easy-to-use software \u201cEZR\u201d for medical statistics","volume":"48","author":"Y Kanda","year":"2013","journal-title":"Bone Marrow Transplant"},{"key":"pone.0320541.ref032","doi-asserted-by":"crossref","first-page":"1159","DOI":"10.1200\/JCO.2010.31.6752","article-title":"Can this Patient Be Discharged Home? Factors Associated with at-Home Death among Patients with Cancer","volume":"29","author":"A Alonso-Babarro","year":"2011","journal-title":"J Clin Oncol"},{"issue":"22","key":"pone.0320541.ref033","doi-asserted-by":"crossref","first-page":"2783","DOI":"10.1200\/JCO.2011.41.5711","article-title":"Which hospice patients with cancer are able to die in the setting of their choice? Results of a retrospective cohort study","volume":"30","author":"N Jeurkar","year":"2012","journal-title":"J Clin Oncol"},{"key":"pone.0320541.ref034","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1186\/s12904-018-0341-1","article-title":"The interaction of socioeconomic status with place of death: A qualitative analysis of physician experiences","volume":"17","author":"J Wales","year":"2018","journal-title":"BMC Palliat Care"}],"container-title":["PLOS One"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0320541","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,7,7]],"date-time":"2025-07-07T17:29:59Z","timestamp":1751909399000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0320541"}},"subtitle":[],"editor":[{"given":"Gursharan K","family":"Singh","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2025,7,7]]},"references-count":34,"journal-issue":{"issue":"7","published-online":{"date-parts":[[2025,7,7]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0320541","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,7,7]]}}}