{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T02:44:58Z","timestamp":1791513898032,"version":"4.3.4"},"reference-count":119,"publisher":"Public Library of Science (PLoS)","issue":"7","license":[{"start":{"date-parts":[[2025,7,10]],"date-time":"2025-07-10T00:00:00Z","timestamp":1752105600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100014013","name":"UK Research and Innovation","doi-asserted-by":"crossref","award":["MR\/W004151\/1 and MR\/W026872\/1"],"award-info":[{"award-number":["MR\/W004151\/1 and MR\/W026872\/1"]}],"id":[{"id":"10.13039\/100014013","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100012041","name":"Versus Arthritis","doi-asserted-by":"publisher","award":["22891"],"award-info":[{"award-number":["22891"]}],"id":[{"id":"10.13039\/501100012041","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS One"],"abstract":"<jats:sec id=\"sec036\">\n<jats:title>Background<\/jats:title>\n<jats:p>Globally, around 30% of people live with long-term (\u2018chronic\u2019) pain, with known impact on wellbeing, economic and social lives. Despite increasing attention to contextual and psychosocial aspects of pain, there remains need to understand interrelationships between social phenomena and pain, particularly how social phenomena relate to transitions into and out of chronic pain.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec037\">\n<jats:title>Objectives<\/jats:title>\n<jats:p>This study aimed to understand how pain experiences relate to social phenomena. We conducted a systematic review and synthesis of qualitative studies that explored social aspects of adults\u2019 experience of chronic pain relating to any condition.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec038\">\n<jats:title>Eligibility criteria<\/jats:title>\n<jats:p>Studies using empirical qualitative methods, focused on adult experiences of chronic pain, and published after 1979.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec039\">\n<jats:title>Data sources<\/jats:title>\n<jats:p>Eight electronic databases were searched from 1979 to February 2025: EMBASE; PsycINFO; PubMed; CINAHL; Business Source Complete; Web of Science (including Social Sciences Citation Index); Scopus; Sociological Abstracts.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec040\">\n<jats:title>Method<\/jats:title>\n<jats:p>The review used a thematic synthesis approach. Searches identified relevant qualitative studies; quality assessment were undertaken using the Critical Appraisal Skills Programme qualitative studies checklist. Material from relevant literature was extracted, coded and thematically grouped. Double processes were undertaken for rigour.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec041\">\n<jats:title>Results<\/jats:title>\n<jats:p>Analysis of 71 articles, relating to experience of 1,291 people, enabled development of three themes relating to social phenomena and pain: (1) Social connections with family friends and wider community; (2) Lifestyle, including household tasks, eating, sleep and participation in social activities; (3) Occupation, workplace relationships and related financial disadvantage. Although elucidating the importance of social worlds, the literature included in the review paid scant attention to transitions to and from chronic pain or any mechanisms that might support such transitions.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"sec042\">\n<jats:title>Conclusion<\/jats:title>\n<jats:p>The review suggests that social phenomena influence people\u2019s experience of living with chronic pain in important ways. However, little research has explored how and why these social phenomena combine with and influence of transitions to and from pain. These insights could inform development of interventions, education and training to support care for people with chronic pain.<\/jats:p>\n<\/jats:sec>\n<jats:sec>\n<jats:title>PROSPERO registration number<\/jats:title>\n<jats:p>CRD42022337979<\/jats:p>\n<\/jats:sec>","DOI":"10.1371\/journal.pone.0327984","type":"journal-article","created":{"date-parts":[[2025,7,10]],"date-time":"2025-07-10T17:45:15Z","timestamp":1752169515000},"page":"e0327984","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":4,"title":["Social influences in the experience of transition to or from long-term (chronic) pain: A systematic review of qualitative research studies"],"prefix":"10.1371","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3835-5096","authenticated-orcid":true,"given":"Samantha","family":"Stone","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elaine","family":"Wainwright","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3610-347X","authenticated-orcid":true,"given":"Amber","family":"Guest","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cara","family":"Ghiglieri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anica","family":"Zeyen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3353-2882","authenticated-orcid":true,"given":"Rachael","family":"Gooberman-Hill","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2025,7,10]]},"reference":[{"issue":"10289","key":"pone.0327984.ref001","doi-asserted-by":"crossref","first-page":"2082","DOI":"10.1016\/S0140-6736(21)00393-7","article-title":"Chronic pain: an update on burden, best practices, and new advances","volume":"397","author":"SP Cohen","year":"2021","journal-title":"Lancet"},{"issue":"8","key":"pone.0327984.ref002","doi-asserted-by":"crossref","first-page":"503","DOI":"10.1136\/jech.53.8.503","article-title":"Impact of chronic pain on health care seeking, self care, and medication. 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Social influences in the experience of transition to or from long-term (chronic) pain: a meta-synthesis of qualitative research studies. 2022."},{"key":"pone.0327984.ref026","volume-title":"Covidence systematic review software, Veritas Health Innovation, Melbourne, Australia."},{"key":"pone.0327984.ref027","author":"Critical Appraisal Skills Programme.","year":"2018"},{"issue":"1","key":"pone.0327984.ref028","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1177\/2632084320947559","article-title":"Optimising the value of the critical appraisal skills programme (CASP) tool for quality appraisal in qualitative evidence synthesis","volume":"1","author":"HA Long","year":"2020","journal-title":"Research Methods in Medicine & Health Sciences"},{"key":"pone.0327984.ref029","doi-asserted-by":"crossref","first-page":"100051","DOI":"10.1016\/j.glmedi.2024.100051","article-title":"The pillars of trustworthiness in qualitative research","volume":"2","author":"SK Ahmed","year":"2024","journal-title":"Journal of Medicine, Surgery, and Public Health"},{"key":"pone.0327984.ref030","doi-asserted-by":"crossref","DOI":"10.1016\/0147-1767(85)90062-8","volume-title":"Naturalistic inquiry","author":"YS Lincoln","year":"1985"},{"key":"pone.0327984.ref031","doi-asserted-by":"crossref","first-page":"100171","DOI":"10.1016\/j.glmedi.2024.100171","article-title":"Sample size for saturation in qualitative research: Debates, definitions, and strategies","volume":"5","author":"SK Ahmed","year":"2025","journal-title":"Journal of Medicine, Surgery, and Public Health"},{"issue":"9","key":"pone.0327984.ref032","doi-asserted-by":"crossref","first-page":"1225","DOI":"10.1002\/acr.24600","article-title":"Moving Beyond \u201cUntil Saturation Was Reached\u201d: Critically Examining How Saturation Is Used and Reported in Qualitative Research","volume":"73","author":"J Leese","year":"2021","journal-title":"Arthritis Care Res 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Science"},{"issue":"2","key":"pone.0327984.ref036","doi-asserted-by":"crossref","first-page":"93","DOI":"10.3109\/11038128.2012.720275","article-title":"Constructing the experience of chronic pain through discourse","volume":"20","author":"K Robinson","year":"2013","journal-title":"Scand J Occup Ther"},{"issue":"5","key":"pone.0327984.ref037","doi-asserted-by":"crossref","first-page":"462","DOI":"10.1093\/ageing\/afi139","article-title":"Chronic pain as perceived by older people: a qualitative study","volume":"34","author":"B Sofaer","year":"2005","journal-title":"Age Ageing"},{"issue":"3","key":"pone.0327984.ref038","doi-asserted-by":"crossref","first-page":"271","DOI":"10.1111\/j.1526-4637.2007.00297.x","article-title":"Perseverance by older people in their management of chronic pain: a qualitative study","volume":"8","author":"B Sofaer-Bennett","year":"2007","journal-title":"Pain 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acupuncture","volume":"17","author":"JG Hughes","year":"2009","journal-title":"Complement Ther Med"},{"issue":"4","key":"pone.0327984.ref074","doi-asserted-by":"crossref","first-page":"696","DOI":"10.1093\/rheumatology\/ket416","article-title":"It\u2019s like a juggling act: rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes","volume":"53","author":"CA Flurey","year":"2014","journal-title":"Rheumatology (Oxford)"},{"issue":"11","key":"pone.0327984.ref075","doi-asserted-by":"crossref","first-page":"1401","DOI":"10.1016\/j.ijnurstu.2011.05.010","article-title":"A qualitative study to explore the impact of foot ulceration on health-related quality of life in patients with rheumatoid arthritis","volume":"48","author":"J Firth","year":"2011","journal-title":"Int J Nurs Stud"},{"issue":"1","key":"pone.0327984.ref076","doi-asserted-by":"crossref","first-page":"333","DOI":"10.3390\/ijerph19010333","article-title":"The Social Course of Fibromyalgia: Resisting Processes of Marginalisation","volume":"19","author":"N Brown","year":"2021","journal-title":"Int J Environ Res Public Health"},{"issue":"1","key":"pone.0327984.ref077","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1016\/j.socscimed.2005.11.054","article-title":"Personal meanings in the construction of need for total knee replacement surgery","volume":"63","author":"FM Toye","year":"2006","journal-title":"Soc Sci Med"},{"issue":"2","key":"pone.0327984.ref078","doi-asserted-by":"crossref","first-page":"227","DOI":"10.1111\/1467-9566.00292","article-title":"The significance and consequences of having painful and disabled joints in older age: co\u2010existing accounts of normal and disrupted biographies","volume":"24","author":"C Sanders","year":"2002","journal-title":"Sociology Health & Illness"},{"issue":"8","key":"pone.0327984.ref079","doi-asserted-by":"crossref","first-page":"1380","DOI":"10.1017\/S0144686X13000226","article-title":"\u201cKeeping going\u201d: chronic joint pain in older people who describe their health as good","volume":"34","author":"JC Richardson","year":"2014","journal-title":"Ageing Soc"},{"issue":"100","key":"pone.0327984.ref080","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1016\/j.socscimed.2014.06.037","article-title":"Conceptualising time before surgery: the experience of patients waiting for hip replacement","volume":"116","author":"EC Johnson","year":"2014","journal-title":"Soc Sci Med"},{"issue":"577","key":"pone.0327984.ref081","doi-asserted-by":"crossref","first-page":"597","DOI":"10.3399\/bjgp10X515106","article-title":"Perceptions of joint pain and feeling well in older people who reported being healthy: a qualitative study","volume":"60","author":"J Grime","year":"2010","journal-title":"Br J Gen Pract"},{"issue":"1","key":"pone.0327984.ref082","doi-asserted-by":"crossref","first-page":"419","DOI":"10.1186\/s12891-020-03428-6","article-title":"Nobody says to you \u201ccome back in six months and we\u2019ll see how you\u2019re doing\u201d: a qualitative interview study exploring young adults\u2019 experiences of sport-related knee injury","volume":"21","author":"R Watkins","year":"2020","journal-title":"BMC Musculoskelet Disord"},{"issue":"3","key":"pone.0327984.ref083","doi-asserted-by":"crossref","first-page":"185","DOI":"10.1177\/1742395310391491","article-title":"Lay models of self-management: how do people manage knee osteoarthritis in context?","volume":"7","author":"A Morden","year":"2011","journal-title":"Chronic Illn"},{"issue":"4","key":"pone.0327984.ref084","doi-asserted-by":"crossref","first-page":"357","DOI":"10.1177\/1363459315600773","article-title":"Temporally divergent significant meanings, biographical disruption and self-management for chronic joint pain","volume":"21","author":"A Morden","year":"2017","journal-title":"Health (London)"},{"issue":"26","key":"pone.0327984.ref085","doi-asserted-by":"crossref","first-page":"2550","DOI":"10.3109\/09638288.2016.1138549","article-title":"Trajectories of need: understanding patients\u2019 use of support during the journey through knee replacement","volume":"38","author":"EC Johnson","year":"2016","journal-title":"Disabil Rehabil"},{"issue":"10","key":"pone.0327984.ref086","doi-asserted-by":"crossref","first-page":"1554","DOI":"10.1002\/acr.21700","article-title":"Role of exercise for knee pain: what do older adults in the community think?","volume":"64","author":"MA Holden","year":"2012","journal-title":"Arthritis Care Res (Hoboken)"},{"issue":"4","key":"pone.0327984.ref087","doi-asserted-by":"crossref","first-page":"666","DOI":"10.1002\/art.22681","article-title":"Assessing chronic joint pain: lessons from a focus group study","volume":"57","author":"R Gooberman-Hill","year":"2007","journal-title":"Arthritis Rheum"},{"issue":"23","key":"pone.0327984.ref088","doi-asserted-by":"crossref","first-page":"2203","DOI":"10.3109\/09638288.2014.1002579","article-title":"Living with chronic neuropathic pain after spinal cord injury: an interpretative phenomenological analysis of community experience","volume":"37","author":"JH Hearn","year":"2015","journal-title":"Disabil Rehabil"},{"issue":"3","key":"pone.0327984.ref089","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1177\/17423953060020030201","article-title":"Remaking the future: contemplating a life with chronic widespread pain","volume":"2","author":"JC Richardson","year":"2006","journal-title":"Chronic Illn"},{"key":"pone.0327984.ref090","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1186\/1471-2296-7-27","article-title":"Experiences and perceptions of people with headache: a qualitative study","volume":"7","author":"DA Leiper","year":"2006","journal-title":"BMC Fam Pract"},{"key":"pone.0327984.ref091","unstructured":"Belam J, Harris G, Kernick D, Kline F, Lindley K, McWatt J. A qualitative study of migraine involving patient researchers. 2005."},{"key":"pone.0327984.ref092","article-title":"Extracting qualitative evidence","volume-title":"Supplementary Guidance for Inclusion of Qualitative Research in Cochrane Systematic Reviews of Interventions Version 1","author":"J Noyes","year":"2011"},{"key":"pone.0327984.ref093","volume-title":"NVivo (Version 14) 2023","author":"Lumivero"},{"key":"pone.0327984.ref094","volume-title":"Qualitative data analysis with NVivo","author":"K Jackson","year":"2019"},{"issue":"2","key":"pone.0327984.ref095","doi-asserted-by":"crossref","first-page":"431","DOI":"10.1016\/j.socscimed.2004.11.065","article-title":"Managing constraint: the experience of people with chronic pain","volume":"61","author":"A Miles","year":"2005","journal-title":"Social Science & Medicine"},{"issue":"3","key":"pone.0327984.ref096","doi-asserted-by":"crossref","first-page":"108","DOI":"10.1177\/2049463717709641","article-title":"Growing pains: understanding the needs of emerging adults with chronic pain","volume":"11","author":"H Twiddy","year":"2017","journal-title":"Br J Pain"},{"issue":"2","key":"pone.0327984.ref097","doi-asserted-by":"crossref","first-page":"133","DOI":"10.1177\/2374373518786013","article-title":"Impact of Chronic Pain on Patients\u2019 Quality of Life: A Comparative Mixed-Methods Study","volume":"6","author":"MA Hadi","year":"2019","journal-title":"J Patient Exp"},{"issue":"6","key":"pone.0327984.ref098","doi-asserted-by":"crossref","first-page":"702","DOI":"10.1093\/ageing\/aft119","article-title":"\u201cLiving within your limits\u201d: activity restriction in older people experiencing chronic pain","volume":"42","author":"F Mackichan","year":"2013","journal-title":"Age Ageing"},{"issue":"1","key":"pone.0327984.ref099","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2017-018624","article-title":"The experience of living with patellofemoral pain-loss, confusion and fear-avoidance: a UK qualitative study","volume":"8","author":"BE Smith","year":"2018","journal-title":"BMJ Open"},{"issue":"5","key":"pone.0327984.ref100","doi-asserted-by":"crossref","first-page":"459","DOI":"10.1177\/1363459310383593","article-title":"It\u2019s not fair: an Interpretative Phenomenological Analysis of discourses of justice and fairness in chronic pain","volume":"15","author":"JL McParland","year":"2011","journal-title":"Health (London)"},{"issue":"1","key":"pone.0327984.ref101","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1080\/18387357.2016.1143332","article-title":"Living well with chronic pain","volume":"15","author":"J Sheedy","year":"2016","journal-title":"Advances in Mental Health"},{"issue":"3","key":"pone.0327984.ref102","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1080\/24740527.2020.1768835","article-title":"The lived experiences of chronic pain among immigrant Indian-Canadian women: A phenomenological analysis","volume":"4","author":"N Mustafa","year":"2020","journal-title":"Can J Pain"},{"issue":"10","key":"pone.0327984.ref103","first-page":"551","article-title":"Decreasing the stigma burden of chronic pain","volume":"25","author":"DB Monsivais","year":"2013","journal-title":"J Am Assoc Nurse Pract"},{"issue":"1","key":"pone.0327984.ref104","doi-asserted-by":"crossref","first-page":"1926057","DOI":"10.1080\/17482631.2021.1926057","article-title":"\u201cMoving between living in the shadow of pain and living a life with the pain in the shadows\u201d - women\u2019s experiences of daily life with chronic widespread pain: a qualitative study","volume":"16","author":"M Westerg\u00e5rden","year":"2021","journal-title":"Int J Qual Stud Health Well-being"},{"issue":"2","key":"pone.0327984.ref105","doi-asserted-by":"crossref","first-page":"324","DOI":"10.1093\/rheumatology\/ker317","article-title":"Tension at the borders: perceptions of role overload, conflict, strain and facilitation in work, family and health roles among employed individuals with arthritis","volume":"51","author":"MAM Gignac","year":"2012","journal-title":"Rheumatology (Oxford)"},{"issue":"4","key":"pone.0327984.ref106","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1007\/s11614-002-0017-0","article-title":"Sociological theory and chronic illness: Current perspectives and debates","volume":"27","author":"M Bury","year":"2002","journal-title":"\u00d6ZS"},{"issue":"4","key":"pone.0327984.ref107","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1111\/j.1467-9566.1991.tb00522.x","article-title":"The sociology of chronic illness: a review of research and prospects","volume":"13","author":"M Bury","year":"1991","journal-title":"Sociology Health & Illness"},{"issue":"3","key":"pone.0327984.ref108","doi-asserted-by":"crossref","first-page":"224","DOI":"10.1007\/BF00989485","article-title":"Managing chronic illness at home: Three lines of work","volume":"8","author":"J Corbin","year":"1985","journal-title":"Qual Sociol"},{"key":"pone.0327984.ref109","doi-asserted-by":"crossref","DOI":"10.2196\/52117","article-title":"Improving Health for Older Adults With Pain Through Engagement: Protocol for Tailoring and Open Pilot Testing of a Mind-Body Activity Program Delivered Within Shared Medical Visits in an Underserved Community Clinic","volume":"12","author":"K McDermott","year":"2023","journal-title":"JMIR Res Protoc"},{"issue":"1","key":"pone.0327984.ref110","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1037\/0003-066X.47.1.6","article-title":"Establishing and maintaining healthy environments. 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