{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T04:08:28Z","timestamp":1777954108159,"version":"3.51.4"},"reference-count":72,"publisher":"Public Library of Science (PLoS)","issue":"5","license":[{"start":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T00:00:00Z","timestamp":1777852800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000864","name":"British HIV Association","doi-asserted-by":"publisher","award":["BHIVA\/5020\/2020\/Brown"],"award-info":[{"award-number":["BHIVA\/5020\/2020\/Brown"]}],"id":[{"id":"10.13039\/501100000864","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS One"],"abstract":"<jats:sec id=\"sec001\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Disability is increasingly experienced by women ageing with HIV and multimorbidity. The Episodic Disability Questionnaire (EDQ) measures the presence, severity, and episodic nature of disability across six domains. We evaluated EDQ properties among women living with HIV in the United Kingdom.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec002\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Participants in the Positive Transitions Through the Menopause (PRIME) study completed the EDQ at two timepoints (1 week apart), criterion measures (WHODAS 2.0, EQ-5D-5L, Work and Social Adjustment Scale), and a demographic questionnaire. We evaluated internal consistency, test-retest reliability, measurement precision (Minimum Detectable Change (MDC) 95%), and construct validity. We assessed disability prevalence using WHODAS 2.0 (moderate threshold) and Equality Act Disability Definition (severe threshold).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec003\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Of 104 participants (median age 56 years, 65% Black ethnicity), 93 (89%) completed the EDQ twice. Median duration since HIV diagnosis was 23 years; 98% had undetectable viral loads and 86% reported multimorbidity. Cronbach\u2019s alpha ranged from 0.83 (social domain) to 0.92 (daily activities domain). ICC ranged from 0.70 (physical domain) to 0.91 (daily activities domain). Precision varied, highest in daily activities (MDC95%: 6.10) and lowest in mental-emotional domains (MDC95%: 11.52). The EDQ met 80% (n\u2009=\u200947\/59) of construct validity hypotheses. Disability prevalence was 79.81% (95%CI 70.57, 86.79) moderate and 41.75% (32.24, 51.88) severe.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec004\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The EDQ possesses internal consistency, test-retest reliability, and construct validity with varied precision among women living with HIV. Disability prevalence in this sample was higher than in the general population. The EDQ offers value for research, clinical practice, and national policy by enabling measurement and description of disability, supporting intervention evaluation, and informing priority-setting and healthcare service planning for women living with HIV in the UK.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1371\/journal.pone.0336679","type":"journal-article","created":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T17:26:46Z","timestamp":1777915606000},"page":"e0336679","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: A self-reported repeated measure study"],"prefix":"10.1371","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4956-243X","authenticated-orcid":true,"given":"Darren A.","family":"Brown OBE","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shema","family":"Tariq","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marta","family":"Boffito","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David","family":"Asboe","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ana","family":"Milinkovic","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nneka","family":"Nwokolo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0135-3425","authenticated-orcid":true,"given":"Carol","family":"Flavell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sophie","family":"Strachan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lisa","family":"Avery","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1632-6537","authenticated-orcid":true,"given":"Kelly K.","family":"O\u2019Brien","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Richard","family":"Harding","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2026,5,4]]},"reference":[{"key":"pone.0336679.ref001","unstructured":"UK Health Security Agency. HIV testing, PrEP, new HIV diagnoses and care outcomes for people accessing HIV services: 2025 report. 2025; Available from: https:\/\/www.gov.uk\/government\/statistics\/hiv-annual-data-tables\/hiv-testing-prep-new-hiv-diagnoses-and-care-outcomes-for-people-accessing-hiv-services-2025-report"},{"key":"pone.0336679.ref002","doi-asserted-by":"crossref","first-page":"1136999","DOI":"10.3389\/fsysb.2023.1136999","article-title":"Changes in multimorbidity burden over a 3-5 year period among people with HIV","volume":"3","author":"L Sukumaran","year":"2023","journal-title":"Front Syst Biol"},{"issue":"5","key":"pone.0336679.ref003","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0267271","article-title":"Prevalence, severity, and risk factors of disability among adults living with HIV accessing routine outpatient HIV care in London, United Kingdom (UK): A cross-sectional self-report study","volume":"17","author":"DA Brown","year":"2022","journal-title":"PLoS One"},{"key":"pone.0336679.ref004","doi-asserted-by":"crossref","first-page":"76","DOI":"10.1186\/1477-7525-6-76","article-title":"Exploring disability from the perspective of adults living with HIV\/AIDS: development of a conceptual framework","volume":"6","author":"KK O\u2019Brien","year":"2008","journal-title":"Health Qual Life Outcomes"},{"key":"pone.0336679.ref005","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1186\/1758-2652-2-5","article-title":"Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV\/AIDS","volume":"12","author":"KK O\u2019Brien","year":"2009","journal-title":"J Int AIDS Soc"},{"issue":"1","key":"pone.0336679.ref006","doi-asserted-by":"crossref","first-page":"134","DOI":"10.23736\/S1973-9087.17.04565-8","article-title":"Functioning: the third health indicator in the health system and the key indicator for rehabilitation","volume":"53","author":"G Stucki","year":"2017","journal-title":"Eur J Phys Rehabil Med"},{"issue":"8","key":"pone.0336679.ref007","doi-asserted-by":"crossref","first-page":"542","DOI":"10.1111\/hiv.12758","article-title":"Towards person-centred care for people living with HIV: what core outcomes matter, and how might we assess them? 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Measuring disability prevalence. 2007 [cited 2025 Mar 30]. 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Family Resources Survey: financial year 2022 to 2023. 2025. Available from: https:\/\/www.gov.uk\/government\/statistics\/family-resources-survey-financial-year-2022-to-2023\/family-resources-survey-financial-year-2022-to-2023"},{"issue":"1","key":"pone.0336679.ref060","doi-asserted-by":"crossref","first-page":"594","DOI":"10.1186\/s12879-019-4203-0","article-title":"Characterizing the disability experience among adults living with HIV: a structural equation model using the HIV disability questionnaire (HDQ) within the HIV, health and rehabilitation survey","volume":"19","author":"KK O\u2019Brien","year":"2019","journal-title":"BMC Infect Dis"},{"key":"pone.0336679.ref061","first-page":"8842110","article-title":"Musculoskeletal pain during the menopausal transition: a systematic review and meta-analysis","volume":"2020","author":"C-B Lu","year":"2020","journal-title":"Neural Plast"},{"key":"pone.0336679.ref062","first-page":"21","article-title":"Health-related quality of life of adults with HIV in England, Wales, and Scotland: findings from Positive Voices 2022","volume-title":"In: British HIV Association (BHIVA) Spring Conference","author":"C Kelly","year":"2024"},{"key":"pone.0336679.ref063","unstructured":"UK Health Security Agency. HIV Action Plan monitoring and evaluation framework 2023 report. 2025. Available from: https:\/\/www.gov.uk\/government\/publications\/hiv-monitoring-and-evaluation-framework\/hiv-action-plan-monitoring-and-evaluation-framework-2023-report"},{"key":"pone.0336679.ref064","article-title":"Trajectories of disability and influence of contextual factors among adults aging with HIV: insights from a community-based longitudinal study in Toronto, Canada","author":"TT Su","year":"2024","journal-title":"medRxiv"},{"key":"pone.0336679.ref065","unstructured":"World Health Organization. Global report on health equity for persons with disabilities. 2022. Available from: https:\/\/www.who.int\/publications\/i\/item\/9789240063600"},{"key":"pone.0336679.ref066","volume-title":"Public perceptions and attitudes towards disabled people in the UK","author":"Disability Unit Office for Equality and Opportunity.","year":"2026"},{"issue":"16","key":"pone.0336679.ref067","doi-asserted-by":"crossref","first-page":"4212","DOI":"10.1080\/09638288.2024.2441424","article-title":"Estimating disability prevalence in population surveys: an exploratory study using national surveys carried out in Ethiopia, Uganda, Tanzania and USA","volume":"47","author":"C Sabariego","year":"2025","journal-title":"Disabil Rehabil"},{"issue":"3","key":"pone.0336679.ref068","doi-asserted-by":"crossref","first-page":"273","DOI":"10.1163\/092902707X240620","article-title":"UN Convention on the rights of persons with disabilities","volume":"14","author":"A Hendriks","year":"2007","journal-title":"Eur J Health Law"},{"key":"pone.0336679.ref069","first-page":"90","volume-title":"The 2030 agenda for sustainable development: transformative change through the sustainable development goals?","author":"S Weiland","year":"2021"},{"key":"pone.0336679.ref070","doi-asserted-by":"crossref","first-page":"103317","DOI":"10.1016\/j.eclinm.2025.103317","article-title":"Development of a World Health Organization indicator and corresponding questions to measure effective coverage of rehabilitation","volume":"85","author":"W De Groote","year":"2025","journal-title":"EClinicalMedicine"},{"issue":"1","key":"pone.0336679.ref071","doi-asserted-by":"crossref","DOI":"10.1111\/hex.70167","article-title":"Women\u2019s menopausal experiences in the UK: a systemic literature review of qualitative studies","volume":"28","author":"A Anto","year":"2025","journal-title":"Health Expect"},{"issue":"1","key":"pone.0336679.ref072","doi-asserted-by":"crossref","first-page":"14","DOI":"10.1310\/hct1501-14","article-title":"Minorities remain underrepresented in HIV\/AIDS research despite access to clinical trials","volume":"15","author":"JR Castillo-Mancilla","year":"2014","journal-title":"HIV Clin Trials"}],"container-title":["PLOS One"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0336679","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T17:26:59Z","timestamp":1777915619000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0336679"}},"subtitle":[],"editor":[{"given":"Mariagrazia","family":"Benassi","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2026,5,4]]},"references-count":72,"journal-issue":{"issue":"5","published-online":{"date-parts":[[2026,5,4]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0336679","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,4]]}}}