{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,22]],"date-time":"2026-01-22T11:57:51Z","timestamp":1769083071310,"version":"3.49.0"},"reference-count":51,"publisher":"Public Library of Science (PLoS)","issue":"1","license":[{"start":{"date-parts":[[2026,1,21]],"date-time":"2026-01-21T00:00:00Z","timestamp":1768953600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100020884","name":"Agencia Nacional de Investigaci\u00c3\u00b3n y Desarrollo","doi-asserted-by":"publisher","award":["3220665"],"award-info":[{"award-number":["3220665"]}],"id":[{"id":"10.13039\/501100020884","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100020884","name":"Agencia Nacional de Investigaci\u00c3\u00b3n y Desarrollo","doi-asserted-by":"publisher","award":["11250327"],"award-info":[{"award-number":["11250327"]}],"id":[{"id":"10.13039\/501100020884","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS One"],"abstract":"<jats:sec id=\"sec001\">\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Care involves unequal relationships between gender, corporal conditions and responsibilities. This is especially sensitive for the participation and socio-community inclusion of people with disabilities and their caregivers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec002\">\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To analyze the perceptions of caregivers regarding the construction of socio-community care for people with disabilities in the south-central Zone of Chile.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec003\">\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Qualitative study from a situated feminist perspective. Ten semi-structured interviews were conducted with women caregivers of people with disabilities during the years 2021\u20132022. The interviews were based on qualitative thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec004\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The analysis revealed two central categories and six emerging subcategories: a) The world of the system; a.1) Health and rehabilitation, a.2) Education, a.3) Work, and b) The world of life; b.1) Family, b.2) Neighbors and friends, b.3) Community organizations. Socio-community care is a system of action and links that are woven between \u201cThe world of the system\u201d and \u201cThe world of life\u201d to sustain existence. They are a provision of support and assistance from public institutions and communities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec005\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Socio-community care is built with a lot of effort and exhaustion on the part of the families of people with disabilities, especially by women. Of particular importance is the responsibility and self-organization of communities to meet the needs and care of persons with disabilities. Hence the urgency to develop comprehensive care systems where the State takes greater and better responsibility.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1371\/journal.pone.0339403","type":"journal-article","created":{"date-parts":[[2026,1,21]],"date-time":"2026-01-21T18:34:46Z","timestamp":1769020486000},"page":"e0339403","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Socio-community care of people with disabilities: Experiences of caregivers living in south-central zone of Chile"],"prefix":"10.1371","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7027-6908","authenticated-orcid":true,"given":"Juan Andr\u00e9s","family":"Pino-Mor\u00e1n","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0001-9733-8221","authenticated-orcid":true,"given":"Rodrigo","family":"Gonz\u00e1lez","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"P\u00eda","family":"Rodr\u00edguez-Garrido","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9641-8350","authenticated-orcid":true,"given":"Mar\u00eda Soledad","family":"Burrone","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2026,1,21]]},"reference":[{"key":"pone.0339403.ref001","volume-title":"Miradas latinoamericanas a los cuidados","author":"K Batthy\u00e1ny","year":"2020"},{"key":"pone.0339403.ref002","unstructured":"Gilligan C. La \u00e9tica del cuidado. https:\/\/www.revistaseden.org\/boletin\/files\/6964_etica_del_cuidado_2013.pdf. 2013."},{"key":"pone.0339403.ref003","unstructured":"V\u00e1squez A, Pereira MA. Construyendo sistemas de apoyos y cuidados para la vida en comunidad de las personas con discapacidad en Am\u00e9rica Latina y el caribe. https:\/\/scioteca.caf.com\/bitstream\/handle\/123456789\/2048\/19%20May%20Construyendo%20sistemas%20de%20apoyos%20y%20cuidados%20CAF-20230614.pdf?sequence=6&isAllowed=y. 2023."},{"key":"pone.0339403.ref004","first-page":"19","article-title":"Pensar el cuidado como problema social","volume-title":"Los derroteros del cuidado","author":"P Aguilar","year":"2019"},{"issue":"1","key":"pone.0339403.ref005","article-title":"Subjetividad y materialidad del cuidado: \u00e9tica, trabajo y proyecto pol\u00edtico","volume":"2016","author":"P Molinier","year":"2016","journal-title":"Papeles"},{"key":"pone.0339403.ref006","doi-asserted-by":"crossref","DOI":"10.4324\/9781003070672","volume-title":"Moral Boundaries","author":"JC Tronto","year":"2020"},{"issue":"2","key":"pone.0339403.ref007","article-title":"La gesti\u00f3n de lo com\u00fan como nuevas formas de ciudadan\u00eda. El caso de las cuidadoras comunitarias migrantes en C\u00f3rdoba, Argentina","volume":"30","author":"MJ Magliano","year":"2021","journal-title":"RES"},{"key":"pone.0339403.ref008","article-title":"El trabajo de cuidados y los trabajadores del cuidado para un futuro con trabajo decente","author":"Organizaci\u00f3n Internacional del Trabajo OIT","year":"2019"},{"key":"pone.0339403.ref009","unstructured":"Banco Mundial. La inclusi\u00f3n de la discapacidad. https:\/\/www.bancomundial.org\/es\/topic\/disability. 2023. 2024 May 14."},{"issue":"2","key":"pone.0339403.ref010","doi-asserted-by":"crossref","first-page":"1366","DOI":"10.3390\/ijerph20021366","article-title":"Politico-Epistemic Tensions Regarding Personal Assistance and Care for People with Disabilities: An Integrative Literature Review","volume":"20","author":"JA Pino-Mor\u00e1n","year":"2023","journal-title":"Int J Environ Res Public Health"},{"issue":"1","key":"pone.0339403.ref011","doi-asserted-by":"crossref","first-page":"8","DOI":"10.25214\/25907816.1494","article-title":"El cuidado como cuesti\u00f3n de tiempo: una perspectiva feminista sobre el tiempo cotidiano de cuidadoras de personas adultas con discapacidad","volume":"23","author":"D Grand\u00f3n Valenzuela","year":"2023","journal-title":"Rev Ocup hum"},{"key":"pone.0339403.ref012","volume-title":"La insurreccio\u0301n de la vulnerabilidad. Para una pedagogi\u0301a de los cuidados y la resistencia","author":"Pie\u0301 A","year":"2020"},{"key":"pone.0339403.ref013","volume-title":"El cuerpo deseado. La conversaci\u00f3n pendiente entre feminismo y anticapacitismo","author":"A Garc\u00eda-Santesmases","year":"2023"},{"key":"pone.0339403.ref014","volume-title":"El enfoque comunitario: Estudio de sus modelos base","author":"V Mart\u00ednez","year":"2006"},{"issue":"2","key":"pone.0339403.ref015","article-title":"Cuidado comunitario, pol\u00edticas p\u00fablicas y racionalidades pol\u00edticas. El Estado y las trabajadoras vecinales de la Provincia de Buenos Aires, Argentina","volume":"30","author":"C Rosas","year":"2021","journal-title":"RES"},{"issue":"4","key":"pone.0339403.ref016","doi-asserted-by":"crossref","first-page":"712","DOI":"10.1016\/j.dhjo.2019.06.011","article-title":"Satisfaction, safety, and supports: Comparing people with disabilities\u2019 insider experiences about participation in institutional and community living","volume":"12","author":"AJ Sheth","year":"2019","journal-title":"Disabil Health J"},{"key":"pone.0339403.ref017","volume-title":"Subversi\u00f3n feminista de la econom\u00eda: aportes para el debate sobre el conflicto capital-vida","author":"A P\u00e9rez Orozco","year":"2014"},{"issue":"3","key":"pone.0339403.ref018","doi-asserted-by":"crossref","first-page":"101284","DOI":"10.1016\/j.dhjo.2022.101284","article-title":"Burden and depression among informal caregivers of visually impaired patients in Mexico","volume":"15","author":"RE Ruiz-Lozano","year":"2022","journal-title":"Disabil Health J"},{"issue":"1","key":"pone.0339403.ref019","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1177\/000271629956100103","article-title":"The Cost of Caring","volume":"561","author":"P England","year":"1999","journal-title":"The ANNALS of the American Academy of Political and Social Science"},{"issue":"3","key":"pone.0339403.ref020","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1080\/135457099337806","article-title":"Of Markets And Martyrs: Is It OK To Pay Well For Care?","volume":"5","author":"JA Nelson","year":"1999","journal-title":"Feminist Economics"},{"issue":"3","key":"pone.0339403.ref021","doi-asserted-by":"crossref","first-page":"1063","DOI":"10.1590\/S0103-73312012000300012","article-title":"Itinerario terap\u00e9utico de las personas con discapacidad y mediaciones en el cuidado de la salud: la mirada de los familiares","volume":"22","author":"MP Venturiello","year":"2012","journal-title":"Physis"},{"key":"pone.0339403.ref022","volume-title":"Manual de metodolog\u00eda de investigaci\u00f3n cualitativa: Vol. I: el campo de la investigaci\u00f3n cualitativa","author":"N Denzin","year":"2012"},{"key":"pone.0339403.ref023","first-page":"45","article-title":"Construyendo metodolog\u00edas feministas desde el feminismo decolonial.","volume-title":"Otras formas de (re)conocer. Reflexiones, herramientas y aplicaciones desde la investigaci\u00f3n feminista","author":"O. Curiel","year":"2014"},{"key":"pone.0339403.ref024","first-page":"147","article-title":"Ma\u0301s alla\u0301 del eurocentrismo: el sistema-mundo y los li\u0301mites de la modernidad.","volume-title":"Pensar (en) los intersticios. Teor\u00eda y pr\u00e1ctica de la cr\u00edtica postcolonial","author":"E. Dussel","year":"1999"},{"key":"pone.0339403.ref025","first-page":"7","article-title":"Una cr\u00edtica descolonial a la epistemolog\u00eda feminista cr\u00edtica","volume":"184","author":"Y Espinosa-Mi\u00f1oso","year":"2014","journal-title":"El cotidiano"},{"key":"pone.0339403.ref026","unstructured":"Ministerio de Desarrollo Social y Familia. Encuesta de Discapacidad y dependencia 2022 (ENDIDE). 2023. https:\/\/observatorio.ministeriodesarrollosocial.gob.cl\/storage\/docs\/endide\/Presentacion_resultados_ENDIDE_2022_Poblacion_adulta_version_mayo_2023.pdf"},{"key":"pone.0339403.ref027","volume-title":"T\u00e9cnicas cualitativas de investigaci\u00f3n social","author":"M Valles","year":"1997"},{"key":"pone.0339403.ref028","first-page":"194","article-title":"La entrevista en profundidad","volume":"2","author":"S Taylor","year":"2008","journal-title":"M\u00e9todos cuantitativos aplicados"},{"key":"pone.0339403.ref029","doi-asserted-by":"crossref","unstructured":"World Medical Association WMA. World Medical Association declaration of Helsinki: ethical principles for medical research involving human subjects. https:\/\/www.wma.net\/policies-post\/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects\/. 1964. 2024 May 14.","DOI":"10.1515\/9783110208856.233"},{"key":"pone.0339403.ref030","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1186\/1471-2288-12-181","article-title":"Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ","volume":"12","author":"A Tong","year":"2012","journal-title":"BMC Med Res Methodol"},{"issue":"2","key":"pone.0339403.ref031","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"V Braun","year":"2006","journal-title":"Qualitative Research in Psychology"},{"issue":"3","key":"pone.0339403.ref032","doi-asserted-by":"crossref","first-page":"380","DOI":"10.1016\/j.apmr.2022.09.020","article-title":"Barriers and Facilitators to Accessing Rehabilitation Health Care: A Veterans Affairs Traumatic Brain Injury Model Systems Qualitative Study","volume":"104","author":"BA Cotner","year":"2023","journal-title":"Arch Phys Med Rehabil"},{"issue":"10","key":"pone.0339403.ref033","doi-asserted-by":"crossref","first-page":"349","DOI":"10.24095\/hpcdp.38.10.01","article-title":"Barriers and facilitators to improving health care for adults with intellectual and developmental disabilities: what do staff tell us?","volume":"38","author":"A Selick","year":"2018","journal-title":"Health Promot Chronic Dis Prev Can"},{"key":"pone.0339403.ref034","unstructured":"Oficina del Alto Comisionado de las Naciones Unidas para los Derechos Humanos. Los sistemas de apoyo para garantizar la inclusi\u00f3n en la comunidad de las personas con discapacidad, entre otras cosas como medio para construir un futuro mejor tras la pandemia de enfermedad por coronavirus (COVID-19). https:\/\/documents.un.org\/doc\/undoc\/gen\/g22\/614\/77\/pdf\/g2261477.pdf?token=G2CX5geWNKy2edykqQ&fe=true 2023."},{"issue":"4","key":"pone.0339403.ref035","doi-asserted-by":"crossref","first-page":"814","DOI":"10.3122\/jabfm.2022.04.210540","article-title":"Policies and Resources Identified by Youth as Being Important to Prepare for Caregiving Responsibilities","volume":"35","author":"M Raj","year":"2022","journal-title":"J Am Board Fam Med"},{"issue":"5","key":"pone.0339403.ref036","doi-asserted-by":"crossref","DOI":"10.1093\/geront\/gnad039","article-title":"Conceptualizing Family Caregivers\u2019 Use of Community Support Services: A Scoping Review","volume":"64","author":"H Choi","year":"2024","journal-title":"Gerontologist"},{"issue":"1","key":"pone.0339403.ref037","doi-asserted-by":"crossref","first-page":"1033","DOI":"10.1186\/s12889-021-11022-1","article-title":"Factors associated with informal caregiving and its effects on health, work, and social activities of adult informal caregivers in Malaysia: findings from the National Health and Morbidity Survey 2019","volume":"21","author":"Y-L Kong","year":"2021","journal-title":"BMC Public Health"},{"key":"pone.0339403.ref038","doi-asserted-by":"crossref","first-page":"931287","DOI":"10.3389\/fpubh.2022.931287","article-title":"Barriers and facilitators of rehabilitation nursing care for patients with disability in the rehabilitation hospital: A qualitative study","volume":"10","author":"S Shirozhan","year":"2022","journal-title":"Front Public Health"},{"key":"pone.0339403.ref039","doi-asserted-by":"crossref","first-page":"508","DOI":"10.1186\/1472-6963-13-508","article-title":"Economic valuation of informal care in cerebrovascular accident survivors in Spain","volume":"13","author":"J Oliva-Moreno","year":"2013","journal-title":"BMC Health Serv Res"},{"issue":"21","key":"pone.0339403.ref040","first-page":"194","article-title":"G\u00e9nero, cuidados y vejez: mujeres \u00aben el medio\u00bb del trabajo remunerado y del trabajo de cuidado en Santiago de Chile","author":"H Gonzalvez Torralbo","year":"2018","journal-title":"Prisma Social"},{"issue":"49","key":"pone.0339403.ref041","article-title":"Ruralidad, cuidados y pol\u00edticas p\u00fablicas Reflexiones a partir del caso de Uruguay","volume":"34","year":"2021","journal-title":"RCS"},{"key":"pone.0339403.ref042","first-page":"205","article-title":"La complejidad de abordar los cuidados y la discapacidad. Algunos gui\u00f1os reflexivos para el caso chileno.","volume-title":"Estudios cr\u00edticos en discapacidad una polifon\u00eda desde Am\u00e9rica Latina","author":"B. Revuelta","year":"2019"},{"issue":"98","key":"pone.0339403.ref043","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1590\/s0103-4014.2020.3498.004","article-title":"Cuidado y responsabilidad","volume":"34","author":"N Borgeaud-Garciand\u00eda","year":"2020","journal-title":"Estud av"},{"key":"pone.0339403.ref044","doi-asserted-by":"crossref","DOI":"10.1590\/2526-8910.ctoao2161","article-title":"Lo personal es pol\u00edtico: un an\u00e1lisis feminista de la experiencia cotidiana de cuidadoras informales de personas adultas en situaci\u00f3n de dependencia, en Santiago de Chile","volume":"29","author":"DE Grand\u00f3n Valenzuela","year":"2021","journal-title":"Cad Bras Ter Ocup"},{"issue":"2","key":"pone.0339403.ref045","doi-asserted-by":"crossref","DOI":"10.5565\/rev\/athenea.3331","article-title":"Corresponsabilidad en el cuidado informal de personas dependientes: construcci\u00f3n discursiva en la pol\u00edtica p\u00fablica chilena","volume":"23","author":"K Cazorla-Becerra","year":"2023","journal-title":"ATHENEAD"},{"issue":"5","key":"pone.0339403.ref046","doi-asserted-by":"crossref","first-page":"867","DOI":"10.1080\/13691457.2021.1997928","article-title":"Caring neighbourhoods: maintaining collective care under neoliberal care reforms","volume":"25","author":"S Raap","year":"2021","journal-title":"European Journal of Social Work"},{"issue":"89","key":"pone.0339403.ref047","article-title":"Politizar la violencia: migraci\u00f3n, violencia sexo-gen\u00e9rica y cuidados comunitarios","author":"MF Stang","year":"2022","journal-title":"DERECHO"},{"key":"pone.0339403.ref048","doi-asserted-by":"crossref","first-page":"1091533","DOI":"10.3389\/fpubh.2023.1091533","article-title":"Role of civil society in health care: Mechanisms for realizing universal health coverage in vulnerable communities of India","volume":"11","author":"A Jayaraman","year":"2023","journal-title":"Front Public Health"},{"key":"pone.0339403.ref049","article-title":"La autonom\u00eda en la discapacidad desde la perspectiva de la \u00e9tica del cuidado","volume":"48","author":"D Carmona","year":"2021","journal-title":"Revista Contextos"},{"issue":"3","key":"pone.0339403.ref050","article-title":"Repensar los cuidados: de las pr\u00e1cticas a la ontopol\u00edtica","volume":"79","author":"F Garc\u00eda","year":"2021","journal-title":"Revista Internacional de Sociolog\u00eda"},{"key":"pone.0339403.ref051","first-page":"57","article-title":"Autonom\u00eda, dependencia y vulnerabilidad en la construcci\u00f3n de la ciudadan\u00eda","volume":"48","author":"M Mart\u00edn-Palomo","year":"2010","journal-title":"Revista de servicios sociales"}],"container-title":["PLOS One"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0339403","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,1,21]],"date-time":"2026-01-21T18:34:58Z","timestamp":1769020498000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0339403"}},"subtitle":[],"editor":[{"given":"Rafael Galv\u00e3o","family":"de Almeida","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2026,1,21]]},"references-count":51,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,1,21]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0339403","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,21]]}}}