{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,11]],"date-time":"2026-02-11T04:15:42Z","timestamp":1770783342635,"version":"3.50.0"},"reference-count":80,"publisher":"Public Library of Science (PLoS)","issue":"2","license":[{"start":{"date-parts":[[2026,2,9]],"date-time":"2026-02-09T00:00:00Z","timestamp":1770595200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Roparun Foundation"}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS One"],"abstract":"<jats:sec id=\"sec001\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>End-of-life care affects both patients with advanced cancer and their relatives but is often assessed from only one perspective, namely that of bereaved relatives. This study aimed to gain insight into the quality of care as experienced by patients with advanced cancer and their relatives.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec002\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A total of 367 patients with stage IV cancer, 242 relatives and 163 bereaved relatives were included from a large prospective, longitudinal study (eQuiPe), which ran from November 2017 until March 2020. Patients and their relatives completed a questionnaire during the last 3 months of the patient\u2019s life. Bereaved relatives completed a questionnaire within six months after the patient\u2019s death.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec003\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>At the end of life, patients reported a mean satisfaction with care score of 72\/100 (SD 21), and relatives a mean score of 59\/100 (SD 28) for the care they received themselves. Continuity with care, the extent to which the care received from different healthcare professionals was coordinated, was associated with higher satisfaction with care in patients (\u03b2 2.1, 95% CI 1.6\u20132.6). Bereaved relatives reported that most patients died peacefully (87%) and at home (73%). Most bereaved relatives (66%) were contacted by a healthcare professional after the patient\u2019s death, but over half were not informed about grief (52%) or the available options for bereavement support (58%), with about 20% reporting they would have appreciated this.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec004\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Quality of end-of-life care was generally perceived as good. This study highlights the importance of good continuity of care as it is associated with higher satisfaction with care in patients. Also, one-fifth of the bereaved relatives reported that they had not been informed about bereavement care despite desiring it, which emphasizes the need for better care for relatives before and after the patient\u2019s death.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1371\/journal.pone.0342068","type":"journal-article","created":{"date-parts":[[2026,2,9]],"date-time":"2026-02-09T18:28:41Z","timestamp":1770661721000},"page":"e0342068","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patients\u2019 and relatives\u2019 perspectives on the quality of end-of-Life care in advanced cancer: From the final months to bereavement"],"prefix":"10.1371","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7908-294X","authenticated-orcid":true,"given":"Moyke A. J.","family":"Versluis","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9003-6124","authenticated-orcid":true,"given":"Yvette M.","family":"van der Linden","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lobke","family":"van Leeuwen-Snoeks","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marieke H. J.","family":"van den Beuken-van Everdingen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6687-5393","authenticated-orcid":true,"given":"Mathijs P.","family":"Hendriks","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ben E. E. M.","family":"van den Borne","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dirkje","family":"Sommeijer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jean-Paul A.","family":"van Basten","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Annemieke","family":"van der Padt-Pruijsten","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexander","family":"de Graeff","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jarmo C. B.","family":"Hunting","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Evelien J. M.","family":"Kuip","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anne S. R.","family":"van Lindert","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Magdolen","family":"Youssef-El Soud","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Martine F.","family":"Thijs-Visser","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Art","family":"Vreugdenhil","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hanneke W. M.","family":"van Laarhoven","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Wouter K.","family":"de Jong","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caroline","family":"Mandigers","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lia","family":"van Zuylen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeroen","family":"kloover","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4196-3765","authenticated-orcid":true,"given":"Tineke J.","family":"Smilde","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lonneke V.","family":"van de Poll-Franse","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3000-2520","authenticated-orcid":true,"given":"Natasja J. H.","family":"Raijmakers","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"340","published-online":{"date-parts":[[2026,2,9]]},"reference":[{"key":"pone.0342068.ref001","doi-asserted-by":"crossref","DOI":"10.1136\/bmjspcare-2020-002302","article-title":"Inappropriate end-of-life cancer care in a generalist and specialist palliative care model: a nationwide retrospective population-based observational study","volume":"12","author":"MS Boddaert","year":"2022","journal-title":"BMJ Support Palliat Care"},{"issue":"8","key":"pone.0342068.ref002","doi-asserted-by":"crossref","first-page":"733","DOI":"10.1056\/NEJMoa1000678","article-title":"Early palliative care for patients with metastatic non-small-cell lung cancer","volume":"363","author":"JS Temel","year":"2010","journal-title":"N Engl J Med"},{"issue":"3","key":"pone.0342068.ref003","doi-asserted-by":"crossref","first-page":"394","DOI":"10.1016\/S1470-2045(18)30060-3","article-title":"Effect of early and systematic integration of palliative care in patients with advanced cancer: a randomised controlled trial","volume":"19","author":"G Vanbutsele","year":"2018","journal-title":"Lancet Oncol"},{"key":"pone.0342068.ref004","author":"(NCI) NCI"},{"issue":"12","key":"pone.0342068.ref005","first-page":"731","article-title":"Potentially inappropriate end-of-life care and its association with relatives\u2019 well-being: a systematic review","volume":"31","author":"L Ham","year":"2023","journal-title":"Support Care Cancer"},{"issue":"9","key":"pone.0342068.ref006","doi-asserted-by":"crossref","first-page":"1025","DOI":"10.1089\/jpm.2013.0552","article-title":"Association between quality of end-of-life care and possible complicated grief among bereaved family members","volume":"17","author":"K Miyajima","year":"2014","journal-title":"J Palliat Med"},{"issue":"1","key":"pone.0342068.ref007","doi-asserted-by":"crossref","DOI":"10.1016\/j.jpainsymman.2017.03.008","article-title":"Effects of End-of-Life Discussions on the Mental Health of Bereaved Family Members and Quality of Patient Death and Care","volume":"54","author":"T Yamaguchi","year":"2017","journal-title":"J Pain Symptom Manage"},{"issue":"7","key":"pone.0342068.ref008","doi-asserted-by":"crossref","first-page":"1126","DOI":"10.1177\/10497323221097247","article-title":"Palliative Professionals\u2019 Experiences of Receiving Gratitude: A Transformative and Protective Resource","volume":"32","author":"M Aparicio","year":"2022","journal-title":"Qual Health Res"},{"issue":"6","key":"pone.0342068.ref009","first-page":"367","article-title":"Clinical Challenges to the Delivery of End-of-Life Care","volume":"8","author":"JA Woo","year":"2006","journal-title":"Prim Care Companion J Clin Psychiatry"},{"key":"pone.0342068.ref010","doi-asserted-by":"crossref","first-page":"107","DOI":"10.1159\/000085703","article-title":"Economic burdens and quality of life of family caregivers of cancer patients","volume":"68","author":"YH Yun","year":"2005","journal-title":"Oncology"},{"issue":"6","key":"pone.0342068.ref011","doi-asserted-by":"crossref","first-page":"1133","DOI":"10.1200\/JCO.2003.03.059","article-title":"Identifying potential indicators of the quality of end-of-life cancer care from administrative data","volume":"21","author":"CC Earle","year":"2003","journal-title":"J Clin Oncol"},{"issue":"5","key":"pone.0342068.ref012","article-title":"Satisfaction with care of hospitalised patients with advanced cancer in the Netherlands","volume":"27","author":"M Engel","year":"2018","journal-title":"Eur J Cancer Care (Engl)"},{"issue":"12","key":"pone.0342068.ref013","doi-asserted-by":"crossref","first-page":"1858","DOI":"10.1002\/pon.6233","article-title":"Trajectories of emotional functioning and experienced care of relatives in the last year of life of patients with advanced cancer: A longitudinal analysis of the eQuiPe study","volume":"32","author":"L Ham","year":"2023","journal-title":"Psychooncology"},{"issue":"12","key":"pone.0342068.ref014","doi-asserted-by":"crossref","first-page":"575","DOI":"10.12968\/ijpn.2022.28.12.575","article-title":"The relationship between satisfaction with care and quality of life among family caregivers of of patients living with terminal cancer in general wards: a cross-sectional study","volume":"28","author":"M Morishita-Kawahara","year":"2022","journal-title":"Int J Palliat Nurs"},{"issue":"4","key":"pone.0342068.ref015","doi-asserted-by":"crossref","first-page":"609","DOI":"10.1002\/cncr.35060","article-title":"Trajectories of health-related quality of life and symptom burden in patients with advanced cancer towards the end of life: Longitudinal results from the eQuiPe study","volume":"130","author":"MAJ Versluis","year":"2024","journal-title":"Cancer"},{"key":"pone.0342068.ref016","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1016\/j.ejca.2022.01.039","article-title":"Quality of life and quality of care as experienced by patients with advanced cancer and their relatives: A multicentre observational cohort study (eQuiPe)","volume":"165","author":"J van Roij","year":"2022","journal-title":"Eur J Cancer"},{"issue":"1","key":"pone.0342068.ref017","doi-asserted-by":"crossref","first-page":"163","DOI":"10.1093\/annonc\/mdw438","article-title":"Impact of early palliative care on caregivers of patients with advanced cancer: cluster randomised trial","volume":"28","author":"J McDonald","year":"2017","journal-title":"Ann Oncol"},{"issue":"1","key":"pone.0342068.ref018","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1177\/01939459231213786","article-title":"Aggressive End-of-Life Care and Caregiver Satisfaction for Patients With Advanced Cancer","volume":"46","author":"S Park","year":"2024","journal-title":"West J Nurs Res"},{"issue":"5","key":"pone.0342068.ref019","doi-asserted-by":"crossref","first-page":"875","DOI":"10.1016\/j.jpainsymman.2012.05.007","article-title":"Measuring relatives\u2019 perspectives on the quality of palliative care: the Consumer Quality Index Palliative Care","volume":"45","author":"SJJ Claessen","year":"2013","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"pone.0342068.ref020","article-title":"Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England","volume":"9","author":"KJ Hunt","year":"2019","journal-title":"BMJ Support Palliat Care"},{"issue":"1","key":"pone.0342068.ref021","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1186\/s12904-020-00642-w","article-title":"Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol","volume":"19","author":"J van Roij","year":"2020","journal-title":"BMC Palliat Care"},{"issue":"14","key":"pone.0342068.ref022","doi-asserted-by":"crossref","first-page":"2188","DOI":"10.1016\/j.ejca.2011.04.034","article-title":"The Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship registry: scope, rationale and design of an infrastructure for the study of physical and psychosocial outcomes in cancer survivorship cohorts","volume":"47","author":"LV van de Poll-Franse","year":"2011","journal-title":"Eur J Cancer"},{"issue":"14","key":"pone.0342068.ref023","doi-asserted-by":"crossref","first-page":"2120","DOI":"10.1016\/j.ejca.2005.04.041","article-title":"An international prospective study of the EORTC cancer in-patient satisfaction with care measure (EORTC IN-PATSAT32)","volume":"41","author":"A Br\u00e9dart","year":"2005","journal-title":"Eur J Cancer"},{"key":"pone.0342068.ref024","volume-title":"Handboek CQI Metingen: richtlijnen en voorschriften voor metingen met een CQI meetinstrument","author":"HB Sixma","year":"2008"},{"issue":"5","key":"pone.0342068.ref025","doi-asserted-by":"crossref","first-page":"652","DOI":"10.1093\/geront\/41.5.652","article-title":"The Zarit Burden Interview: a new short version and screening version","volume":"41","author":"M B\u00e9dard","year":"2001","journal-title":"Gerontologist"},{"issue":"5","key":"pone.0342068.ref026","doi-asserted-by":"crossref","first-page":"535","DOI":"10.1016\/j.jclinepi.2009.06.014","article-title":"Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions","volume":"63","author":"IJ Higginson","year":"2010","journal-title":"J Clin Epidemiol"},{"issue":"1","key":"pone.0342068.ref027","doi-asserted-by":"crossref","first-page":"49","DOI":"10.1207\/S15324796ABM2401_06","article-title":"Measuring spiritual well-being in people with cancer: the functional assessment of chronic illness therapy--Spiritual Well-being Scale (FACIT-Sp)","volume":"24","author":"AH Peterman","year":"2002","journal-title":"Ann Behav Med"},{"issue":"11","key":"pone.0342068.ref028","doi-asserted-by":"crossref","first-page":"1930","DOI":"10.1002\/pon.5765","article-title":"Validation of the FACIT-Sp-12 in a Dutch cohort of patients with advanced cancer","volume":"30","author":"A Damen","year":"2021","journal-title":"Psychooncology"},{"issue":"2","key":"pone.0342068.ref029","doi-asserted-by":"crossref","first-page":"156","DOI":"10.1002\/art.10993","article-title":"The Self-Administered Comorbidity Questionnaire: a new method to assess comorbidity for clinical and health services research","volume":"49","author":"O Sangha","year":"2003","journal-title":"Arthritis Rheum"},{"key":"pone.0342068.ref030","doi-asserted-by":"crossref","DOI":"10.1111\/j.1532-5415.2000.tb03143.x","article-title":"Family satisfaction with end-of-life care in seriously ill hospitalized adults","volume":"48","author":"R Baker","year":"2000","journal-title":"J Am Geriatr Soc"},{"key":"pone.0342068.ref031","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1186\/1472-684X-13-25","article-title":"Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter?","volume":"13","author":"F Burge","year":"2014","journal-title":"BMC Palliat Care"},{"issue":"2","key":"pone.0342068.ref032","doi-asserted-by":"crossref","first-page":"266","DOI":"10.1136\/spcare-2024-005287","article-title":"Family voices from the bedside: National Audit of Care at the End of Life (England and Wales)","volume":"15","author":"M Miller","year":"2025","journal-title":"BMJ Support Palliat Care"},{"issue":"4","key":"pone.0342068.ref033","doi-asserted-by":"crossref","first-page":"130","DOI":"10.3390\/healthcare6040130","article-title":"Bereaved Family Members\u2019 Satisfaction with Care during the Last Three Months of Life for People with Advanced Illness","volume":"6","author":"A O\u2019Sullivan","year":"2018","journal-title":"Healthcare (Basel)"},{"key":"pone.0342068.ref034","unstructured":"Programme NCE. Findings of the National End of Life Survey 2023. 2023."},{"issue":"11","key":"pone.0342068.ref035","first-page":"9507","article-title":"The quality of end-of-life care for Danish cancer patients who have received non-specialized palliative care: a national survey using the Danish version of VOICES-SF","volume":"30","author":"L Ross","year":"2022","journal-title":"Support Care Cancer"},{"issue":"11","key":"pone.0342068.ref036","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0110860","article-title":"Factors affecting family satisfaction with inpatient end-of-life care","volume":"9","author":"E Sadler","year":"2014","journal-title":"PLoS One"},{"key":"pone.0342068.ref037","unstructured":"Statistics Ofn. National Survey of Bereaved People (VOICES): England, 2015. 2016."},{"issue":"1","key":"pone.0342068.ref038","doi-asserted-by":"crossref","first-page":"162","DOI":"10.1186\/s12885-018-4085-3","article-title":"Factors predicting patient satisfaction in women with advanced breast cancer: a prospective study","volume":"18","author":"WWT Lam","year":"2018","journal-title":"BMC Cancer"},{"issue":"4","key":"pone.0342068.ref039","doi-asserted-by":"crossref","first-page":"266","DOI":"10.1093\/intqhc\/mzl014","article-title":"Factors that influence cancer patients\u2019 overall perceptions of the quality of care","volume":"18","author":"GA Sandoval","year":"2006","journal-title":"Int J Qual Health Care"},{"issue":"1","key":"pone.0342068.ref040","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1186\/s12913-024-10575-2","article-title":"End-of-life and bereavement support to families in cancer care: a cross-sectional survey with bereaved family members","volume":"24","author":"Q Thaqi","year":"2024","journal-title":"BMC Health Serv Res"},{"key":"pone.0342068.ref041","unstructured":"Caregiving NAf. Caregiving in the U.S. 2020."},{"issue":"12","key":"pone.0342068.ref042","article-title":"An online survey of informal caregivers\u2019 unmet needs and associated factors","volume":"15","author":"AMJ Denham","year":"2020","journal-title":"PLoS One"},{"issue":"3","key":"pone.0342068.ref043","doi-asserted-by":"crossref","DOI":"10.5014\/ajot.2024.050528","article-title":"Difficulties fulfilling self-care needs among family caregivers: an observational study","volume":"78","author":"L Gonzalo-Ciria","year":"2024","journal-title":"Am J Occup Ther"},{"issue":"1","key":"pone.0342068.ref044","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1001\/archinte.167.1.40","article-title":"End-of-life care: findings from a national survey of informal caregivers","volume":"167","author":"JL Wolff","year":"2007","journal-title":"Arch Intern Med"},{"issue":"12","key":"pone.0342068.ref045","first-page":"7975","article-title":"Self-care, resilience, and caregiver burden in relatives of patients with advanced cancer: results from the eQuiPe study","volume":"29","author":"J van Roij","year":"2021","journal-title":"Support Care Cancer"},{"issue":"6","key":"pone.0342068.ref046","doi-asserted-by":"crossref","first-page":"3411","DOI":"10.1002\/nop2.887","article-title":"The influence of family social support on quality of life of informal caregivers of cancer patients","volume":"8","author":"M Garc\u00eda-Carmona","year":"2021","journal-title":"Nurs Open"},{"issue":"8","key":"pone.0342068.ref047","doi-asserted-by":"crossref","first-page":"3313","DOI":"10.7314\/APJCP.2015.16.8.3313","article-title":"Caregiver Burden and Perceived Social Support among Caregivers of Patients with Cancer","volume":"16","author":"F Kahriman","year":"2015","journal-title":"Asian Pac J Cancer Prev"},{"issue":"3","key":"pone.0342068.ref048","doi-asserted-by":"crossref","first-page":"151356","DOI":"10.1016\/j.soncn.2022.151356","article-title":"Relationships Among Perceived Social Support, Family Resilience, and Caregiver Burden in Lung Cancer Families: A Mediating Model","volume":"39","author":"Y Zhang","year":"2023","journal-title":"Semin Oncol Nurs"},{"key":"pone.0342068.ref049","doi-asserted-by":"crossref","first-page":"102509","DOI":"10.1016\/j.ejon.2024.102509","article-title":"Mediating effect of social support between caregiver burden and quality of life among family caregivers of cancer patients in palliative care units","volume":"68","author":"Y Zhang","year":"2024","journal-title":"Eur J Oncol Nurs"},{"issue":"1","key":"pone.0342068.ref050","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1186\/s12904-017-0224-x","article-title":"Relatives\u2019 perceived quality of palliative care: comparisons between care settings in which patients die","volume":"16","author":"D de Boer","year":"2017","journal-title":"BMC Palliat Care"},{"key":"pone.0342068.ref051","doi-asserted-by":"crossref","first-page":"235","DOI":"10.1186\/s12916-015-0466-5","article-title":"Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study","volume":"13","author":"B Gomes","year":"2015","journal-title":"BMC Med"},{"issue":"5","key":"pone.0342068.ref052","doi-asserted-by":"crossref","first-page":"839","DOI":"10.1016\/j.jpainsymman.2013.12.240","article-title":"The quality of dying and death in cancer and its relationship to palliative care and place of death","volume":"48","author":"S Hales","year":"2014","journal-title":"J Pain Symptom Manage"},{"issue":"29","key":"pone.0342068.ref053","doi-asserted-by":"crossref","first-page":"4457","DOI":"10.1200\/JCO.2009.26.3863","article-title":"Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers\u2019 mental health","volume":"28","author":"AA Wright","year":"2010","journal-title":"J Clin Oncol"},{"issue":"1","key":"pone.0342068.ref054","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1177\/0269216313487568","article-title":"Patient and family experiences of palliative care in hospital: what do we know? An integrative review","volume":"28","author":"J Robinson","year":"2014","journal-title":"Palliat Med"},{"issue":"3","key":"pone.0342068.ref055","doi-asserted-by":"crossref","first-page":"316","DOI":"10.1016\/j.soncn.2018.06.012","article-title":"Advance Care Planning and End-of-Life Decision Making for Patients with Cancer","volume":"34","author":"R Agarwal","year":"2018","journal-title":"Semin Oncol Nurs"},{"issue":"4","key":"pone.0342068.ref056","doi-asserted-by":"crossref","first-page":"721","DOI":"10.3390\/cancers16040721","article-title":"Association between Inappropriate End-of-Life Cancer Care and Specialist Palliative Care: A Retrospective Observational Study in Two Acute Care Hospitals","volume":"16","author":"MS Boddaert","year":"2024","journal-title":"Cancers (Basel)"},{"issue":"14","key":"pone.0342068.ref057","doi-asserted-by":"crossref","first-page":"3044","DOI":"10.1002\/cncr.31536","article-title":"Timing of palliative care needs reporting and aggressiveness of care near the end of life in metastatic lung cancer: A national registry-based study","volume":"124","author":"F Goldwasser","year":"2018","journal-title":"Cancer"},{"issue":"12","key":"pone.0342068.ref058","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0242914","article-title":"Impact of advance care planning on dying in hospital: Evidence from urgent care records","volume":"15","author":"M Orlovic","year":"2020","journal-title":"PLoS One"},{"issue":"11","key":"pone.0342068.ref059","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2023-082766","article-title":"Association of advance care planning with hospital use and costs at the end of life: a population-based retrospective cohort study","volume":"14","author":"I Scott","year":"2024","journal-title":"BMJ Open"},{"issue":"1","key":"pone.0342068.ref060","first-page":"70","article-title":"End-of-Life Preparedness and Quality of Advance Care Planning Discussions in Patients With Advanced Metastatic Cancer","volume":"52","author":"P Goswami","year":"2024","journal-title":"Oncol Nurs Forum"},{"issue":"12","key":"pone.0342068.ref061","doi-asserted-by":"crossref","first-page":"1045","DOI":"10.1177\/1049909120917899","article-title":"The Impact of Varying Levels of Advance Care Planning Engagement on Perceptions of the End-of-Life Experience Among Caregivers of Deceased Patients With Cancer","volume":"37","author":"K Levoy","year":"2020","journal-title":"Am J Hosp Palliat Care"},{"issue":"7","key":"pone.0342068.ref062","doi-asserted-by":"crossref","DOI":"10.1002\/onco.13837","article-title":"Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives\u2019 Survey within Seven Countries","volume":"26","author":"DF Haugen","year":"2021","journal-title":"Oncologist"},{"issue":"10","key":"pone.0342068.ref063","article-title":"Bereavement support for family caregivers: The gap between guidelines and practice in palliative care","volume":"12","author":"SM Aoun","year":"2017","journal-title":"PLoS One"},{"issue":"10","key":"pone.0342068.ref064","doi-asserted-by":"crossref","first-page":"1225","DOI":"10.1176\/ps.62.10.pss6210_1225","article-title":"Underutilization of mental health services among bereaved caregivers with prolonged grief disorder","volume":"62","author":"WG Lichtenthal","year":"2011","journal-title":"Psychiatr Serv"},{"key":"pone.0342068.ref065","doi-asserted-by":"crossref","first-page":"1607346","DOI":"10.3389\/ijph.2024.1607346","article-title":"Aftercare Provision for Bereaved Relatives Following Euthanasia or Physician-Assisted Suicide: A Cross-Sectional Questionnaire Study Among Physicians","volume":"69","author":"SC Renckens","year":"2024","journal-title":"Int J Public Health"},{"issue":"3","key":"pone.0342068.ref066","doi-asserted-by":"crossref","DOI":"10.1016\/j.jpainsymman.2021.10.008","article-title":"In-Hospital Bereavement Services as an Act of Care and a Challenge: An Integrative Review","volume":"63","author":"C Boven","year":"2022","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"pone.0342068.ref067","doi-asserted-by":"crossref","first-page":"378","DOI":"10.1186\/s12875-024-02625-9","article-title":"The provision of bereavement care by general practitioners: data from a sentinel network","volume":"25","author":"SC Renckens","year":"2024","journal-title":"BMC Prim Care"},{"issue":"4","key":"pone.0342068.ref068","doi-asserted-by":"crossref","first-page":"547","DOI":"10.1177\/0269216319891070","article-title":"Hospital-based bereavement care provision: A cross-sectional survey with health professionals","volume":"34","author":"R Naef","year":"2020","journal-title":"Palliat Med"},{"issue":"1","key":"pone.0342068.ref069","doi-asserted-by":"crossref","first-page":"34","DOI":"10.1186\/s12904-025-01650-4","article-title":"Social support sources for people with palliative care needs at home: a scoping review","volume":"24","author":"T Schutter","year":"2025","journal-title":"BMC Palliat Care"},{"issue":"6","key":"pone.0342068.ref070","doi-asserted-by":"crossref","first-page":"829","DOI":"10.1007\/s11764-019-00793-7","article-title":"Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out","volume":"13","author":"I Ramsey","year":"2019","journal-title":"J Cancer Surviv"},{"issue":"1","key":"pone.0342068.ref071","doi-asserted-by":"crossref","first-page":"56","DOI":"10.1016\/j.jpainsymman.2017.08.009","article-title":"Spiritual Needs and Perception of Quality of Care and Satisfaction With Care in Hematology\/Medical Oncology Patients: A Multicultural Assessment","volume":"55","author":"AB Astrow","year":"2018","journal-title":"J Pain Symptom Manage"},{"issue":"4","key":"pone.0342068.ref072","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1177\/1062860605275754","article-title":"Race\/ethnicity, socioeconomic status, and satisfaction with health care","volume":"20","author":"MG Haviland","year":"2005","journal-title":"Am J Med Qual"},{"issue":"4","key":"pone.0342068.ref073","doi-asserted-by":"crossref","first-page":"351","DOI":"10.1080\/13557850802638203","article-title":"Patient ethnicity: a key predictor of cancer care satisfaction","volume":"14","author":"BC Thomas","year":"2009","journal-title":"Ethn Health"},{"issue":"1","key":"pone.0342068.ref074","doi-asserted-by":"crossref","first-page":"140","DOI":"10.1177\/02692163231217373","article-title":"Reduction in potentially inappropriate end-of-life hospital care for cancer patients during the COVID-19 pandemic: A retrospective population-based study","volume":"38","author":"E Slotman","year":"2024","journal-title":"Palliat Med"},{"issue":"2","key":"pone.0342068.ref075","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1001\/jamaoncol.2020.6093","article-title":"Perceived Care and Well-being of Patients With Cancer and Matched Norm Participants in the COVID-19 Crisis: Results of a Survey of Participants in the Dutch PROFILES Registry","volume":"7","author":"LV van de Poll-Franse","year":"2021","journal-title":"JAMA Oncol"},{"issue":"4","key":"pone.0342068.ref076","doi-asserted-by":"crossref","DOI":"10.3399\/BJGPO.2022.0038","article-title":"Patient experiences during the COVID-19 pandemic: a qualitative study in Dutch primary care","volume":"6","author":"M Homburg","year":"2022","journal-title":"BJGP Open"},{"issue":"11","key":"pone.0342068.ref077","doi-asserted-by":"crossref","first-page":"2913","DOI":"10.1007\/s40520-022-02266-x","article-title":"Delay or postponement of medical care among older adults in the Netherlands at earlier and later stages of the COVID-19 pandemic","volume":"34","author":"M Mizee","year":"2022","journal-title":"Aging Clin Exp Res"},{"key":"pone.0342068.ref078","doi-asserted-by":"crossref","first-page":"1181532","DOI":"10.3389\/frhs.2023.1181532","article-title":"Postponed healthcare in The Netherlands during the COVID-19 pandemic and its impact on self-reported health","volume":"3","author":"K Visscher","year":"2023","journal-title":"Front Health Serv"},{"key":"pone.0342068.ref079","first-page":"1","article-title":"Death rituals and quality of life of bereaved relatives during the COVID-19 pandemic: Results of the observational CO-LIVE study","author":"L Ham","year":"2024","journal-title":"Death Stud"},{"issue":"9","key":"pone.0342068.ref080","doi-asserted-by":"crossref","first-page":"927","DOI":"10.1080\/07481187.2023.2297055","article-title":"Relatives\u2019 grief at three moments after death of a loved one during COVID-19 pandemic (the CO-LIVE study)","volume":"48","author":"CA Nierop-van Baalen","year":"2024","journal-title":"Death Stud"}],"container-title":["PLOS One"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0342068","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,9]],"date-time":"2026-02-09T18:28:53Z","timestamp":1770661733000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0342068"}},"subtitle":[],"editor":[{"given":"Stefaan","family":"Six","sequence":"first","affiliation":[],"role":[{"role":"editor","vocabulary":"crossref"}]}],"short-title":[],"issued":{"date-parts":[[2026,2,9]]},"references-count":80,"journal-issue":{"issue":"2","published-online":{"date-parts":[[2026,2,9]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0342068","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2,9]]}}}