{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,27]],"date-time":"2026-07-27T18:03:02Z","timestamp":1785175382233,"version":"3.55.0"},"reference-count":93,"publisher":"Public Library of Science (PLoS)","issue":"7","license":[{"start":{"date-parts":[[2026,7,27]],"date-time":"2026-07-27T00:00:00Z","timestamp":1785110400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","award":["NIHR160824"],"award-info":[{"award-number":["NIHR160824"]}],"id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS One"],"abstract":"<jats:p>African and African-Caribbean (AAC) people living with dementia (PLWD) are a population at high risk of inequitable access to health and social care services, and have poor health and wellbeing outcomes. Research suggests they are likely to experience failings in care, be recognised by services late and at points of crisis, and are at increased risk of institutionalisation. This research aims to examine the experiences of AAC PLWD, their care partners and families of accessing social care services and support. Employing an intersectionality theoretical framework, this study will use a multi-method, flexible exploratory sequential design. An evidence synthesis using the JBI meta-aggregation approach, co-produced with AAC PLWD, their care partners, and families, will be conducted to synthesise existing evidence on the experiences of AAC PLWD, their care partners\u2019 and families\u2019 of support seeking in the UK. Narrative interviews will involve 3 sequential interviews conducted with 40 AAC PLWD (n\u2009=\u200910 per site), with opportunities for dyadic interviews with care partners and families. Ethnographic fieldwork will be conducted across 4 Local Authority sites within Adult Social Care teams (n\u2009=\u200930 days per site) to provide insight into institutional and organisational processes and cultures, and staff practices and engagement with PLWD. Artistic art workshops will be conducted to facilitate a diverse range of participant voices and support meaningful engagement for AAC PLWD at increased risk of isolation. Ethical approval has been obtained. Dissemination will include peer reviewed publications, conference presentations and free publicly available resources for health and social care professionals, third-sector partners, PLWD and their carer partners.<\/jats:p>","DOI":"10.1371\/journal.pone.0354661","type":"journal-article","created":{"date-parts":[[2026,7,27]],"date-time":"2026-07-27T17:23:10Z","timestamp":1785172990000},"page":"e0354661","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Understanding support needs of African and African-Caribbean people living with dementia, their care partners and families, and impacts of delayed support: Identifying inclusive strategies to facilitate social care support: A study protocol"],"prefix":"10.1371","volume":"21","author":[{"given":"Shadreck","family":"Mwale","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andy","family":"Northcott","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brenda","family":"Hayanga","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Deborah","family":"Edwards","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Truswell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine","family":"Coveney","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4647-8950","authenticated-orcid":true,"given":"Juanita","family":"Hoe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Megan","family":"Wyatt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8865-8461","authenticated-orcid":true,"given":"Shabana","family":"Roscoe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katie","family":"Featherstone","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2026,7,27]]},"reference":[{"issue":"2","key":"pone.0354661.ref001","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1192\/bjp.bp.110.086405","article-title":"Prevalence of dementia in African-Caribbean compared with UK-born White older people: two-stage cross-sectional study","volume":"199","author":"S Adelman","year":"2011","journal-title":"Br J Psychiatry"},{"issue":"4","key":"pone.0354661.ref002","doi-asserted-by":"crossref","first-page":"162","DOI":"10.1192\/pb.bp.114.047753","article-title":"Dementia in a Black and minority ethnic population: characteristics of presentation to an inner London memory service","volume":"39","author":"R Tuerk","year":"2015","journal-title":"BJPsych Bull"},{"key":"pone.0354661.ref003","author":"D Kapadia","year":"2022"},{"issue":"5","key":"pone.0354661.ref004","doi-asserted-by":"crossref","first-page":"710","DOI":"10.1111\/1467-9566.00126","article-title":"Genetic, cultural or socio\u2010economic vulnerability? 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Wilkinson","year":"2003","journal-title":"Aging Ment Health"},{"issue":"1","key":"pone.0354661.ref033","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1016\/j.maturitas.2013.02.009","article-title":"Risk factors for falls among older adults: a review of the literature","volume":"75","author":"AF Ambrose","year":"2013","journal-title":"Maturitas"},{"issue":"1","key":"pone.0354661.ref034","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1093\/geront\/gns104","article-title":"Treatment outcomes of a crisis intervention program for dementia with severe psychiatric complications: the Kansas bridge project","volume":"53","author":"DK Johnson","year":"2013","journal-title":"Gerontologist"},{"issue":"1","key":"pone.0354661.ref035","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1186\/s13643-018-0697-6","article-title":"Effectiveness of interventions aimed at improving physical and psychological outcomes of fall-related injuries in people with dementia: a narrative 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adults","volume":"303","author":"WJ Ehlenbach","year":"2010","journal-title":"JAMA"},{"issue":"3","key":"pone.0354661.ref039","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1017\/S1041610203009530","article-title":"Attitudes of patients with mild dementia and their carers towards disclosure of the diagnosis","volume":"15","author":"G Pinner","year":"2003","journal-title":"Int Psychogeriatr"},{"issue":"1","key":"pone.0354661.ref040","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1002\/gps.2484","article-title":"A systematic review of ethnicity and pathways to care in dementia","volume":"26","author":"N Mukadam","year":"2011","journal-title":"Int J Geriatr Psychiatry"},{"issue":"4","key":"pone.0354661.ref041","doi-asserted-by":"crossref","first-page":"4","DOI":"10.1108\/17570980200900024","article-title":"The \u2018Twice a Child\u2019 projects: learning about dementia and related disorders within the black and minority ethnic population of an English city and improving relevant services","volume":"2","author":"D Jolley","year":"2009","journal-title":"Ethn Inequalities HSC"},{"issue":"3","key":"pone.0354661.ref042","doi-asserted-by":"crossref","first-page":"240","DOI":"10.1192\/bjp.bp.107.045187","article-title":"Attitudes and support needs of Black Caribbean, south Asian and White British carers of people with dementia in the UK","volume":"193","author":"V Lawrence","year":"2008","journal-title":"Br J Psychiatry"},{"issue":"1","key":"pone.0354661.ref043","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1093\/geront\/gnq073","article-title":"Threat to valued elements of life: the experience of dementia across three ethnic groups","volume":"51","author":"V Lawrence","year":"2011","journal-title":"Gerontologist"},{"key":"pone.0354661.ref044","unstructured":"Cheston R, Baghirathan S, Hui R, Shears P, Chacun A, Currie K. The dementia experiences of people from Caribbean, Chinese and South Asian communities in Bristol. 2017."},{"issue":"10","key":"pone.0354661.ref045","doi-asserted-by":"crossref","first-page":"2207","DOI":"10.1111\/j.1365-2648.2011.05905.x","article-title":"Dementia and relationships: experiences of partners in minority ethnic communities","volume":"68","author":"J Botsford","year":"2012","journal-title":"J Adv Nurs"},{"key":"pone.0354661.ref046","doi-asserted-by":"crossref","unstructured":"Lasrado R, Baker S, Zubair M, Kaiser P, Lasrado VJ, Rizzo M, et al. Exploring dementia care systems across the African Caribbean diaspora: a scoping review and consultation exercise. Gerontologist. 2020.","DOI":"10.1093\/geront\/gnaa023"},{"issue":"3","key":"pone.0354661.ref047","doi-asserted-by":"crossref","first-page":"257","DOI":"10.1016\/S0165-0327(01)00470-0","article-title":"Stigma, racism or choice. Why do depressed ethnic elders avoid psychiatrists?","volume":"72","author":"S Marwaha","year":"2002","journal-title":"J Affect Disord"},{"issue":"2","key":"pone.0354661.ref048","doi-asserted-by":"crossref","first-page":"622","DOI":"10.1111\/hsc.13167","article-title":"Dementia services for people from Black, Asian and Minority Ethnic and White-British communities: Does a primary care based model contribute to equality in service provision?","volume":"30","author":"E Dodd","year":"2022","journal-title":"Health Soc Care Community"},{"key":"pone.0354661.ref049","author":"S Mwale","year":"2023"},{"issue":"5","key":"pone.0354661.ref050","doi-asserted-by":"crossref","first-page":"437","DOI":"10.1177\/1744987111414531","article-title":"Research and dementia, caring and ethnicity: a review of the literature","volume":"16","author":"J Botsford","year":"2011","journal-title":"J Res Nurs"},{"key":"pone.0354661.ref051","volume-title":"Musculoskeletal conditions and Black, Asian and minority ethnic people: addressing health inequalities","author":"S Jeraj","year":"2020"},{"key":"pone.0354661.ref052","unstructured":"Giebel CM, Jolley D, Zubair M, Worden A, Bhui KS, Lambat A, et al. SOUTH ASIAN VOICES ENABLING DEMENTIA CARE (SAVE-D): differences in the recognition of and consultation for memory problems in South Asian ethnic minorities. Alzheimer's Research UK Conference; 2014."},{"issue":"1","key":"pone.0354661.ref053","doi-asserted-by":"crossref","first-page":"1","DOI":"10.2307\/2096141","article-title":"Einstein, Renoir, and Greeley: some thoughts about evidence in sociology: 1991 presidential address","volume":"57","author":"S Lieberson","year":"1992","journal-title":"Am Sociol Rev"},{"key":"pone.0354661.ref054","volume-title":"Welfare, children and families: A three-city study. Summary and research design","author":"P Winston","year":"1999"},{"key":"pone.0354661.ref055","article-title":"Understanding intersectional ageism and stigma of dementia: protocol for a scoping review","volume":"12","author":"J-D Bacsu","year":"2023","journal-title":"JMIR Res Protoc"},{"issue":"3","key":"pone.0354661.ref056","doi-asserted-by":"crossref","first-page":"437","DOI":"10.1017\/S0144686X12000013","article-title":"Revealing the shape of knowledge using an intersectionality lens: results of a scoping review on the health and health care of ethnocultural minority older adults","volume":"33","author":"S Koehn","year":"2013","journal-title":"Ageing Soc"},{"key":"pone.0354661.ref057","volume-title":"Intersectionality","author":"PH Collins","year":"2020"},{"key":"pone.0354661.ref058","article-title":"Demarginalizing the intersection of race and sex: a black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics\u201d","volume":"1989","author":"K Crenshaw","year":"1989","journal-title":"U Chi Legal F"},{"key":"pone.0354661.ref059","volume-title":"\u201cAint I a Woman\u201d Penguin","author":"S Truth","year":"1851"},{"issue":"6","key":"pone.0354661.ref060","doi-asserted-by":"crossref","first-page":"1241","DOI":"10.2307\/1229039","article-title":"Mapping the margins: intersectionality, identity politics, and violence against women of color","volume":"43","author":"K Crenshaw","year":"1991","journal-title":"Stan L Rev"},{"key":"pone.0354661.ref061","first-page":"445","article-title":"Home truths on intersectionality","volume":"23","author":"JC Nash","year":"2011","journal-title":"Yale J L Fem"},{"issue":"7","key":"pone.0354661.ref062","doi-asserted-by":"crossref","first-page":"1267","DOI":"10.2105\/AJPH.2012.300750","article-title":"The problem with the phrase women and minorities: intersectionality-an important theoretical framework for public health","volume":"102","author":"L Bowleg","year":"2012","journal-title":"Am J Public Health"},{"issue":"4","key":"pone.0354661.ref063","doi-asserted-by":"crossref","first-page":"1019","DOI":"10.1007\/s13311-023-01408-x","article-title":"Intersectionality in Alzheimer\u2019s disease: the role of female sex and black american race in the development and prevalence of Alzheimer\u2019s disease","volume":"20","author":"MB Misiura","year":"2023","journal-title":"Neurotherapeutics"},{"issue":"4","key":"pone.0354661.ref064","doi-asserted-by":"crossref","first-page":"287","DOI":"10.1007\/s00391-022-02058-y","article-title":"Intersectionality and its relevance for research in dementia care of people with a migration background","volume":"55","author":"M Roes","year":"2022","journal-title":"Z Gerontol Geriatr"},{"issue":"5","key":"pone.0354661.ref065","doi-asserted-by":"crossref","first-page":"797","DOI":"10.1093\/geront\/gnaa050","article-title":"Dementia caregiving research: expanding and reframing the lens of diversity, inclusivity, and intersectionality","volume":"60","author":"P Dilworth-Anderson","year":"2020","journal-title":"Gerontologist"},{"issue":"1","key":"pone.0354661.ref066","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1007\/s11019-021-10052-1","article-title":"Feminist approach to geriatric care: comprehensive geriatric assessment, diversity and intersectionality","volume":"25","author":"M We\u00dfel","year":"2022","journal-title":"Med Health Care Philos"},{"key":"pone.0354661.ref067","unstructured":"Watchman K. The intersectionality of intellectual disability & ageing; 2018."},{"issue":"1","key":"pone.0354661.ref068","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1080\/09687599.2017.1379952","article-title":"Dementia, disability rights and disablism: understanding the social position of people living with dementia","volume":"33","author":"C Thomas","year":"2017","journal-title":"Disabil Soc"},{"key":"pone.0354661.ref069","doi-asserted-by":"crossref","unstructured":"Adames HY, Chavez-Due\u00f1as NY, Salas SP, Manley CR. Intersectionality as a practice of dementia care for sexual and gender minoritized Latinxs. In: Caring for Latinxs with dementia in a globalized world: Behavioral and psychosocial treatments; 2020. p. 205\u201329.","DOI":"10.1007\/978-1-0716-0132-7_12"},{"key":"pone.0354661.ref070","first-page":"35","article-title":"LGBT* individuals and dementia: an intersectional approach.","volume-title":"Lesbian, gay, bisexual and trans* individuals living with dementia","author":"W Hulko","year":"2016"},{"issue":"1","key":"pone.0354661.ref071","doi-asserted-by":"crossref","DOI":"10.1111\/1467-9566.13869","article-title":"Privileges, and permissions: theorising intersectionality and cultures of control in the care of people living with dementia in acute hospital settings","volume":"47","author":"S Mwale","year":"2025","journal-title":"Sociol Health Illn"},{"key":"pone.0354661.ref072","first-page":"183","article-title":"Situated knowledges: the science question in feminism and the privilege of partial perspective.","volume-title":"Simians, cyborgs and women","author":"D Haraway","year":"1991"},{"key":"pone.0354661.ref073","volume-title":"The science question in feminism","author":"S Harding","year":"1986"},{"key":"pone.0354661.ref074","volume-title":"Feminist methods in social research","author":"S Reinarz","year":"1992"},{"key":"pone.0354661.ref075","unstructured":"Davis K. Intersectionality as critical methodology. In: Writing academic texts differently: intersectional feminist methodologies and the playful art of writing; 2014. p. 17\u201329."},{"key":"pone.0354661.ref076","unstructured":"Creswell JW, Creswell JD. Mixed methods research: developments, debates, and dilemmas. In: Research in organizations: foundations and methods of inquiry; 2005. p. 315\u201326."},{"key":"pone.0354661.ref077","doi-asserted-by":"crossref","DOI":"10.46658\/JBIMES-24-02","article-title":"Systematic reviews of qualitative evidence.","volume-title":"JBI manual for evidence synthesis","author":"C Lockwood","year":"2024"},{"issue":"7","key":"pone.0354661.ref078","doi-asserted-by":"crossref","first-page":"1632","DOI":"10.1111\/j.1365-2648.2011.05636.x","article-title":"Pragmatism as the philosophical foundation for the Joanna Briggs meta-aggregative approach to qualitative evidence synthesis","volume":"67","author":"K Hannes","year":"2011","journal-title":"J Adv Nurs"},{"key":"pone.0354661.ref079","unstructured":"Roscoe S, Edwards D, Featherstone K, Mwale S. Experiences of support seeking from the perspectives of UK-dwelling African and Caribbean people living with dementia, their care partners, and families: a qualitative systematic review protocol. PRPOSPERO CRD420250651295; 2025."},{"key":"pone.0354661.ref080","article-title":"The PRISMA 2020 statement: an updated guideline for reporting systematic reviews","volume":"372","author":"MJ Page","year":"2021","journal-title":"BMJ"},{"key":"pone.0354661.ref081","volume-title":"FIT for benefit: IT Services kundenorientiert planen und steuern","author":"W Vogt","year":"2002"},{"issue":"2","key":"pone.0354661.ref082","doi-asserted-by":"crossref","first-page":"14","DOI":"10.3102\/0013189X012002014","article-title":"Multisite qualitative policy research: optimizing description and generalizability","volume":"12","author":"RE Herriott","year":"1983","journal-title":"Educ Res"},{"issue":"1","key":"pone.0354661.ref083","first-page":"84","article-title":"Enhancing the policy process through the use of ethnography and other study frameworks: a mixed-method strategy","volume":"13","author":"VJ Caracelli","year":"2006","journal-title":"Res Sch"},{"key":"pone.0354661.ref084","volume-title":"The discovery of grounded theory","author":"B Glaser","year":"1967"},{"key":"pone.0354661.ref085","doi-asserted-by":"crossref","DOI":"10.4135\/9781848607934.n17","article-title":"Power and knowledge.","volume-title":"The SAGE handbook of action research: participative inquiry and practice","author":"J Gaventa","year":"2008","edition":"2"},{"issue":"5","key":"pone.0354661.ref086","doi-asserted-by":"crossref","first-page":"977","DOI":"10.1007\/s10734-021-00696-6","article-title":"Campus closures and the devaluing of emplaced Higher Education: widening participation in neoliberal times","volume":"82","author":"S Leaney","year":"2021","journal-title":"High Educ"},{"issue":"5","key":"pone.0354661.ref087","doi-asserted-by":"crossref","first-page":"625","DOI":"10.1111\/j.1467-9566.2009.01167.x","article-title":"The \u201cactualities\u201d of knowledge work: an institutional ethnography of multi-disciplinary primary health care teams","volume":"31","author":"E Quinlan","year":"2009","journal-title":"Sociol Health Illn"},{"issue":"3","key":"pone.0354661.ref088","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1177\/00027649921955326","article-title":"The ethnography of infrastructure","volume":"43","author":"SL Star","year":"1999","journal-title":"Am Behav Sci"},{"key":"pone.0354661.ref089","volume-title":"Contours of culture: complex ethnography and the ethnography of complexity","author":"P Atkinson","year":"2008"},{"key":"pone.0354661.ref090","article-title":"Narrative analysis.","volume-title":"Narrative memory and everyday life","author":"CK. Reissman","year":"2005"},{"key":"pone.0354661.ref091","first-page":"103","article-title":"Interviews: qualitative interviewing in the sport and exercise sciences.","volume-title":"Routledge handbook of qualitative research in sport and exercise","author":"B Smith","year":"2016"},{"key":"pone.0354661.ref092","first-page":"605","article-title":"Analysis of personal narratives.","volume-title":"Handbook of interview research: context and method","author":"CK. Reissman","year":"2002"},{"key":"pone.0354661.ref093","doi-asserted-by":"crossref","first-page":"160","DOI":"10.4135\/9781848608337.n11","article-title":"Grounded theory in ethnography.","volume-title":"Handbook of ethnography","author":"K Charmaz","year":"2001"}],"container-title":["PLOS One"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0354661","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,27]],"date-time":"2026-07-27T17:23:23Z","timestamp":1785173003000},"score":1,"resource":{"primary":{"URL":"https:\/\/dx.plos.org\/10.1371\/journal.pone.0354661"}},"subtitle":[],"editor":[{"given":"Annesha","family":"Sil","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"editor"}]}],"short-title":[],"issued":{"date-parts":[[2026,7,27]]},"references-count":93,"journal-issue":{"issue":"7","published-online":{"date-parts":[[2026,7,27]]}},"URL":"https:\/\/doi.org\/10.1371\/journal.pone.0354661","relation":{},"ISSN":["1932-6203"],"issn-type":[{"value":"1932-6203","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,27]]}}}