{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T18:04:54Z","timestamp":1789495494697,"version":"build-2803163510"},"reference-count":64,"publisher":"Public Library of Science (PLoS)","issue":"9","license":[{"start":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T00:00:00Z","timestamp":1789430400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000654","name":"Marie Curie","doi-asserted-by":"publisher","award":["MCCRP-24-01"],"award-info":[{"award-number":["MCCRP-24-01"]}],"id":[{"id":"10.13039\/501100000654","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000654","name":"Marie Curie","doi-asserted-by":"publisher","award":["MCRFS-20-101"],"award-info":[{"award-number":["MCRFS-20-101"]}],"id":[{"id":"10.13039\/501100000654","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.plosone.org"],"crossmark-restriction":false},"short-container-title":["PLoS One"],"abstract":"<jats:sec id=\"sec001\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Globally the number of people with an advanced progressive illness is increasing. Research is essential to inform policy, services and clinical practice to meet their needs. We investigated researcher perspectives on conducting palliative and end-of-life care research in the United Kingdom\u00a0and what is needed to grow this field.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec002\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a mixed-methods online survey of individuals conducting palliative and end-of-life care research in an academic institution or any care setting. Quantitative data were analysed descriptively, while qualitative data from open-ended questions were analysed using a Framework Method.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec003\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Overall, 256 people involved in palliative and end-of-life care research responded (80% female, 85% white, 83% aged over 35). Most worked at a university (79%), 67% worked full-time, 47% had a permanent contract and 9% were clinical academics. Many reported positive aspects of their working environment, such as a collaborative culture and research rigour. Nearly all (90%) wished to continue palliative and end-of-life care research during the next five years, however only 69% believed this was likely. Most common barriers were lack of funding (56%), heavy workload (42%), job insecurity (39%), and limited career progression opportunities (33%). To sustain and grow research activity, participants identified a need for: (i) Greater visibility of palliative and end-of-life care as a vital research field; (ii) Increased funding to support those undertaking palliative and end-of-life care research, across career stages and disciplines; (iii) Increased opportunities for collaboration and networking; (iv) Protected research time, and (v) Support to build a more diverse research community.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"sec004\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Despite a committed workforce, palliative and end-of-life care research lacks visibility and funding. Increased visibility through knowledge exchange and impact activities, alongside more targeted research funding opportunities, are essential to build research capacity for the future.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1371\/journal.pone.0357024","type":"journal-article","created":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T17:34:22Z","timestamp":1789493662000},"page":"e0357024","update-policy":"https:\/\/doi.org\/10.1371\/journal.pone.corrections_policy","source":"Crossref","is-referenced-by-count":0,"title":["Growing palliative and end-of-life care research in the United Kingdom: Findings from a mixed methods survey"],"prefix":"10.1371","volume":"21","author":[{"given":"Ikumi","family":"Okamoto","sequence":"first","affiliation":[{"name":"University of Edinburgh","place":["Scotland, United Kingdom"],"department":["Clinical Psychology, School of Health in Social Science"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-7181-6373","authenticated-orcid":true,"given":"Alice","family":"Jin","sequence":"additional","affiliation":[{"name":"School of Philosophy, Psychology, & Language Sciences, University of Edinburgh","place":["Scotland, United Kingdom"],"department":["Department of Psychology"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2863-8893","authenticated-orcid":true,"given":"Simon Noah","family":"Etkind","sequence":"additional","affiliation":[{"name":"University of Cambridge","place":["Cambridge, United Kingdom"],"department":["Primary Care Unit, Department of Public Health and Primary Care"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Donna","family":"Wakefield","sequence":"additional","affiliation":[{"name":"Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull","place":["Hull, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tracey","family":"McConnell","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery, Queen\u2019s University Belfast","place":["Belfast, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anthony","family":"Byrne","sequence":"additional","affiliation":[{"name":"Velindre University NHS Trust","place":["Wales, United Kingdom"],"department":["epartment of Palliative Medicine"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-2603-8516","authenticated-orcid":true,"given":"Yesha Viren","family":"Dharamshi","sequence":"additional","affiliation":[{"name":"University of Edinburgh","place":["Scotland, United Kingdom"],"department":["Clinical Psychology, School of Health in Social Science"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fliss","family":"Murtagh","sequence":"additional","affiliation":[{"name":"Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull","place":["Hull, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3056-059X","authenticated-orcid":true,"given":"Anne","family":"Finucane","sequence":"additional","affiliation":[{"name":"University of Edinburgh","place":["Scotland, United Kingdom"],"department":["Clinical Psychology, School of Health in Social Science"]},{"name":"Marie Curie Hospice Edinburgh","place":["Scotland, United Kingdom"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"340","published-online":{"date-parts":[[2026,9,15]]},"reference":[{"issue":"7","key":"pone.0357024.ref001","doi-asserted-by":"crossref","DOI":"10.1016\/S2214-109X(19)30172-X","article-title":"The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions","volume":"7","author":"KE Sleeman","year":"2019","journal-title":"Lancet Glob Health"},{"issue":"1","key":"pone.0357024.ref002","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1186\/s12916-017-0860-2","article-title":"How many people will need palliative care in 2040? 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