{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,13]],"date-time":"2026-06-13T07:03:30Z","timestamp":1781334210691,"version":"3.54.1"},"reference-count":67,"publisher":"Walter de Gruyter GmbH","issue":"5-6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2019,10,25]]},"abstract":"<jats:title>Abstract<\/jats:title>\n               <jats:p>Today, medical data such as diagnoses, procedures, imaging reports and laboratory tests, are not only collected in context of primary research and clinical studies. In addition, citizens are tracking their daily steps, food intake, sport exercises, and disease symptoms via mobile phones and wearable devices. In this context, the topic of \u201cdata donation\u201d is drawing increased attention in science, politics, ethics and practice. This paper provides insights into the status quo of personal data donation in Germany and from a global perspective. As this topic requires a consideration of several perspectives, potential benefits and related, multifaceted challenges for citizens, patients and researchers are discussed. This includes aspects such as data quality &amp; accessibility, privacy and ethical considerations.<\/jats:p>","DOI":"10.1515\/itit-2019-0024","type":"journal-article","created":{"date-parts":[[2019,11,26]],"date-time":"2019-11-26T09:02:37Z","timestamp":1574758957000},"page":"219-229","source":"Crossref","is-referenced-by-count":23,"title":["Your data is gold \u2013 Data donation for better healthcare?"],"prefix":"10.1515","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1098-9417","authenticated-orcid":false,"given":"Veronika","family":"Strotbaum","sequence":"first","affiliation":[{"name":"ZTG Zentrum f\u00fcr Telematik und Telemedizin GmbH , Universit\u00e4tsstr. 142 , Bochum , Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9925-2173","authenticated-orcid":false,"given":"Monika","family":"Pobiruchin","sequence":"additional","affiliation":[{"name":"Heilbronn University , GECKO Institute for Medicine, Informatics and Economics , Max-Planck-Str. 39 , Heilbronn , Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1748-1563","authenticated-orcid":false,"given":"Bj\u00f6rn","family":"Schreiweis","sequence":"additional","affiliation":[{"name":"Institute for Medical Informatics and Statistics , University Hospital Schleswig-Holstein and Kiel University , Arnold-Heller-Str. 3 , Kiel , Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3346-9633","authenticated-orcid":false,"given":"Martin","family":"Wiesner","sequence":"additional","affiliation":[{"name":"Heilbronn University , Faculty of Computer Science , Max-Planck-Str. 39 , Heilbronn , Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5069-6857","authenticated-orcid":false,"given":"Brigitte","family":"Strahwald","sequence":"additional","affiliation":[{"name":"Pettenkofer School of Public Health (PSPH) , Institute for Medical Informatics, Biometry and Epidemiology (IBE) , LMU Munich , Marchioninistr. 17 , Munich , Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"374","published-online":{"date-parts":[[2019,11,26]]},"reference":[{"key":"2023033120044233283_j_itit-2019-0024_ref_001_w2aab3b7c25b1b6b1ab2ab1Aa","unstructured":"WHO. 2010. 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