{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,7]],"date-time":"2026-11-07T19:42:12Z","timestamp":1794080532982,"version":"4.8.0"},"reference-count":36,"publisher":"Walter de Gruyter GmbH","issue":"2","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2020,5,26]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"j_dx-2019-0020_s_999_w2aab3b7b4b1b6b1aab1c16b1Aa\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Endometriosis is an estrogen-dependent disease affecting 10% of females in which endometrial-like tissue grows outside the uterus, resulting in pain, infertility, and physical and psychosocial dysfunction. Prior research documenting diagnostic error reports a 6.7-year mean diagnostic delay. This study takes a patient-oriented approach and aims to complement prior research on diagnostic error by examining patient-reported experiences with misdiagnosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"j_dx-2019-0020_s_998_w2aab3b7b4b1b6b1aab1c16b2Aa\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Data were part of a larger online survey comprising nonrandomly sampled patients with self-reported surgically confirmed endometriosis (n\u2009=\u2009758). We examined patients\u2019 reports of misdiagnosis, to which healthcare professionals (HCPs) they attributed misdiagnosis, mean diagnostic delay, and endometriosis symptoms and physical sites predicting misdiagnosis reports.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"j_dx-2019-0020_s_997_w2aab3b7b4b1b6b1aab1c16b3Aa\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Mean reported diagnostic delay was 8.6 years. 75.2% of patients reported being misdiagnosed with another physical health (95.1%) and\/or mental health problem (49.5%) and most frequently by gynecologists (53.2%) followed by general practitioners (34.4%). Higher odds of reporting a physical or mental health misdiagnosis was associated with reports of virtually all symptoms and endometriosis on the bladder, small bowel, pelvic sidewall, and rectum. Higher odds of reporting a physical health misdiagnosis was exclusively associated with reports of endometriosis on the appendix. Higher odds of reporting a mental health misdiagnosis was exclusively associated with reports of a younger symptom onset age; endometriosis on the diaphragm, large bowel, lung, and ureter; and comorbid adenomyosis diagnosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"j_dx-2019-0020_s_996_w2aab3b7b4b1b6b1aab1c16b4Aa\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Endometriosis continues to present serious and complex diagnostic challenges. These findings corroborate previous objective investigations documenting endometriosis diagnostic error, establish the first patient-reported incidence, and further demonstrate value in including patients in diagnostic error research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1515\/dx-2019-0020","type":"journal-article","created":{"date-parts":[[2020,2,2]],"date-time":"2020-02-02T04:02:07Z","timestamp":1580616127000},"page":"97-106","source":"Crossref","is-referenced-by-count":47,"title":["Patient perceptions of misdiagnosis of endometriosis: results from an online national survey"],"prefix":"10.1515","volume":"7","author":[{"given":"Allyson C.","family":"Bontempo","sequence":"first","affiliation":[{"name":"School of Communication and Information , Rutgers University , New Brunswick , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa","family":"Mikesell","sequence":"additional","affiliation":[{"name":"School of Communication and Information , Rutgers University , New Brunswick , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"374","published-online":{"date-parts":[[2020,2,3]]},"reference":[{"key":"2025121207032449061_j_dx-2019-0020_ref_001_w2aab3b7b4b1b6b1ab2b2b1Aa","doi-asserted-by":"crossref","unstructured":"Giudice LC. Endometriosis. N Engl J Med 2010;362:2389\u201398.","DOI":"10.1056\/NEJMcp1000274"},{"key":"2025121207032449061_j_dx-2019-0020_ref_002_w2aab3b7b4b1b6b1ab2b2b2Aa","doi-asserted-by":"crossref","unstructured":"Shafrir AL, Farland LV, Shah DK, Harris HR, Kvaskoff M, Zondervan K, et al. Risk for and consequences of endometriosis: a critical epidemiologic review. Best Pract Res Clin Obstet Gynaecol 2018;1:1\u20135.","DOI":"10.1016\/j.bpobgyn.2018.06.001"},{"key":"2025121207032449061_j_dx-2019-0020_ref_003_w2aab3b7b4b1b6b1ab2b2b3Aa","doi-asserted-by":"crossref","unstructured":"Tabibian N, Swehli E, Boyd A, Umbreen A, Tabibian JH. Abdominal adhesions: a practical review of an often overlooked entity. Ann Med Surg 2017;15:9\u201313.","DOI":"10.1016\/j.amsu.2017.01.021"},{"key":"2025121207032449061_j_dx-2019-0020_ref_004_w2aab3b7b4b1b6b1ab2b2b4Aa","doi-asserted-by":"crossref","unstructured":"Culley L, Law C, Hudson N, Denny E, Mitchell H, Baumgarten M, et al. 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