{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T22:27:56Z","timestamp":1793399276618,"version":"4.5.0"},"reference-count":34,"publisher":"Walter de Gruyter GmbH","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"abstract":"Abstract<\/jats:title>\n \n Objectives<\/jats:title>\n Early diagnosis of juvenile idiopathic arthritis (JIA) improves long-term outcomes. The study aims to assess patient reported time to diagnosis with JIA and signs of disease-related damage at the time of diagnosis.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n Retrospective cohort study of patients with an incident JIA diagnosis at an academic center over a 2-year period. Patient reported time to diagnosis and signs of disease-related damage were extracted from the electronic medical record. Factors associated with time to diagnosis were evaluated with regression modeling.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Of the 237 children diagnosed during the study period, the median patient reported time to diagnosis was 19\u00a0weeks (IQR: 8\u201340, range: 1\u2013311). Time to diagnosis was >1\u00a0year in 23.5\u202f% of patients, and >2\u00a0years in 11.7\u202f%. In the linear regression model, older age was associated with longer time to diagnosis. Many patients (40.9\u202f%) had at least one sign of damage. Damage was most common in younger children and children with oligoarticular disease.<\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n It is common for patients with JIA to have a prolonged time to diagnosis, and many have damage at diagnosis. A regression model fails to explain most of the variance in the time to diagnosis, suggesting there is much to learn about the drivers of diagnostic delay in\u00a0JIA.<\/jats:p>\n <\/jats:sec>","DOI":"10.1515\/dx-2025-0156","type":"journal-article","created":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T02:58:36Z","timestamp":1777863516000},"source":"Crossref","is-referenced-by-count":1,"title":["Rheum for earlier recognition: patient reported time to diagnosis of juvenile idiopathic arthritis"],"prefix":"10.1515","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4247-5226","authenticated-orcid":false,"given":"Anna C.O.","family":"Costello","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Division of Rheumatology , Children\u2019s Hospital of Philadelphia , Philadelphia , PA , USA"},{"name":"University of Pennsylvania , Philadelphia , PA , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela F.","family":"Weiss","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Rheumatology , Children\u2019s Hospital of Philadelphia , Philadelphia , PA , USA"},{"name":"University of Pennsylvania , Philadelphia , PA , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rui","family":"Xiao","sequence":"additional","affiliation":[{"name":"University of Pennsylvania , Philadelphia , PA , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1368-534X","authenticated-orcid":false,"given":"Irit R.","family":"Rasooly","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Rheumatology , Children\u2019s Hospital of Philadelphia , Philadelphia , PA , USA"},{"name":"University of Pennsylvania , Philadelphia , PA , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"374","published-online":{"date-parts":[[2026,5,5]]},"reference":[{"key":"2026050402583157001_j_dx-2025-0156_ref_001","unstructured":"Petty, RE, Laxer, RM, Lindsley, CB, Wedderburn, LR, Mellins, E, Fuhlbrigge, R. 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