{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T19:04:50Z","timestamp":1789844690923,"version":"4.0.1"},"reference-count":26,"publisher":"Walter de Gruyter GmbH","issue":"2","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2016,5,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>\n                    <jats:bold>Background:<\/jats:bold>\n                    Instrumentation with established reliability and validity is not yet routinely utilized to assess readiness for transition from pediatric to adult care for youth and young adults with chronic conditions, including sickle cell disease (SCD).\n                  <\/jats:p>\n                  <jats:p>\n                    <jats:bold>Objective:<\/jats:bold>\n                    The aim of this study was to develop a SCD specific readiness for transition assessment tool.\n                  <\/jats:p>\n                  <jats:p>\n                    <jats:bold>Subjects:<\/jats:bold>\n                    Fifty-seven youths with SCD, ages 15\u201321 years, completed the initial version of the Transition Intervention Program \u2013 Readiness for Transition (\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    ) assessment; 113 youths\/young adults with SCD, ages 14\u201326 years, at two distinct sites of care completed a refined version of the\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    .\n                  <\/jats:p>\n                  <jats:p>\n                    <jats:bold>Methods:<\/jats:bold>\n                    The\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    was constructed based on a literature review, provider and patient consensus and assessed domains including knowledge and skills in medical self-care, social support, health benefits and independent living and educational\/vocational skills. We used principal components factor analysis to evaluate\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    responses and assessed differences in\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    scores in relation to age, gender, sickle cell diagnosis and site of care.\n                  <\/jats:p>\n                  <jats:p>\n                    <jats:bold>Results:<\/jats:bold>\n                    The original\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    , which had demonstrated face validity, was reduced from 56 to 22 items. The revised instrument consisting of four subscales demonstrated good internal consistency reliability and construct validity.\n                  <\/jats:p>\n                  <jats:p>\n                    <jats:bold>Conclusion:<\/jats:bold>\n                    Our results support that the\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    is a valid and reliable tool for the assessment of transition readiness for youths with SCD. The\n                    <jats:italic>TIP-RFT<\/jats:italic>\n                    assessment can guide interventions to improve transition readiness and can provide a foundation for future research on other variables that might be associated with transition readiness.\n                  <\/jats:p>","DOI":"10.1515\/ijamh-2015-0010","type":"journal-article","created":{"date-parts":[[2015,7,30]],"date-time":"2015-07-30T13:21:27Z","timestamp":1438262487000},"page":"193-201","source":"Crossref","is-referenced-by-count":29,"title":["Development of a sickle cell disease readiness for transition assessment"],"prefix":"10.1515","volume":"28","author":[{"given":"Marsha","family":"Treadwell","sequence":"first","affiliation":[{"name":"Department of Hematology\/Oncology, UCSF Benioff Children\u2019s Hospital Oakland, Oakland, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shirley","family":"Johnson","sequence":"additional","affiliation":[{"name":"Division of General Internal Medicine, Virginia Commonwealth University, Richmond, VA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"India","family":"Sisler","sequence":"additional","affiliation":[{"name":"Pediatric Hematology\/Oncology, Virginia Commonwealth University, Richmond, VA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew","family":"Bitsko","sequence":"additional","affiliation":[{"name":"Pediatric Hematology\/Oncology, Virginia Commonwealth University, Richmond, VA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ginny","family":"Gildengorin","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital Oakland Research Institute, Oakland, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rogelio","family":"Medina","sequence":"additional","affiliation":[{"name":"Department of Hematology\/Oncology, UCSF Benioff Children\u2019s Hospital Oakland, Oakland, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fernando","family":"Barreda","sequence":"additional","affiliation":[{"name":"Department of Research and Evaluation, Kaiser Permanente Research, Oakland, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kimberly","family":"Major","sequence":"additional","affiliation":[{"name":"Departments of Social Services and Hematology\/Oncology, UCSF Benioff Chidren\u2019s Hospital Oakland, Oakland, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph","family":"Telfair","sequence":"additional","affiliation":[{"name":"Jiann-Ping Hsu College of Public Health, Georgia Southern University, Statesboro, GA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wally R.","family":"Smith","sequence":"additional","affiliation":[{"name":"Division of General Internal Medicine, Virginia Commonwealth University, Richmond, VA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"374","published-online":{"date-parts":[[2015,7,30]]},"reference":[{"key":"2025112800271752056_j_ijamh-2015-0010_ref_001_w2aab3b7c33b1b6b1ab2b1b1Aa","doi-asserted-by":"crossref","unstructured":"Pinckney RB, Stuart GW. 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