{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,4]],"date-time":"2026-11-04T21:05:42Z","timestamp":1793826342123,"version":"4.6.1"},"reference-count":26,"publisher":"Walter de Gruyter GmbH","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2019,1,28]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec id=\"j_sjpain-2018-0121_s_001\">\n                    <jats:title>Background and aims<\/jats:title>\n                    <jats:p>Caring for children with chronic pain incurs burdens of cost and time for families. We aimed to describe variation in caregiver burden among parents of adolescents with chronic pain who responded to a nationally-representative survey. Our secondary aim was to identify child and parent characteristics associated with increased caregiver burden.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"j_sjpain-2018-0121_s_002\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We used de-identified, publicly-available data from the 2016 National Survey of Children\u2019s Health (NSCH), designed to be representative of non-institutionalized children in the United States. We analyzed data for households where an adolescent age 12\u201317 years old was reported by a parent to have chronic pain. Outcomes included the parent\u2019s time spent on the child\u2019s health needs, reduced labor force participation, and out-of-pocket medical costs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"j_sjpain-2018-0121_s_003\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Data on 1,711 adolescents were analyzed. For adolescents with chronic pain, 15% of parents reported spending at least 1 h\/week on their child\u2019s health care, 14% reported cutting back on paid work, and 36% reported spending \u2265$500 on their child\u2019s health care in the past 12 months. Adolescents\u2019 general health status and extent of specialized health care needs predicted increased caregiver burden across the three measures. Conversely, no consistent differences in caregiver burden were noted according to demographic or socioeconomic characteristics.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"j_sjpain-2018-0121_s_004\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Among adolescents with chronic pain identified on a nationally-representative survey, parents frequently reported reducing work participation and incurring out-of-pocket expenses in providing health care for their child. Caregiver burdens increased with indicators of greater medical complexity (e.g. presence of comorbidities, need for specialized health care) and poorer overall adolescent health status.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec id=\"j_sjpain-2018-0121_s_005\">\n                    <jats:title>Implications<\/jats:title>\n                    <jats:p>We add a national-level perspective to studies previously performed in clinical samples addressing caregiver burden in pediatric chronic pain. Initiatives to reduce the burden of caring for children with chronic pain, described in prior work, may be especially beneficial for families with adolescents whose chronic pain is accompanied by other health problems or requires coordination of care among multiple providers.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1515\/sjpain-2018-0121","type":"journal-article","created":{"date-parts":[[2018,9,21]],"date-time":"2018-09-21T05:05:00Z","timestamp":1537506300000},"page":"109-116","source":"Crossref","is-referenced-by-count":31,"title":["Pediatric chronic pain and caregiver burden in a national survey"],"prefix":"10.1515","volume":"19","author":[{"given":"Hannah","family":"Datz","sequence":"first","affiliation":[{"name":"Marshall University Joan C. Edwards School of Medicine , Huntington, WV , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dmitry","family":"Tumin","sequence":"additional","affiliation":[{"name":"Nationwide Children\u2019s Hospital, 700 Children\u2019s Drive , Columbus, OH 43205 , USA"},{"name":"Department of Anesthesiology and Pain Medicine , Nationwide Children\u2019s Hospital , Columbus, OH , USA"},{"name":"Department of Pediatrics , The Ohio State Unviersity , Columbus, OH , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"Miller","sequence":"additional","affiliation":[{"name":"Department of Anesthesiology and Pain Medicine , Nationwide Children\u2019s Hospital , Columbus, OH , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Timothy P.","family":"Smith","sequence":"additional","affiliation":[{"name":"Department of Anesthesiology and Pain Medicine , Nationwide Children\u2019s Hospital , Columbus, OH , USA"},{"name":"Department of Anesthesiology and Pain Medicine , The Ohio State University , Columbus, OH , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tarun","family":"Bhalla","sequence":"additional","affiliation":[{"name":"Department of Anesthesiology and Pain Medicine , Nationwide Children\u2019s Hospital , Columbus, OH , USA"},{"name":"Department of Anesthesiology and Pain Medicine , The Ohio State University , Columbus, OH , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph D.","family":"Tobias","sequence":"additional","affiliation":[{"name":"Department of Anesthesiology and Pain Medicine , Nationwide Children\u2019s Hospital , Columbus, OH , USA"},{"name":"Department of Pediatrics , The Ohio State Unviersity , Columbus, OH , USA"},{"name":"Department of Anesthesiology and Pain Medicine , The Ohio State University , Columbus, OH , USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"374","published-online":{"date-parts":[[2018,9,21]]},"reference":[{"key":"2025120910013995860_j_sjpain-2018-0121_ref_001","doi-asserted-by":"crossref","unstructured":"Tumin D, Drees D, Miller R, Wrona S, Hayes D, Tobias JD, Bhalla T. Health care utilization and costs associated with pediatric chronic pain. J Pain 2018;19:973\u201382.","DOI":"10.1016\/j.jpain.2018.03.012"},{"key":"2025120910013995860_j_sjpain-2018-0121_ref_002","doi-asserted-by":"crossref","unstructured":"King S, Chambers CT, Huguet A, MacNevin RC, McGrath PJ, Parker L, MacDonald AJ. The epidemiology of chronic pain in children and adolescents revisited: a systematic review. Pain 2011;152:2729\u201338.","DOI":"10.1016\/j.pain.2011.07.016"},{"key":"2025120910013995860_j_sjpain-2018-0121_ref_003","unstructured":"Palermo T, Eccleston C, Goldschneider K, McGinn KL, Sethna N, Schechter N, Turner H. Assessment and management of children with chronic pain, a position statement from the American Pain Society. Available at: http:\/\/americanpainsociety.org\/uploads\/get-involved\/pediatric-chronic-pain-statement.pdf. 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