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We describe our experiences of presenting multi-disciplinary research findings to the HD community, and discuss the need to: (1) balance potential benefits and harms for participants, researchers, and others; (2) demonstrate respect for participants' needs, expectations, and priorities; and (3) ensure transparency and respect for autonomy.<\/jats:p>","DOI":"10.1525\/jer.2011.6.3.47","type":"journal-article","created":{"date-parts":[[2011,9,19]],"date-time":"2011-09-19T15:25:27Z","timestamp":1316445927000},"page":"47-54","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":4,"title":["When They Hear What We Say: Ethical Challenges in Presenting Research Findings to the Huntington Disease Community"],"prefix":"10.1177","volume":"6","author":[{"given":"Yvonne","family":"Bombard","sequence":"first","affiliation":[{"name":"University of Toronto"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susan M.","family":"Cox","sequence":"additional","affiliation":[{"name":"University of British Columbia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alicia","family":"Semaka","sequence":"additional","affiliation":[{"name":"University of British Columbia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2011,9,1]]},"reference":[{"key":"bibr1-jer.2011.6.3.47","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.b.31130"},{"key":"bibr2-jer.2011.6.3.47","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.2007.00770.x"},{"key":"bibr3-jer.2011.6.3.47","doi-asserted-by":"publisher","DOI":"10.1038\/sj.ejhg.5201937"},{"key":"bibr4-jer.2011.6.3.47","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.b2175"},{"key":"bibr5-jer.2011.6.3.47","volume-title":"When they read what we write: The politics of ethnography","author":"Brettell C. 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