{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T00:42:28Z","timestamp":1785372148805,"version":"3.55.0"},"reference-count":13,"publisher":"American Academy of Pediatrics (AAP)","issue":"11","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2019,11,1]]},"abstract":"\n OBJECTIVES:<\/jats:title>\n To characterize the baseline level of emergency preparedness among families of technology-dependent children admitted to our PICU and to determine if an ICU-based planning intervention can sustainably improve families\u2019 disaster preparedness.<\/jats:p>\n <\/jats:sec>\n \n METHODS:<\/jats:title>\n A single-arm, survey-based study used to assess participants\u2019 preparedness to handle a 72-hour home power outage on the basis of a novel 8-point checklist. Parents of patients in the study completed the survey questions when their child was admitted to the PICU, discharged, or transferred from the PICU, after at least 2 weeks at home, and after at least 6 months at home. This study included a cohort of 50 children younger than18 years old who required daily use of at least 1 piece of qualifying electronic medical equipment at home and their custodial parents. The checklist surveyed was designed with the goals of maximizing care capacity at home during a power outage and planning for evacuation. Counseling and other resources were provided on the basis of item completion at admission assessment.<\/jats:p>\n <\/jats:sec>\n \n RESULTS:<\/jats:title>\n Patients\u2019 families completed a median of 3 items (range: 0\u20138; N = 50) at admission, 4 items (range: 1\u20138; n = 45) at discharge, and 7 items (range: 3\u20138; n = 37) at the 2-week follow-up and retained 7 items (range: 5\u20138; n = 29) at the 6-month follow-up. Completion rates were significantly higher at each follow-up time point compared with baseline (P &lt; .001).<\/jats:p>\n <\/jats:sec>\n \n CONCLUSIONS:<\/jats:title>\n Families of technology-dependent children admitted to our PICU have significant disaster-preparedness needs, which can be addressed with an inpatient intervention.<\/jats:p>\n <\/jats:sec>","DOI":"10.1542\/hpeds.2019-0091","type":"journal-article","created":{"date-parts":[[2019,11,1]],"date-time":"2019-11-01T13:15:20Z","timestamp":1572614120000},"page":"874-879","source":"Crossref","is-referenced-by-count":22,"title":["Preparing Families of Technology-Dependent Children for Emergencies"],"prefix":"10.1542","volume":"9","author":[{"given":"Jennifer K.","family":"Gillen","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Division of Critical Care, Icahn School of Medicine at Mount Sinai, New York, New York; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marilyn C.","family":"Morris","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Division of Critical Care, Columbia University, New York, New York"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"417","published-online":{"date-parts":[[2019,11,1]]},"reference":[{"issue":"3","key":"2021120817063022500_B1","doi-asserted-by":"crossref","first-page":"240","DOI":"10.1001\/dmp.2010.28","article-title":"Disaster preparedness among families of children with special health care needs","volume":"4","author":"Baker","year":"2010","journal-title":"Disaster Med Public Health Prep"},{"issue":"6","key":"2021120817063022500_B2","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2014-1956","article-title":"Preventing hospitalizations in children with medical complexity: a systematic review","volume":"134","author":"Coller","year":"2014","journal-title":"Pediatrics"},{"issue":"3","key":"2021120817063022500_B3","doi-asserted-by":"crossref","first-page":"226","DOI":"10.1111\/j.1744-6155.2011.00293.x","article-title":"Disaster preparedness for children with special healthcare needs and disabilities","volume":"16","author":"Murray","year":"2011","journal-title":"J Spec Pediatr Nurs"},{"issue":"5","key":"2021120817063022500_B4","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2015-3112","article-title":"Ensuring the health of children in disasters","volume":"136","author":"Disaster Preparedness Advisory Council","year":"2015","journal-title":"Pediatrics"},{"key":"2021120817063022500_B5","doi-asserted-by":"crossref","first-page":"S96","DOI":"10.1097\/01.CCM.0000150956.90030.23","article-title":"Effects of the August 2003 blackout on the New York City healthcare delivery system: a lesson for disaster 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Planning for emergencies. Available at: https:\/\/www.medicalhomeportal.org\/living-with-child\/after-a-diagnosis-or-problem-is-identified\/caring-for-children-with-special-health-care-needs\/managing-and-coordinating-care\/planning-for-emergencies. 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