{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T07:50:04Z","timestamp":1789631404689,"version":"build-2803163510"},"reference-count":27,"publisher":"American Academy of Pediatrics (AAP)","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2007,6,1]]},"abstract":"<jats:p>OBJECTIVES. Although considered critical to facilitate the successful transition from pediatric to adult health care, the continuity of insurance coverage for young adults with disabilities as they make the transition to adulthood has not been well characterized. The purpose of this work was to compare the continuity of insurance coverage reported by a nationally representative sample of young adults 16 to 25 years old with and without disabilities during a consecutive 36-month period.<\/jats:p><jats:p>METHODS. We performed secondary analysis of data from the 2001 Survey of Income Program and Participation. Data for the survey were collected at 4-month intervals from February 2001 through January 2004 for 5170 young adults. Subjects with disabilities were those who reported limitations in activities of daily living or work, used assistive devices, and\/or had learning disabilities, mental retardation, or other mental disorders. The primary outcome was uninsurance defined for each study month in which there was no coverage by private, public, or military programs. We present bivariate analyses of the months of uninsurance according to disability status using longitudinal weights and design-effect adjustments to account for the complex sample design.<\/jats:p><jats:p>RESULTS. The sample consisted of 599 subjects with and 4571 without reported disabilities, representing 3970000 and 30800000 young adults in the United States, respectively. At study entry, 22% of the young adults with disabilities were uninsured. During the 36-month follow-up period, 56% of the young adults with disability reported gaps in insurance coverage with a mean of 15 months of uninsurance. The proportion of uninsured subjects did not significantly differ by disability status.<\/jats:p><jats:p>CONCLUSIONS. The majority of young adults with disabilities reported gaps in insurance coverage, and many were uninsured for a substantial portion of the study period. As an increasing number of children with special health care needs make the transition to adulthood, improving the continuity of health insurance coverage for this population warrants specific attention.<\/jats:p>","DOI":"10.1542\/peds.2006-1881","type":"journal-article","created":{"date-parts":[[2007,6,1]],"date-time":"2007-06-01T16:36:04Z","timestamp":1180715764000},"page":"1175-1180","source":"Crossref","is-referenced-by-count":45,"title":["Continuity of Health Insurance Coverage Among Young Adults With Disabilities"],"prefix":"10.1542","volume":"119","author":[{"given":"S. Todd","family":"Callahan","sequence":"first","affiliation":[{"name":"Divisions of Adolescent Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"William O.","family":"Cooper","sequence":"additional","affiliation":[{"name":"General Pediatrics, Child and Adolescent Health Research Unit, Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"417","published-online":{"date-parts":[[2007,6,1]]},"reference":[{"key":"2021120902045530800_R1","doi-asserted-by":"crossref","unstructured":"American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics.\u20082002;110(6 suppl):1304\u20131306","DOI":"10.1542\/peds.110.S3.1304"},{"key":"2021120902045530800_R2","doi-asserted-by":"crossref","unstructured":"Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health.\u20082003;33:309\u2013311","DOI":"10.1016\/S1054-139X(03)00208-8"},{"key":"2021120902045530800_R3","unstructured":"Field MJ, Jette AM, Martin LG, eds. Workshop on Disability in America: A New Look\u2014Summary and Background Papers. Washington, DC: National Academies Press; 2006"},{"key":"2021120902045530800_R4","doi-asserted-by":"crossref","unstructured":"Freed GL, Hudson EJ. Transitioning children with chronic diseases to adult care: current knowledge, practices, and directions. J Pediatr.\u20082006;148:824\u2013827","DOI":"10.1016\/j.jpeds.2006.02.010"},{"key":"2021120902045530800_R5","doi-asserted-by":"crossref","unstructured":"White PH. Access to health care: health insurance considerations for young adults with special health care needs\/disabilities. Pediatrics.\u20082002;110:1328\u20131335","DOI":"10.1542\/peds.110.S3.1328"},{"key":"2021120902045530800_R6","doi-asserted-by":"crossref","unstructured":"White PH. Transition: a future promise for children and adolescents with special health care needs and disabilities. Rheum Dis Clin North Am.\u20082002;28:687\u2013703, viii","DOI":"10.1016\/S0889-857X(02)00020-0"},{"key":"2021120902045530800_R7","unstructured":"Blum RW. Introduction. Improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics.\u20082002;110:1301\u20131303"},{"key":"2021120902045530800_R8","doi-asserted-by":"crossref","unstructured":"Fishman E. 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Young adults in Massachusetts: who is at risk of being uninsured?J Adolesc Health.\u20082004;35:425, e19\u2013e27","DOI":"10.1016\/j.jadohealth.2004.02.016"},{"key":"2021120902045530800_R12","doi-asserted-by":"crossref","unstructured":"McManus MA, Newacheck PW, Greaney AM. Young adults with special health care needs: prevalence, severity, and access to health services. Pediatrics.\u20081990;86:674\u2013682","DOI":"10.1542\/peds.86.5.674"},{"key":"2021120902045530800_R13","doi-asserted-by":"crossref","unstructured":"Callahan ST, Cooper WO. Access to health care for young adults with disabling chronic conditions. Arch Pediatr Adolesc Med.\u20082006;160:178\u2013182","DOI":"10.1001\/archpedi.160.2.178"},{"key":"2021120902045530800_R14","unstructured":"US Census Bureau. Survey of income and program participation users\u2019 guide. Available at: www.bls.census.gov\/sipp\/usrguide\/sipp2001.pdf. Accessed January 23, 2007"},{"key":"2021120902045530800_R15","unstructured":"US Census Bureau. Technical documentation: Survey of Income Program and Participation (SIPP) 2001 panel, wave 2 microdata file. Available at: www.census.gov\/apsd\/techdoc\/sipp\/sipp.html. Accessed January 23, 2007"},{"key":"2021120902045530800_R16","unstructured":"Centers for Disease Control. Prevalence of disabilities and associated health conditions among adults: United States, 1999. MMWR Morb Mortal Wkly Rep.\u20082001;50:120\u2013125"},{"key":"2021120902045530800_R17","unstructured":"Cahoon LS. SIPP 2001: source and accuracy statement for the 9-wave longitudinal file. US Census Bureau. Available at: www.sipp.census.gov\/sipp\/sourceac\/S&A01_20051005_Long(S&A-3).pdf. Accessed January 23, 2007"},{"key":"2021120902045530800_R18","unstructured":"US Census Bureau. How the US Census Bureau measures poverty (official measure). Available at: www.census.gov\/hhes\/www\/poverty\/povdef.html. 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Success on the road to adulthood: issues and hurdles for adolescents with disabilities. Rheum Dis Clin North Am.\u20081997;23:697\u2013707","DOI":"10.1016\/S0889-857X(05)70353-7"},{"key":"2021120902045530800_R23","doi-asserted-by":"crossref","unstructured":"Bindman AB, Grumbach K, Osmond D, Vranizan K, Stewart AL. Primary care and receipt of preventive services. J Gen Intern Med.\u20081996;11:269\u2013276","DOI":"10.1007\/BF02598266"},{"key":"2021120902045530800_R24","unstructured":"McQueen MP. Health insurers must cover adult children. Wall Street Journal. April 11, 2006:D1"},{"key":"2021120902045530800_R25","unstructured":"New Jersey Pub L No. 2005, c. 375. Coverage for certain dependents until age 30 by hospital service corporation; 2005"},{"key":"2021120902045530800_R26","doi-asserted-by":"crossref","unstructured":"Long SK, Zuckerman S, Graves JA. Are adults benefiting from state coverage expansions?Health Aff (Millwood).\u20082006;25:w1\u2013w14","DOI":"10.1377\/hlthaff.25.w1"},{"key":"2021120902045530800_R27","doi-asserted-by":"crossref","unstructured":"Long SK, Zuckerman S. MassHealth succeeds in expanding coverage for adults. 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